Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Breastfeeding?


kathyhay

Recommended Posts

kathyhay Apprentice

I am just wondering how breastfeeding played into diagnosing celiac? Has anyone here nursed longer than 12 months? Did your child start showing signs after solids were introduced? Or did you see problems before solids? Did your older baby strongly resist weaning? I just want to see if you all have had similar experiences as I have with my undiagnosed baby. I have another post about his symptoms on the pre-diagnosis board (think husband and 2 yo have celiac). Please share your experiences as they relate to breastfeeding and introducing solids. Thank you for your help!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Terri-Anne Apprentice

Hi Kathy

I am probaby an exception, as Logan doesn't have actual celiac disease, that we are aware of, but "wheat allergy." I nursed Logan exclusively until 4 months when I added rice cereal. Then at 6 months I added fruits and veggies. At around 9 months I added bits of bread, soft noodles, mashed potatoes to his diet. That is when he started to break out in a horrendous, rash that he scratched and scratched until he drew blood, then scratched some more! It was awful!!!! I didn't really think anything of the loose stool, as my experience with my previous 3 breastfed babies was that breastfed babies' stool is always soft! He also developed a severe case of what I thought was "cradle cap" that I could not clear up. He always had scarlet red cheeks, ears and chin, which I did not recognize as unusual, until I finally took wheat out of his diet and they disappeared! I didn' t make the "wheat~multiple problems" connection until around his second birthday. I was thankful to be still nursing him at that time, as I felt the breast milk was probably the MOST nutritious thing he was getting in his diet. Whether that perception was correct or not, I am not sure, but that was a real source of comfort in my own mind. I continued to nurse him until 2 months before his fourth birthday. It was mostly just before he fell asleep, and immediately upon waking, he would climb into bed with me for a quick cuddle and morning nurse. Reluctantly, I encouraged him to give that up. It's been about 8 months since we nursed, and I have to admit, I miss it sometimes, but health wise, he seems fine, no worse off than before, when we were still nursing.

My experience with my older daughter were when we introduced the infant oat cereal, as a change from several boxes of rice cereal, her stools resembled peanut butter with a tea bag broken up through it, in her diaper. Therefore I didn't dare try the oat infant cereal with Logan, which is probably a good thing.

mat4mel Apprentice

There was a post about this not too long ago. My 2 1/2 yr old with celiac was breastfed mostly until she was 18 months old (she ate a little solids starting at maybe 6-8 months old, but preferred nursing)... her loose frequent bowel movements started when she started eating more solids around 18 months old (because I had decreased milk supply with a pregnancy). I am not sure if she had symptoms before I introduced solids.. she has always been on the small side (except for being almost 10 lbs at birth). I am due to give birth any day now and will be gluten free while breastfeeding.

Mel

  • 2 weeks later...
mpeel Newbie

My four-year old is still nursing. She refused solids until 13 months old. She always had looser stools than I remember with my oldest but some babies do, I thought. I did not notice them get looser with solids but not really firm. I did notice after a stomach virus at 2 that her stools were never firm after that. Things progressed from there. Sam has never been small. 8 lbs at birth, 10 by two weeks and 20 by three months. She did slow down and now at 4 years old is 40 lbs which is still about average. I am tiny as is my oldest.

gf4life Enthusiast

I breastfed all three of my children for 17-20 months each. My two boys were in the 95th percentile on growth during the first 6 months and then when I started intriducing solids they started to drop down the charts. My daughter was very small when she was born and had trouble gaining weight. She was almost diagnosed failure to thrive at 12 months, but the doctors decided that she was just petite. Coincidently I was very ill during my pregnancy with her and got worse every year after that. She is now 5 and doing great on the diet. She is almost 40lbs now and getting taller every day! My boys are 8 & 10 and also starting to grow better. They are both short compared to their class mates but are growing at a faster rate now, so they will most likely catch up. I didn't know about Celiac or gluten until three years ago and it took until last year to get tested. My kids were 9, 7 & 4 when diagnosed. They all had some health issues, but never enough to get the doctors to notice their seemingly ramdom symptoms.

I did read that breastfeeding can delay the onset of Celiac and the symptoms are more mild than they would be if they were formula fed as infants. Don't know how true that is though. I was never gluten-free while breastfeeding, so the kids most likely got some gluten.

God bless,

Mariann

azedazobollis Apprentice

I am new to this board. I have three children, ages 8, 6, and 2 years. My middle child, Zobey is on her fourth day of no Gluten, Milk or egg whites. I breastfed Zobey until she was a few months shy of three years old. She was not interested in starting solid foods until nine months old. At that point, I started her on mashed avacado, banana, sweet potato, and potato. She wasnt interested in breads or pasta. It was around 15 months old when she accepted most any food. At that point, I also added dairy to her diet. She started getting ear infections at that point. She also has "geographical tongue"- still all these years. At 20 months, she had tubes in her ears for chronic ear infections. Her tubes came out at around 3 years old. One ear is scarred and the other is permanently perferrated from the tube. When she was four, I noticed that she wasnt like all the other children her age. She was always tired, whiny, a "slow learner". I home schooled her until the middle of her kindergarten year. I put her in school because I thought it was my fault she was "slow". Her health became worse. Her lower abdomen hurts often, she frequently has bowel problems. dark circles under her eyes, She is thin and tall. 46" and 42 lbs.

Allergy tests came back five days ago. Milk and egg whites tested as an allergy. Her wheat was fine, but her Gliadin Ab (IgG) was 48- positive. We go back to the Dr. tomorrow, but he recommended trying no gluten- along with no dairy and egg white. I already see a change in her. She still has some bowel issues though through this diet change. Im just happy to finally be finding some answers.

My son is eight and allergic to peanut. I have my youngest daughter basically eating what her sister eats with whole grains included. Im sure my youngest is allergic to dairy. I was able to discover that at 12 weeks old. The colic stopped as soon as I cut out dairybut came back when I reintroduced it. I might also mention that we have eliminated all processed foods from the house a month ago. No preservatives. I found that I had to buy some ice pops with food colorings and high fructose corn syprup though. Poor girl- I cant completely wipe out everything fun in her diet.

angigz32 Newbie

I breast fed my son until he was 17 months. I did have a hard time weaning him.

He had a feeding tube put in his nose. And he didn't want to breast fed right away. I tried to get him to eat and he still wouldn't eat so they put a feeding tube in his stomach. The Doc isn't sure he has celiac diease. My son does have 10% celiac sprue in his blood. And does have fat in his bowel movement but the doc still says he might not have celiac diease. He weighs 21 pds now and is 21 months old. When he gains more weight the doc is going to do more tests on him to see what is going on. The reason why he has to gain weight is because the tests will cause him to lose weight. Has anyone been through this?

Oh, also when he was a baby. They said he was a colic baby. And he had the stomach flu all the time. According to the doctors ,anyway!! ;)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 1 month later...
kathyhay Apprentice

Just thought I'd bump this topic for a new pool of responders. Thanks!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to glucel's topic in Super Sensitive People
      17

      iron digestibility

    2. - glucel replied to glucel's topic in Super Sensitive People
      17

      iron digestibility

    3. - Scott Adams commented on Scott Adams's article in Latest Research
      3

      New Research Reveals How Antibody Genes May Shape the Immune Response in Celiac Disease

    4. - knitty kitty replied to Bogger's topic in Related Issues & Disorders
      6

      Osteoporosis: Does the body start rebuilding bones after starting a gluten-free diet?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,003
    • Most Online (within 30 mins)
      10,442

    michelinagiggles
    Newest Member
    michelinagiggles
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @glucel,  There's a strong correlation between thiamine deficiency, hypoxia, and insomnia.  Thiamine is needed to help red blood cells carry oxygen.  In thiamine deficiency, hypoxia (lack of oxygen in tissues) occurs, and this can result in insomnia. Hypoxia causes systemic inflammation, increases inflammatory markers, and is associated with cardiovascular events.  Curiously, thiamine deficiency is correlated with excessive daytime sleepiness and oversleeping.   I found a combination of Tryptophan, Pyridoxine B 6, magnesium, and L-theanine works very well for inducing sleep.  Sometimes, I add Passion Flower Extract and/or Sweet Melissa.  There's no side effects the next morning with Passion Flower, it just induces sleepiness.  Sweet Melissa is groovy, and has anti-inflammatory effects on the digestive system.   I prefer to take 250 mg Benfotiamine and 100 mg Thiamine TTFD in the mornings and another dose of Benfotiamine at lunch.  I try not to take any thiamine after four p.m. because it keeps my brain so energized and wanting to think... Oh, I do take a combination of another form of thiamine (sulbutiamine), Pyridoxine and Cobalamine for a pain reliever sometimes, but I can sleep after taking that.  But thiamine does help regulate circadian rhythm.   Make sure you're getting Omega Three fats! They'll help you satisfy that late night carb craving with fewer carbs.  Flaxseed oil, olive oil, sunflower seed oil.  Nuts and nut butters, like walnuts and cashews, are good, too, if you can tolerate them.    Try taking the 100mg thiamine HCl before your aerobics and see if there's a difference.  Sweet dreams! References: Network Pharmacology Analysis of the Potential Pharmacological Mechanism of a Sleep Cocktail. ......(Skip to Section Four) https://pmc.ncbi.nlm.nih.gov/articles/PMC11201840/ Effects of Melissa officinalis Phytosome on Sleep Quality: Results of a Prospective, Double-Blind, Placebo-Controlled, and Cross-Over Study https://pubmed.ncbi.nlm.nih.gov/39683592/
    • glucel
      Thanks to everybody for your help. I reread the dr's notes from the biopsy procedure and it seems I had worse than atrofied villi. It was termed flattened mucosa. So while iron ferratin levels are normal my bet is, as kitty alluded to, iron not getting into cells. I have dr appointment next mo but don't hold out a lot of hope, There is strong correlation of low red blood cells and insomnia so at least I finally solved that one after few yrs of being mislead. I intend to take stop taking 100 mg b1 at noon time and start 150 mg benfotiamin. I may or may not add the the 100 mg b1evening meal. BTW, last night had 1/3 lb beef. potato then 2 bowls cereal and an apple later in the eve. I generally do my areobics before supper so maybe that contributes to the hunger.  
    • knitty kitty
      I have osteoporosis and have crushed three vertebrae.  I supplement with Lysine, Tryptophan, threonine, calcium, Boron, Vitamins D, A, and K, and the B vitamins (folate, B12, and Thiamine B1 especially for bone health).   I tried Fosomax, but it tore up my insides.  I prefer the supplements.  I feel better and my bones feel stronger.   References: A composite protein enriched with threonine, lysine, and tryptophan improves osteoporosis by modulating the composition and metabolism of the gut microbiota https://pubmed.ncbi.nlm.nih.gov/41915427/
    • knitty kitty
      @Aileen Cregan, I was put on high blood pressure medication, too. But I was able to correct my high blood pressure by supplementing with Thiamine Vitamin B 1.  I am no longer on high blood pressure medication.  I feel much better without the medication. I continue to supplement Thiamine in the form Benfotiamine.   The particular high blood pressure medication I took was Norvasc (amlodipine), which causes thiamine deficiency by blocking thiamine transporters so that thiamine cannot enter cells.  Benfotiamine can get into cells by merging with the cell membrane, thus bypassing nonfunctional thiamine transporters.   Indapamide also blocks thiamine transporters! The use of this type of medications that block thiamine precipitated Wernickes Encephalopathy.  My doctors did not recognize the connection to Thiamine deficiency.  I nearly died.   Talk to your doctor and dietician about supplementing with Benfotiamine, a fat soluble form of thiamine that bypasses thiamine transporters.  Ask for an Erythrocyte Transketolace Activity Assay to check your thiamine levels asap.  Routine blood tests for thiamine are not an accurate measure of  thiamine in the body.   Absorption of essential vitamins like Thiamine is altered in Celiac Disease due to damaged villi, inflammation and dysbiosis.  The Gluten Free diet can be lacking in vitamins and minerals.  Discuss supplementing with all the eight B vitamins,  the four fat soluble vitamins and necessary minerals. Please keep us posted on your progress! References: Drug-nutrient interactions: discovering prescription drug inhibitors of the thiamine transporter ThTR-2 (SLC19A3) https://pubmed.ncbi.nlm.nih.gov/31764942/ The Pivotal Role of Thiamine Supplementation in Counteracting Cardiometabolic Dysfunctions Associated with Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC11988323/
    • knitty kitty
      Hi, @Sue7171, I thought you might be interested in this article about Lyme disease and the discussion after the article.   I found this article enlightening.  The finding that not only can alpha gal be problematic, but advantageous infection with Staph aureus can be problematic.   The Acari Hypothesis, VII: accounting for the comorbidity of allergy with other contemporary medical conditions, especially metabolic syndrome https://pmc.ncbi.nlm.nih.gov/articles/PMC11983536/  
×
×
  • Create New...