Jump to content

  • You are not alone. Join Celiac.com for trusted gluten-free answers and forum support.



  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Test Results ? Totally Confused

Rebecca47

Recommended Posts

Rebecca47 Contributor
Rebecca47
Posted

When I was tested 3 months ago (blood) my numbers were before diet and after diet Hope this all makes since. I got all this off of my LabCorp papers.

Antigliadin Abs, IgA 44 High neg 0-4 pos >4 Now 3

Antigliadin Abs, IgG 56 High neg 0- 9 pos>9 now units 20H u/ml

t-Transglutaminase(tTG) IgA 25 High Now 2 neg 0-3

weak positive 3-10 Positive >10

t-Transglutaminase ( tTG) IgG 1 Now 1

Endomysial Antibody IgA Positive abnormal negative Now Neg Neg

Immunoglobulin A,Qn serum 154 Now 104

wbc 3.9 low NOW 4.8

rbc 4.62 now 4.48

hemoglobin 10.5 low now 11.3

hematocrit 33.7 low now 33.3

MCV 73 low now 74

MCH 22.7 low now 25.2

MCHC 31.2 low 33.9

RDW 18.2 high 19.6

Iron serum 23 low now 33

Iron saturation 6 alert now 9

Vitamin D 25 hydroxy 62.1

So my question is the IgG is 20 H u/ml what is that and all the other numbers. Is there anywhere I can look and see if I have the gene, or is that yet another test . My doctor says that my diet is definetly working. I just finished a glass of milk and feel bloated. Sorry If I am asking to many question. If I am just let me know. Sorry I am feeling kinda low today for some reason.

Thanks rebecca :(

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Ursa Major Collaborator
Ursa Major
Posted

Wow, your numbers are normalizing quickly, and your levels of essential nutrients are going up, as well as your hemoglobin etc. improving. Your diet is definitely working, and your villi must be healing VERY fast.

So, you're bloated after drinking milk? I am afraid you're at least lactose intolerant then, maybe even casein. Try taking lactaid with your milk. If that is no help, it's casein, and you may need to eliminate all dairy.

You didn't have the gene test, if you want to know if you have the celiac disease genes, you will still need to get that done. If you don't have the genes they normally look for, you'd have to get the gene test from Enterolab, to see if you 'just' have the gluten sensitive genes (which really are just as bad).

Rebecca47 Contributor
Rebecca47
Posted
  • Author

Thanks. what in the world is casein? I thought about having my doctor send me to an allgerist to see what else I am intolerant to. I think i am allergic to pine nuts, i would eat them and get terribly crampy and hurt badly. now I think it could of been celiac all the time and did not know

rebecca

Ursa Major Collaborator
Ursa Major
Posted

Casein is the milk protein, which would be in cheese, yogurt, milk, sour cream, ice cream........you know, everything that is made from milk.

A lot of intolerances never get picked up by testing, because many times you'll have a delayed reaction. If you don't immediately react to something, it will be missed by almost all conventional testing, and the only way to figure it out is with an elimination diet.

So, you may not test positive for dairy at all, while it may make you awfully sick. You really need to go with what your body is telling you. If milk makes you bloated, you need to avoid it, no testing needed. Dietary response is the best, easiest, and most valid test there is.

tiredofdoctors Enthusiast
tiredofdoctors
Posted

Wow, your numbers HAVE gone down fast. That's fantastic. I agree with Ursula about getting tested for Milk & Casein antibodies. I was at the allergy/immunologist, and he tested for milk & casein ALLERGIES, but not antibodies. I told him that I would like to have the ANTIBODIES tested. Haven't gotten much response, but am going to keep plugging!

There's a difference between an ALLERGY and having ANTIBODIES. Be very clear which your doctor is testing. Skin tests are for allergies, and they tell you what to avoid in order to not have an allergic reaction. Antibody testing is usually done by blood test and will tell what your body will fight like the devil if you ingest it. With regard to genetic testing -- I have just had the greatest experience with that -- I would recommend seeing a geneticist at this point. They told me that the average person has seen 9 other doctors who told them that "it's all in your head" before they get to them. Bypass the other 7 and see a geneticist!!!

I am really happy for you that your numbers went down so quickly. That is amazing. Good luck to you with your continued medical "journey". You're doing the right thing. Good luck to you . . . keep in touch

((((hugs))))

Lynne

Rebecca47 Contributor
Rebecca47
Posted
  • Author
Wow, your numbers HAVE gone down fast. That's fantastic. I agree with Ursula about getting tested for Milk & Casein antibodies. I was at the allergy/immunologist, and he tested for milk & casein ALLERGIES, but not antibodies. I told him that I would like to have the ANTIBODIES tested. Haven't gotten much response, but am going to keep plugging!

There's a difference between an ALLERGY and having ANTIBODIES. Be very clear which your doctor is testing. Skin tests are for allergies, and they tell you what to avoid in order to not have an allergic reaction. Antibody testing is usually done by blood test and will tell what your body will fight like the devil if you ingest it. With regard to genetic testing -- I have just had the greatest experience with that -- I would recommend seeing a geneticist at this point. They told me that the average person has seen 9 other doctors who told them that "it's all in your head" before they get to them. Bypass the other 7 and see a geneticist!!!

I am really happy for you that your numbers went down so quickly. That is amazing. Good luck to you with your continued medical "journey". You're doing the right thing. Good luck to you . . . keep in touch

((((hugs))))

Lynne

Wow, thank you everyone you !!!!!! I am totally greatful for all the imput. no one understands like this board. I will talk to my doctor this week for other results and I will be telling her all that I have learned. My doctor told me once that I would probably learn more by research than see could tell me. So now I can tell her she was correct. Again thank you all.

rebecca

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. xxnonamexx
      - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Breakfast ideas besides oatmeal as Avenin can be gluten?

      I read gluten-free oatmeal Avenin can cause gluten like symptoms. I read Bobs Redmill gluten-free creamy buckwheat cereal and Millet are good alternatives with ultra low heavy metals, mold but it seems it takes longer to prepare the minute oats. What have you changed your breakfast to.
    2. RMJ
      - RMJ replied to Ginger38's topic in Coping with Celiac Disease
      5

      The Struggle Has Overtaken Me

      Ginger38, that sounds very difficult. Each dietary restriction makes it harder to figure out what to eat. Before my celiac diagnosis I already watched out for my cholesterol level and migraine triggers, but those are much easier than diabetes restrictions. One “bad” meal isn’t that much of a problem for cholesterol levels, and my migraines only happened if I ...
    3. Aretaeus Cappadocia
      - Aretaeus Cappadocia replied to Ginger38's topic in Coping with Celiac Disease
      5

      The Struggle Has Overtaken Me

      Reading the original post on this thread made me think of "How To Eat An Elephant". The key point is that a whole, big problem can seem insurmountable but if you break it into bite-sized pieces it is much easier to accomplish. Here is the google description. It's not bad: If you're facing a daunting goal, you can use these steps to "eat your elephant...
    4. Aretaeus Cappadocia
      - Aretaeus Cappadocia replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Gluten challenge - Need some guidance

      I don't know the answer to your question any better than a google search, but I am sure someone else will step up and answer. I am popping up to recommend that you keep a careful diary (in case you weren't already). Try to catalog what you are eating and experiencing. Bring a copy to your next visit (and if you have access to the Dr, also send a copy...
    5. Xravith
      - Xravith posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Gluten challenge - Need some guidance

      After few months going gluten free, I decided to reintroduce gluten in my diet so I can do a proper diagnosis for Celiac disease. During the gluten free period I felt incredibly good. I stopped having hypoglycemia symptoms, I gained some muscle (Still, I am considerably underweight) and my anxiety totally disappeared. I felt totally like a new person...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,180
    • Most Online (within 30 mins)
      10,442
    Nancy sirois
    Newest Member
    Nancy sirois
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • xxnonamexx
      Breakfast ideas besides oatmeal as Avenin can be gluten?

      By xxnonamexx · Posted

      I read gluten-free oatmeal Avenin can cause gluten like symptoms. I read Bobs Redmill gluten-free creamy buckwheat cereal and Millet are good alternatives with ultra low heavy metals, mold but it seems it takes longer to prepare the minute oats. What have you changed your breakfast to.
    • RMJ
      The Struggle Has Overtaken Me

      By RMJ · Posted

      Ginger38, that sounds very difficult.  Each dietary restriction makes it harder to figure out what to eat. Before my celiac diagnosis I already watched out for my cholesterol level and migraine triggers, but those are much easier than diabetes restrictions. One “bad” meal isn’t that much of a problem for cholesterol levels, and my migraines only happened if I consistently ate the triggers. After many years I’ve figured out how to bake gluten free but I think many recipes have more starch which wouldn’t work for diabetes. If you go with the elephant eating analogy, I think the first portion to work on would be the diabetes, since the immediate consequences of not being careful (passing out from low blood sugar, or diabetic coma from high blood sugar) are so severe. The next portion would be celiac. The serious consequences aren’t as immediate, but if you have celiac disease, I think of eating gluten like a booster shot - revving up the immune system, but to attack yourself leading to long term damage. It sounds like you are experiencing this damage now. I did a google search on “gluten free food for diabetics” and a number of sites with advice came up.  If your insurance will cover it and you can find one, a registered dietician who knows about both diabetes and celiac disease might help you figure out what to eat safely. Hopefully my post will both scare and encourage you, as requested, with a big dose of compassion because this sounds very difficult and you are clearly suffering.
    • Aretaeus Cappadocia
      The Struggle Has Overtaken Me

      By Aretaeus Cappadocia · Posted

      Reading the original post on this thread made me think of "How To Eat An Elephant". The key point is that a whole, big problem can seem insurmountable but if you break it into bite-sized pieces it is much easier to accomplish. Here is the google description. It's not bad: If you're facing a daunting goal, you can use these steps to "eat your elephant": Identify the Elephant: Clearly define the large project or goal that feels overwhelming. Break it Down: Divide the major task into smaller "bite-sized" pieces. If a piece still feels too big, break it down further. Prioritize: Decide which "bite" to take first based on necessity or impact. Focus on the Now: Instead of worrying about the whole animal, focus only on the single step you are taking right now. Maintain Consistency: Progress comes from taking the "next right step" every day until the task is complete. Celebrate Small Wins If I understood Ginger38's post correctly, you are facing the prospect of a gluten challenge, but you are already eating gluten on an intermittent basis. It also sounds like many of the symptoms you attribute to gluten consumption are in full expression. Step back and take a deep breath. Get a notebook and start a gluten-related diary. Don't try to make it perfect; just record what you can about food intake and what you experience as you go along. Talk to your Dr's office (nurse, Dr, whomever) about the challenge. The most rigorous challenge is for someone who has already gone truly gluten free but now needs a clear diagnosis. Someone who is already eating gluten should not need as much "challenge". Even at that, google describes an example challenge as 1-2 slice of bread or 1/2 cup of pasta a day. If that describes your existing diet you are already there. For the moment, try to focus on getting past the challenge and test. Once you have the results, start planning accordingly.
    • Aretaeus Cappadocia
      Gluten challenge - Need some guidance

      By Aretaeus Cappadocia · Posted

      I don't know the answer to your question any better than a google search, but I am sure someone else will step up and answer. I am popping up to recommend that you keep a careful diary (in case you weren't already). Try to catalog what you are eating and experiencing. Bring a copy to your next visit (and if you have access to the Dr, also send a copy a couple days in advance). Don't assume that they will read it. They might, but they also might be under tremendous time pressure and not get to it. Two other suggestions: if your healthcare provider has a web portal, sign on and search for "gluten challenge". They may have a standard page and Dr assumed you would find it on your own. If that doesn't work, call the Dr's office and ask the office for their official advice. You probably wouldn't need to speak to the Dr directly. There should be some nurse or staff member who could answer that
    • Xravith
      Gluten challenge - Need some guidance

      By Xravith · Posted

      After few months going gluten free, I decided to reintroduce gluten in my diet so I can do a proper diagnosis for Celiac disease. During the gluten free period I felt incredibly good. I stopped having hypoglycemia symptoms, I gained some muscle (Still, I am considerably underweight) and my anxiety totally disappeared. I felt totally like a new person. Now, I almost reached the second week of gluten challenge and all my symptoms are progressively coming back. The first days I was ok, just a bit of acid reflux I could control with medicines. However, after the first week I started to feel real stomach pain and tiredness, my face is growing acne and sometimes (specially when I walk) i feel painful migraines.  I am afraid If I am eating too much gluten or not enough, the "4 slices of bread" indication confuses me. I am actually eating 20 g of bread, 3 biscuits and 40 g of croissant each day. My doctor was not very specific when he gave me the medical order for the gluten challenge, so I invented my own daily gluten menu. Do you have any suggestions? 4 weeks will be enough to do the blood test with my current gluten intake?  Thank you
×
×
  • Create New...