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Itching


kasia

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kasia Rookie

Hi,

I've been diagnosed about 4 months now & am doing fine, but I have one query that's really bugging me.

Pre diagnosis I was very ill & my symptoms were severe (projectile vomiting, d, big weight loss, exhaustion). I had the same type of symptoms for about the first 6 weeks gluten-free, but not as harsh. Since then I have been absolutely fine, except for on the occasions when I think I've had gluten by mistake I get itching & my eyes water.

Do you think that this is now my gluten reaction? As I'm quite new to it all, it's still a learning curve, but if I have no symptoms then I'm having difficulty ensuring I'm gluten free. I know that the itching did occur after holy wafer (not thinking there), & after a supposedly gluten-free oat flapjack (so I guess I can't have oats yet).

I'm not complaining - there are so many of you with terribly severe reactions that I count myself lucky. I'd just like to know I'm getting it right.

If this is my gluten reaction, will it become worse the longer I am gluten-free, as my body becomes more sensitive to gluten?

Thanks very much

Kate

Itching & scratching again after eating chocolate with a filling I didn't check


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jayhawkmom Enthusiast

Well, it's certainly a "sign" for me. It's not my only reaction, but when I have wheat (specifically) - I become extremely itchy. Of course, the same thing happens to me with dairy.

lorka150 Collaborator

perhaps you are also allergic to it.

super-sally888 Contributor

Hi,

Am also newish here and on a learning curve. I also get really itchy.... sometimes when I eat stuff with gluten. Have also worked out that when I cheat (I am still at the stage of trying to convince myself I really have this - no testing available here - and am not always very compliant) I cough a lot... dry cough - even for the next day or two... I always thought that was food related...

Interesting the things we learn...

Sally

perhaps you are also allergic to it.

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      I'm not saying this is what you have, but your description reminds me of Morgellons, which are not very well understood. Here is a review from a reputable source. If it seems similar to your experience, you could raise this question with your Dr.  https://my.clevelandclinic.org/health/diseases/morgellons-disease
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      Hi Trent, no dairy. Other than good quality butter. I have been lactose free for years. No corn, sugar, even seasonings and spices. I don't eat out. I cook my own food.
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      Hello Russ! Thank you so much for your reply.  I have not had an antibody test done, ever, relating to gluten. Last year I had an allergy test done via blood draw (as my insurance wouldn't cover the skin test) but this was for pollen and grasses, not food. Even on the blood test I had extremely high levels of reactions to each allergen. Could this seasonal allergy inflammation be contributing to my celiac inflammation? I am so careful, there is no way I could ingest gluten. For example, couple of months ago I tried a cough drop that says it was gluten free. I checked ingredients, it seemed fine. But just taking one of those caused me to have nausea, vomiting, and the same extreme abdominal pain. Have you ever heard of anyone else having symptoms like mine after being diagnosed celiac and strictly gluten free? The last episode I had like this was yesterday, after I ate a certified gluten-free coconut macaroon with a little chocolate on it. I have eaten coconut and chocolate before with no issue,  so I didn't see how I could all of a sudden have such a strong response. 
    • Russ H
      The sensitivity of people with coeliac disease varies greatly between individuals. The generally accepted as safe limit for most people is 10 milligrams per day. This equates to a piece of bread the size of a small pea. Some people report that they are more sensitive than this, but others can very occasionally eat a normal gluten containing meal without reacting. I don't think that touching or throwing bread around would lead to you ingesting enough to cause a reaction. There are case reports of farmers with coeliac disease reacting to the dust from gluten-containing animal feed but they were inhaling large amounts of dust over a long period of time in barns. Perhaps you episodes are caused by a reaction to something other than gluten? Have you had your antibody levels checked to see whether you are still being exposed to gluten?
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