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Diseases Related To Celiac?


robic

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robic Newbie

Hi. I'm a fairly recently diagnosed celiac. I have, in the last 3 months heard of 2 women who suffered both celiacs disease and polycystic ovarian syndrome. I too suffer from both of these conditions. Does anyone know if there has been any research or speculations as to a relationship between the two? Is there any other women out there with both who might have some information. My doctor just scoffed and paid no attention to my query.

Thanks, Izzy

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rsavage Newbie

:o Dear Izzy,

I too have wondered if there might be some kind of connection between Celiac and female problems. Please allow me to explain. My mother (celiac) had uterine cancer. My sister (celiac) had breast cancer. This along with 3 women celiacs for each man sort of makes me wonder what if anything the hormones do to change cells. I have not seen anything about this but you know that some doctors think they are God and haven't a clue about things so they get real upset if you question them. Keep searching, there are good doctors and answers for all of us out there. God bless, Royann

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Guest Terry

Hi- I have been diagnosed with Celiac for close to 7 years now- I have several other diseases that "go along "with celiac. Asthma, Diabetes, IGA deficiency, Interstisial cystis.

Terry :huh:

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tarnalberry Community Regular

Some women have also found a link between celiac and vulvodynia.

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beelzebubble Contributor

i also have pcos. i don't know if there's any sort of connection. but, i know that the incidence of irritable bowell syndrom appears to be higher among pcos'ers, so there might be. if you want, you can send me a pm, and we could chat about it.

c-

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  • 3 weeks later...
slockhart Newbie

I'm yet another celiac with PCO syndrome. I discovered I was a coeliac in 2000 and have had bouts of cysts since then. However, I have only recently discovered that my gluten-free diet wasn't as gluten-free as I thought. No pain since starting the stricter diet but its only been a couple of months.

I have been doing quite a bit of research lately into gluten intolerance and its related diseases and I am sure I came across a connection between the two. However, at the time my focus was on another connection with coeliac disease and so put it aside. If I find it I will let you know. Otherwise, general infertility problems are well documented. There's a book called Dangerous Grains which summarises most of the known or suspected connections of gluten intolerance and other health problems including infertility. Also, a google search can be great and can even lead to the primary literature in the medical journals - perfect ammunition to arm yourself with when next you visit those doctors too lazy to do their own research and/or too arrogant to accept information from patients.

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  • 3 months later...
armymom3 Newbie

Hi. I am a brand new member and I actually got on this board to find out this exact thing...I have type II diabetes and am 34 years old. Unusual as I was diagnosed when I was 32 and most Type II's are age on set as well as over weight. Not my case...I have not had the Celiac blood panel run yet but am going in on Monday. I have actually been using a gluten-free and wheat free diet for about 5 days now (had some slip ups along the way) and my sugars are much more manageable and I feel better. My grandmother had an allergy to gluten and wheat but as far as we know was never technically diagnosed with Celiac. She was also a Type II diabetic (age on- set). Is there anyone out there that is an early diagnosed type II and has Celiac? I found alot of correlation with Type I and Celiac but not so much info on Type II and Celiac. Strange, but I almost hope it is Celiac - atleast I would know what is wrong with me and get on the track of recovery. Also, does anyone out there with Celiac have gallbladder problems?

Thanks

Leslie

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Guest jhmom

Here is a very informative link about Research on Diseases and Disorders Associated with Celiac Disease

I hope this is helpful to each of you looking for answers :D

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kalo Rookie

Hi Leslie. Welcome to the group. I wanted to say that I understand about wanting to have celiac disease. I have a 7 page health history which begins at birth and I was 55 on Thursday. After a diagnosis of chronic fatigue, fibromyalgia, low thyroid/low adrenal, IBS, and sinus/allergy and still not well it would be SUCH A RELIEF. Keep us posted. My blood test was negative which doesn't mean anything. I'm awaiting the results from a simple stool test from enterolabs. A much more accurate test. Best wishes. Hugs, Carol B

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    • knitty kitty
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    • trents
      Welcome to the forum community, @ekelsay! Yes, your tTG-IGA score is strongly positive for celiac disease. There are other antibody tests that can be run when diagnosing celiac disease but the tTG-IGA is the most popular with physicians because it combines good sensitivity with good specificity, and it is a relatively inexpensive test to perform. The onset of celiac disease can happen at any stage of life and the size of the score is not necessarily an indicator of the progress of the disease. It is likely that you you experienced onset well before you became aware of symptoms. It often takes 10 years or more to get a diagnosis of celiac disease after the first appearance of symptoms. In my case, the first indicator was mildly elevated liver enzymes that resulted in a rejection of my blood donation by the Red Cross at age 37. There was no GI discomfort at that point, at least none that I noticed. Over time, other lab values began to get out of norm, including decreased iron levels. My PCP was at a complete loss to explain any of this. I finally scheduled an appointment with a GI doc because the liver enzymes concerned me and he tested me right away for celiac disease. I was positive and within three months of gluten free eating my liver enzymes were back to normal. That took 13 years since the rejection of my blood donation by the Red Cross. And my story is typical. Toward the end of that period I had developed some occasional diarrhea and oily stool but no major GI distress. Many celiacs do not have classic GI symptoms and are "silent" celiacs. There are around 200 symptoms that have been associated with celiac disease and many or most of them do not involve conscious GI distress. Via an autoimmune process, gluten ingestion triggers inflammation in the villous lining of the small bowel which damages it over time and inhibits the ability of this organ to absorb the vitamins and minerals in the food we ingest. So, that explains why those with celiac disease often suffer iron deficiency anemia, osteoporosis and a host of other vitamin and mineral deficiency related medical issues. The villous lining of the small bowel is where essentially all of our nutrition is absorbed. So, yes, anemia is one of the classic symptoms of celiac disease. One very important thing you need to be aware of is that your PCP may refer you to a GI doc for an endoscopy/biopsy of the small bowel lining to confirm the results of the blood antibody testing. So, you must not begin gluten free eating until that is done or at least you know they are going to diagnose you with celiac disease without it. If you start gluten free eating now there will be healing in the villous lining that will begin to take place which may compromise the results of the biopsy.
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