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Isn't This Frustrating?


Canadian Karen

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Canadian Karen Community Regular
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wowzer Community Regular

I so agree with you about doctors making the connection. The more I read about this disease, the more frustrating it is to me that no doctor found it earlier in my life. It sure would be nice if research could come with an easier and more reliable test to diagnose this disease.

miles2go Contributor

I am one of those people that believes that people of any weight can be malnourished and am also one of those who strives to attain 9, not 5 servings of veggies/fruits per day, so I probably qualify as a food snob, since I look at what people are buying in the grocery store line and it is rare that I'm filled with admiration. Probably not distinguishing myself from this crowd any... ;)

I had an interesting experience last week. During a worker's compensation mediation the lawyer for my employer had a foray with me that went kind of like this:

Lawyer, trying to make case for the employer, that's their job: So, you are allergic to [this, that and the everything].

Me: Yes, I am.

Lawyer: and you claim that your allergies are causing your celiac?

Me: I don't know anything about that.

Lawyer: Well, that's what your doctors are claiming, that your allergies that are exacerbated by being in said workplace are contributing to your [celiac condition].

Me: Well, if that is what they are saying, then it is probably true.

So, I don't want to get into the legalities about it, but it was a little bit of a 180* to hear him say that and it was nice to hear that my team of doctors was pulling for me.

I've read a few posts that indicate that wheat allergy is just the first stage of celiac. I've had sketchy results from testing.

No biopsy, anti-gliadin came back negative, but I've had a hugely positive response to being on a gluten-free diet for 17 months and I'm not going back.

I'm kind of interested in knowing if anyone has medical literature links on the allergy/celiac equation (gad, now that I type it, it becomes a google search) and gee, I just have to give another plug to my medical professionals here in semi-rural Maine.

They are on the ball.

Glad to be gluten-free, in a healthier workplace and doing just fine,

Margaret

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    • trents
    • jenniber
      yes, i told my brother that, but he’s fine with never getting an official diagnosis he says! he doesn’t often take my advice LOL
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    • trents
      @jenniber, it would be pointless for your brother to get tested for celiac disease if he has already gone gluten free. Doing so invalidates the testing. He would need to undergo a "gluten challenge". That is, he would need to go back to consuming generous amounts of gluten (at least 10g daily, or the amount found in about 4-6 slices of wheat-based bread) for several weeks leading up to the day of the blood draw.
    • trents
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