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SunnyDyRain

When Do The Symtoms Stop?

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Hi all, I have been gluten free for only 2 days, but I'm still getting D. Before I was diagnosed, I was only getting D when eating pasta, bread and the big ticket items. It would not be unusal for me to go 3-4 days without D by just avoiding pasta and hogies. Now I've eaten no big ticket items scince monday and I feel as if my D is getting worse! Is this usual?

Also, before Dx, I took alot of immodium, but now i'm thinking.... if i take immodium is it hurting me by keeping the food in me if my body obviously dosen't want it. Was I really hurting my self before by forcing gluten to stay in? Was I helping by making it stay and absorb nutrients?


Dx 3/23/07

Gluten free 3/27/07

Intolerant:

Gluten

MSG

Allergies:

Ragweed

Honeydew

Cantalope

Nickel (jewelry)

Dx'd Lymphocytic Colitis 6/16/08

I am a bad silly-yak!

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Well, it seems to usually take longer than two days, from my experience and those of others whose comments I've read. It took me several weeks to feel significantly better (I still have symptoms at times, since I'm coping with multiple intolerances ...); I've seen people who say it's taken them months.

Sometimes things actually do seem worse before they get better. I know my gut was positively manic/depressive for a few weeks trying to figure things out ;)

I don't know about the use of lots of Immodium. I almost always had the opposite problem and knew enough not to be taking laxatives all the time. I wonder if your body could have worked up sort of a tolerance/dependence to the medicine, which could explain your symptoms now, at least in part. With luck, someone else will have a similar experience to yours and can help you on this one.


McDougall diet (low fat vegan) since 6/00

Gluten free since 1/6/07

Soy free and completely casein and egg free since 2/15/07

Yeast free, on and off, since 3/1/07 -- I can't notice any difference one way or the other

Enterolab results -- 2/15/07

Fecal Antigliladin IgA 140 (Normal Range <10 units)

Fecal Antitissue Transglutaminase IgA 50 (Normal Range <10 units)

Quantitative Microscopic Fecal Fat Score 517 (Normal Range <300 units)

Fecal anti-casein (cow's milk) IgA antibody 127 (Normal Range <10 units)

HLA-DQB1 Molecular analysis, Allele 1 0501

HLA-DQB1 Molecular analysis, Allele 2 06xx

Serologic equivalent: HLA-DQ 1,1 (subtype 5,6)

Fecal anti-ovalbumin (chicken egg) IgA antibody 11 (Normal range <10 units)

Fecal Anti-Saccharomyces cerevisiae (dietary yeast) IgA 11 (Normal range <10 units)

Fecal Anti-Soy IgA 119 (Normal Range < 10 units)

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After a week I felt substantially better. Like you, I would tend to only get D when eating significant

amounts of Gluten. As time went on, I got more and more sensitive.

I've been completely gluten-free for about 6 weeks now, after months and months of denial. I never did get a diagnosis, but I feel so much better.

After 6 weeks I can go for a run without worrying where the closest bathroom is. I'm no longer bloated, I'm (usually ;) ) easier going, much less anxious and stressed. The difference is rather striking.

My boss this week just commented how "Amazingly Smart you are", it's not really that my intelligence has changed, it is that how I feel has changed. It is projected out thru all aspects of my life. When you feel better you look and are perceived as "better".

I agree with the earlier poster that thought you might be a little dependent upon the immodium to maintain your "regularity". Maybe if you cut back on it more slowly you could lessen the effects...


Dental Enamel Defects

Gastro symptoms

Positive Dietary Response

Enterolab Antigliadin IgA positive 12/06

Transglutaminase IgA Positive

Blood TG IgA Negative 2/07

HLA-DQ 3,1 (Subtype 7,5)

Gluten Intolerant...Likely non Celiac

Western Oregon (Or-ee-gun) US

Why Worry?...YOU are a sentient being on a habitable world in a cosmos largely filled with nothing.

You

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I agree with the earlier poster that thought you might be a little dependent upon the immodium to maintain your "regularity". Maybe if you cut back on it more slowly you could lessen the effects...

I haven't used immodium for about 2 monthes now.. I have been avoiding it scince the blood work has been done, and totally have not touched it in the past few days.

There was a time I took it daily, every morning after my coffee... I switched to decaf and i didn't need it after my coffee every mornining.


Dx 3/23/07

Gluten free 3/27/07

Intolerant:

Gluten

MSG

Allergies:

Ragweed

Honeydew

Cantalope

Nickel (jewelry)

Dx'd Lymphocytic Colitis 6/16/08

I am a bad silly-yak!

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