Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Frequent Fliers Unite!


Sophiekins

Recommended Posts

Sophiekins Rookie

I know there are tons of us who are gluten-free and have to avoid other foods as well. . .meaning that while airlines are making great strides in offering gluten-free meals, for many of us this isn't enough. On my last trip on British Airways, I was given a "Gluten-Free Meal" as I requested (shock! stunned disbelief! they actually remembered to put one on the plane??!!). Which would have been great, except that the bun was the only item on the tray with ingredients. . .thank god. . .and the ingredients started with "wheat starch". Now I know it's technically gluten free, but that doesn't stop it making me violently ill. Needless to say, this shattered my confidence in the gluten-free nature of the rest of my unlabeled meal, and I didn't eat any of it.

I'm now considering switching my business to airlines that don't ask me to pay for a meal (which, let's face it, without complete ingredients, I'm never going to eat), but it also occurred to me that we'd all do a lot better ("we" being the special meals contingent on the average airliner. . .which, if the number of tray-laden trips the flight attendants make before each serving is any indication, is a rapidly increasing number) if the airlines would clearly label the ingredients in their special meals.

So here's my plea: the next time you fly (on any flight that offers meal service), ask for a gluten free meal when you book your ticket, and write feedback to the airline explaining what happened to you after eating the meal (especially if it made it easier for you to fly or if you had a serious reaction) and letting them know how very much we'd appreciate complete ingredient listings on all of the parts of the meals they serve us (and how very depressing it is to get your "safe" meal and discover the only thing on it you can actually consume safely is the bottled water).

Let's spread the word and highlight the airlines that are celiac-friendly!

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

While it's not really up to them, but with the caterers they contract out to, the airlines may be the only way to exert influence. While I don't take trips that involve meals (mostly flying along the west coast of the US, or even just in the states), I think it's a great idea, and should be done at every opportunity.

Link to comment
Share on other sites
Sophiekins Rookie

When, in the past, I've spoken to the airlines about this, they've told me to write to their customer service department and ask that it be passed to their catering managers. . .who knows if that happens, but if enough of us do it, maybe we'll become un-ignorable?

Link to comment
Share on other sites
dh204 Apprentice

hi everyone,

i travel internationally quite frequently, and since i'm a skyteam elite member, this means i usually fly on klm or air france. thus said, i have always had relatively decent gluten free meals with klm...the flight attendants sometimes forget and offer me bread, but then they always come back a few minutes later and apologize for having offered bread.

i would also like to point out a warning - don't know if it has been covered before, but delta airlines no longer offers gluten free meals AT ALL. after i purchased my ticket online i called to request the gluten free meal only to be told that they used to offer it but don't do it anymore. they said they couldn't request one via their catering company, and they couldn't tell me what the ingredients were in the other special meals. finally they agreed to refund me 100% of my ticket, so i think i'll be heading back to klm....

Link to comment
Share on other sites
  • 6 months later...
rajawali Newbie
Let's spread the word and highlight the airlines that are celiac-friendly!

--------------

I fully suport this initiative. The airlines and their caterers will listen if enough noise is made, or if enough travellers switch to gluten-free friendly airlines.

My wife and I plan to visit Europe this fall. We will provide comments upon our return.

Rajawali.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,070
    • Most Online (within 30 mins)
      7,748

    TT24
    Newest Member
    TT24
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Fluka66
      Thank you again for your reply and comments which I have read carefully as I appreciate any input at this stage. I'm tending to listen to what my body wants me to do, having been in agony for many years any respite has been welcome and avoiding all wheat and lactose has thankfully brought this.  When in pain before I was seen by a number of gynacologists as I had 22 fibroids and had an operation 13 years ago to shrink them . However the pain remained and intensified to the point over the years where I began passing out. I was in and out of a&e during covid when waiting rooms where empty. My present diet is the only thing that's given me any hope for the future. As I say I had never heard of celiac disease before starting so I guess had this not come up in a conversation I would just have carried on. It was the swollen lymph node that sent me to a boots pharmacist who immediately sent me to a&e where a Dr asked questions prescribed antibiotics and then back to my GP. I'm now waiting for my hospital appointment . Hope this answers your question. I found out more about the disease because I googled something I wouldn't normally do, it did shed light on the disease but I also read some things that this disease can do. On good days I actually hope I haven't got this but on further investigation my mother's side of the family all Celtic have had various problems 're stomach pain my poor grandmother cried in pain as did her sister whilst two of her brother's survived WW2 but died from ulcers put down to stress of fighting.  Wishing you well with your recovery.  Many thanks  
    • knitty kitty
      Welcome to the forum, @Nacina, What supplements is your son taking?
    • knitty kitty
      @BluegrassCeliac, I'm agreeing.  It's a good thing taking magnesium. And B vitamins. Magnesium and Thiamine work together.  If you supplement the B vitamins which include Thiamine, but don't have sufficient magnesium, Thiamine won't work well.  If you take Magnesium, but not Thiamine, magnesium won't work as well by itself. Hydrochlorothiazide HCTZ is a sulfonamide drug, a sulfa drug.  So are proton pump inhibitors PPIs, and SSRIs. High dose Thiamine is used to resolve cytokine storms.  High dose Thiamine was used in patients having cytokine storms in Covid infections.  Magnesium supplementation also improves cytokine storms, and was also used during Covid. How's your Vitamin D? References: Thiamine and magnesium deficiencies: keys to disease https://pubmed.ncbi.nlm.nih.gov/25542071/ Hiding in Plain Sight: Modern Thiamine Deficiency https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8533683/ The Effect of a High-Dose Vitamin B Multivitamin Supplement on the Relationship between Brain Metabolism and Blood Biomarkers of Oxidative Stress: A Randomized Control Trial https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6316433/ High‐dose Vitamin B6 supplementation reduces anxiety and strengthens visual surround suppression https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9787829/ Repurposing Treatment of Wernicke-Korsakoff Syndrome for Th-17 Cell Immune Storm Syndrome and Neurological Symptoms in COVID-19: Thiamine Efficacy and Safety, In-Vitro Evidence and Pharmacokinetic Profile https://pubmed.ncbi.nlm.nih.gov/33737877/ Higher Intake of Dietary Magnesium Is Inversely Associated With COVID-19 Severity and Symptoms in Hospitalized Patients: A Cross-Sectional Study https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9132593/ Magnesium and Vitamin D Deficiency as a Potential Cause of Immune Dysfunction, Cytokine Storm and Disseminated Intravascular Coagulation in covid-19 patients https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7861592/ Sulfonamide Hypersensitivity https://pubmed.ncbi.nlm.nih.gov/31495421/
    • BluegrassCeliac
      Hi,   Not saying Thiamine (B1) couldn't be an issue as well, but Mg was definitely the cause of my problems. It's the only thing that worked. I supplemented with B vitamins, but that didn't change anything, in fact they made me sick. Mg stopped all my muscle pain (HCTZ) within a few months and fixed all the intestinal problems HCTZ caused as well. Mom has an allergy to some sulfa drugs (IgG Celiac too), but I don't think I've ever taken them. Mg boosted my energy as well. It solved a lot of problems. I take 1000mg MgO a day with no problems. I boost absorption with Vitamin D. Some people can't take MgO,  like mom, she takes Mg Glycinate. It's one of those things that someone has try and find the right form for themselves. Everyone's different. Mg deficiency can cause anxiety and is a treatment for it. A pharmacist gave me a list of drugs years ago that cause Mg deficiency: PPIs, H2 bockers, HCTZ, some beta blockers (metoprolol which I've taken -- horrible side effects), some anti-anxiety meds too were on it. I posted because I saw he was an IgG celiac. He's the first one I've seen in 20 years, other than my family. We're rare. All the celiacs I've met are IgA. Finding healthcare is a nightmare. Just trying to help. B  
    • Scott Adams
      It sounds like you've been through a lot with your son's health journey, and it's understandable that you're seeking answers and solutions. Given the complexity of his symptoms and medical history, it might be beneficial to explore a few avenues: Encourage your son to keep a detailed journal of his symptoms, including when they occur, their severity, any triggers or patterns, and how they impact his daily life. This information can be valuable during medical consultations and may help identify correlations or trends. Consider seeking opinions from specialized medical centers or academic hospitals that have multidisciplinary teams specializing in gastrointestinal disorders, especially those related to Celiac disease and Eosinophilic Esophagitis (EOE). These centers often have experts who deal with complex cases and can offer a comprehensive evaluation. Since you've already explored alternative medicine with a nutrition response doctor and a gut detox diet, you may want to consider consulting a functional medicine practitioner. They take a holistic approach to health, looking at underlying causes and imbalances that may contribute to symptoms. Given his low vitamin D levels and other nutritional markers, a thorough nutritional assessment by a registered dietitian or nutritionist specializing in gastrointestinal health could provide insights into any deficiencies or dietary adjustments that might help alleviate symptoms. In addition to routine tests, consider asking about more specialized tests that may not be part of standard screenings. These could include comprehensive stool analyses, food intolerance testing, allergy panels, or advanced imaging studies to assess gut health.
×
×
  • Create New...