Jump to content
  • You are not alone. Join Celiac.com for trusted gluten-free answers and forum support.



  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Is My Doctor Wrong?


shanbr

Recommended Posts

shanbr Rookie

I asked him to test me for Celiac and he said "your liver functions look fine, no need to test".

Is that right?

I basicly put me on a non-gluten diet and the world of changes that have happened.

First, let me tell you about my RA. I was diagnosed with what they said was the "worst case they have seen" for Rheumatoid Arthritis.

A couple years later, nothing they gave worked, they actually made me worse.

My symptom I am worried about most is my swelling of the muscles. I don't think my joints are swelling, I think it's the muscles at those joints that are because they swell me my calves swell and my tops of my feet etc. where no joints are.

Anyway, being gluten free, I am doing pretty darn good on only celebrex.

I am concerned that he is wrong is saying my liver looks good so i don't have it.

If he is right, is there another disease with gluten problems that isn't celiac? I always told him all this time that when my stomach is worse, so is my body.

Any advice is appreciated.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



RiceGuy Collaborator

From what I've read on this board, many Celiacs experience the swollen feet and ankles you describe. It sounds to me like water retention, which I have found to be lessened with reducing salt intake, but most notably when I started taking a magnesium supplement.

I must say I've never read anything about the liver function being any indicator of Celiac. To me that sounds like non-sense.

Ursa Major Collaborator

Your doctor sounds like one of those many doctors who is completely clueless about celiac disease. Whether your liver function is okay or not is irrelevant when it comes to celiac disease testing.

I used to get very swollen feet and ankles (even though I hardly used any salt then, which likely caused me to be deficient in iodine). When I cut out gluten the swelling stopped as well.

If you have improved on the gluten-free diet you are at least gluten intolerant, and you might have celiac disease. Either way, the gluten-free diet is the only treatment. Just ignore your doctor and keep up with the diet, unless you want an official diagnosis.

If you want to have celiac disease testing done, you will have to keep eating lots of gluten until after the tests. Mind you, NOBODY could make me eat it again, just so I will find out what I already know. Gluten makes me sick, so I won't eat it. Fortunately my doctors agree, but if they didn't I'd still refuse to eat gluten.

Guest Eagle

Your doctor sounds as clueless as the one I just had. My liver functions just fine but my stomach was a mess and I was always bloated. I wonder what made him make that decision. I guess we'll never really know!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

    2. - HelloFlowersGoodbyeFlour replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

    3. - HelloFlowersGoodbyeFlour replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

    4. - cristiana replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

    5. - trents replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,124
    • Most Online (within 30 mins)
      10,442

    HelloFlowersGoodbyeFlour
    Newest Member
    HelloFlowersGoodbyeFlour
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • cristiana
      Definitely worth speaking to your gastroenterologist about this. My own told me that by using Gaviscon a barrier forms over the contents of the stomach and stops gas and acid irritating the throat.  In fact, he said to me that because I found relief using Gaviscon that was a very clear indicator that reflux was the cause of that particular issue.   A wedge pillow will really help with this - or raising the top bed legs with bricks.
    • HelloFlowersGoodbyeFlour
      I did get the pneumonia vaccine about 4 years ago. I had this amazing allergist who did all those vitamin deficiencies test and told to get that vaccine. Unfortunately she retired.  I haven’t been to an allergist in a few years,  I’m not sure what my levels are now. I did have a pulmonologist who wasn’t concern and said I seemed fine to him that I was young etc. But yes I think I should at the very least get a different opinion. Thank you for your reply 
    • HelloFlowersGoodbyeFlour
      Yes I do have acid reflux. I’m not on anything for it at the moment. I sometimes wonder if that’s what it could be because I get heart burn every night. I may revisit my gastrointestinal doctor again. Thanks for the reply  
    • cristiana
      Hi @HelloFlowersGoodbyeFlour I wonder if you suffer from reflux, as if you do, you may find it could also be irritating your airways.  I shall explain: I have to use a blue inhaler from time to time, and it seems to be related to reflux.  Never had any trouble before my coeliac diagnosis, the reflux seemed to be something that developed following a holiday to France in 2019, where I had been exposed to gluten.    The reflux continued into the autumn and winter, my throat itched to begin with, particularly after meals, but it then that feeling of irritation seemed to spread to my lungs.  I even found it difficult to breathe on occasion. What stopped it in its tracks was using a wedge pillow at night, following a reflux diet (you can find them online), not eating 2-4 hours before bed and also having a dose of Gaviscon Advanced at night, which forms a barrier so that acid/food can't go back up your esophagus.  The throat irritation faded, and then I found it easier to breathe again. Just mentioning in case it could be a contributing factor.
    • trents
      Since initially getting your D checked a few years ago, has it since rebounded to normal levels? Sounds like at some point you got it checked again.
×
×
  • Create New...