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ADevoto

Positive Gene,negative Tests, Symptoms Help

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I need a reality check from all of you. I have been going round and round with this issue for years. Here is the bottom line:

Three children and husband - one child is short for age but no digestive issues. Nothing with husband either.

Other 2 children (twins) test results:

BOth have DQ2 (one has an additional HLA-DQB1 *0201, 0602)

One tested through Promethius Lab - all negative blood work

One tested through Enterolab - positive on Gluten sensitivity Stool test (13 units)

One is labeled as Autistic, mood disorder, learning disability, severely constipated, underweight and skin ecemia (sp)

The other is dsylexic and has always had digestive issues (gas).

When they were little both had big tummies and very brightly colored poop

My tests (Promethius Labs)

- Positive for DQ2 but negative for all other blood work

- Been dx with IBS since I was 12 and for the last month and 1/2 - severe morning diaherra

I have my doctor's appt tomorrow and I have this feeling he is going to say the same thing every other doctor has said - no problem.

Do you think that I should just ignore them all and go on a gluten free diet or are they right? It will be extremely difficult with my autistic child to go on diet - all he eats is pasta and bread. Maybe I am just looking for something to correct problems that aren't related. HELP

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I need a reality check from all of you. I have been going round and round with this issue for years. Here is the bottom line:

Three children and husband - one child is short for age but no digestive issues. Nothing with husband either.

Other 2 children (twins) test results:

BOth have DQ2 (one has an additional HLA-DQB1 *0201, 0602)

One tested through Promethius Lab - all negative blood work

One tested through Enterolab - positive on Gluten sensitivity Stool test (13 units)

One is labeled as Autistic, mood disorder, learning disability, severely constipated, underweight and skin ecemia (sp)

The other is dsylexic and has always had digestive issues (gas).

When they were little both had big tummies and very brightly colored poop

My tests (Promethius Labs)

- Positive for DQ2 but negative for all other blood work

- Been dx with IBS since I was 12 and for the last month and 1/2 - severe morning diaherra

I have my doctor's appt tomorrow and I have this feeling he is going to say the same thing every other doctor has said - no problem.

Do you think that I should just ignore them all and go on a gluten free diet or are they right? It will be extremely difficult with my autistic child to go on diet - all he eats is pasta and bread. Maybe I am just looking for something to correct problems that aren't related. HELP

I forgot to add that I have multiple white matter brain lesions that no one can explain. I have been reading that may also be correlated with celiac.

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About the white matter things and gluten, there are several entries about that in www.pubmed.com

YOu probably have read on all the autistic webpages where they report gluten and casein sensitivity, haven't you? And Dr. Karl Ludwig Reichelt's work?

The urine test is now done at neurozym. (peptide test for casein and gliadin)

http://www.neurology.org/cgi/content/full/56/3/385

http://www.ncbi.nlm.nih.gov/entrez/query.f...om_uid=12585717

http://brain.hastypastry.net/forums/showthread.php?t=2038


gluten-free since may 06 after neg. biopsy symptoms went away and DH symptoms which I had since 03 got gradually better.

daughter officially diagnosed celiac and casein intolerant.

non-DQ2 or DQ8. Maybe DQ1? Updated: Yes, double DQ5

Hypothyroid since 2000, thyroxine first started to work well 06 on a low-carb and gluten-free diet

Lost 20 kg after going gluten-free and weighing 53 kg now. neg. biopsy for DH. Found out afterwards from this forum that it should have been taken during an outbreak but it was taken two weeks after. vitaminD was 57 nmol/l in may08)

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