Jump to content
  • You are not alone. Join Celiac.com for trusted gluten-free answers and forum support.



  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Blood Test Question


Heartmum2Jamie

Recommended Posts

Heartmum2Jamie Newbie

Hi All!

I posted here once, just over a year ago asking about symptoms my son was having. We had a RAST test in Jan 2006 which showed he is allergic to dairy, eggs, nuts and surprisingly wheat. What we were told is that the wheat allergy was only very weakly positive and that we didn't have to cut it out. We decided to give it a try and things improved so much, that we decided to stick to his new diet. He went from having 6-10 horrid, mucousy diapers a day to just 1 or 2 and they lost the mucous and rotting smell. To this day, a year later, we can still tell if he has had any wheat.

Unfortunately, most of his stools are still unformed and his weight is still not brilliant (although he is the worlds pickiest eater and he is slightly food phobic. We have an appointment to see his paed on the 22nd and I was going to ask him to do a coeliac screening on him.

My question is: If ds has been on a wheat free diet for a year, will it affect the results. I know that wheat is a no-no for coeliacs, but am not sure what else there is that will contain gluten but not wheat, if you see what I mean.

Any help would be much appreciated.

Kerry


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jayhawkmom Enthusiast
My question is: If ds has been on a wheat free diet for a year, will it affect the results. I know that wheat is a no-no for coeliacs, but am not sure what else there is that will contain gluten but not wheat, if you see what I mean.

Rye, Barley, and Oats are also nono's - so if he's been eating those and gluten is a problem, you could see results on blood tests. However, if he's had limited amounts of those foods, and no wheat - you might not see anything on the results.

Honestly... I don't know. I hope someone else can help you and give you more definitive answers.

Guhlia Rising Star

If you really don't want to introduce wheat into his diet for the Celiac tests, try some of the following. Malted beverages, such as Goya contain barley. Oat-based cereals, specifically Quaker oatmeal definitely contains gluten. Rye bread and oat bread for sandwiches at lunch. Malted chocolate drinks and malted milk balls for snacks. Barley cereals and barley soups are good. Please keep in mind though that he may very well still test negative for Celiac. It's hard to get enough gluten in your diet without wheat. It's possible though.

You may want to look into testing through Enterolab. You insurance likely won't cover it, but it's only around $350 and then you don't have to have it on his health record. Enterolab isn't endorsed by most doctors, so your doctor likely won't support you in this decision. Even after a full year wheat free, he still has a good chance of testing accurately on Enterolab's test if he had a heavily wheat-laden diet prior to going wheat free.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

    2. - HelloFlowersGoodbyeFlour replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

    3. - HelloFlowersGoodbyeFlour replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

    4. - cristiana replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

    5. - trents replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,125
    • Most Online (within 30 mins)
      10,442

    psasso76
    Newest Member
    psasso76
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • cristiana
      Definitely worth speaking to your gastroenterologist about this. My own told me that by using Gaviscon a barrier forms over the contents of the stomach and stops gas and acid irritating the throat.  In fact, he said to me that because I found relief using Gaviscon that was a very clear indicator that reflux was the cause of that particular issue.   A wedge pillow will really help with this - or raising the top bed legs with bricks.
    • HelloFlowersGoodbyeFlour
      I did get the pneumonia vaccine about 4 years ago. I had this amazing allergist who did all those vitamin deficiencies test and told to get that vaccine. Unfortunately she retired.  I haven’t been to an allergist in a few years,  I’m not sure what my levels are now. I did have a pulmonologist who wasn’t concern and said I seemed fine to him that I was young etc. But yes I think I should at the very least get a different opinion. Thank you for your reply 
    • HelloFlowersGoodbyeFlour
      Yes I do have acid reflux. I’m not on anything for it at the moment. I sometimes wonder if that’s what it could be because I get heart burn every night. I may revisit my gastrointestinal doctor again. Thanks for the reply  
    • cristiana
      Hi @HelloFlowersGoodbyeFlour I wonder if you suffer from reflux, as if you do, you may find it could also be irritating your airways.  I shall explain: I have to use a blue inhaler from time to time, and it seems to be related to reflux.  Never had any trouble before my coeliac diagnosis, the reflux seemed to be something that developed following a holiday to France in 2019, where I had been exposed to gluten.    The reflux continued into the autumn and winter, my throat itched to begin with, particularly after meals, but it then that feeling of irritation seemed to spread to my lungs.  I even found it difficult to breathe on occasion. What stopped it in its tracks was using a wedge pillow at night, following a reflux diet (you can find them online), not eating 2-4 hours before bed and also having a dose of Gaviscon Advanced at night, which forms a barrier so that acid/food can't go back up your esophagus.  The throat irritation faded, and then I found it easier to breathe again. Just mentioning in case it could be a contributing factor.
    • trents
      Since initially getting your D checked a few years ago, has it since rebounded to normal levels? Sounds like at some point you got it checked again.
×
×
  • Create New...