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kimber

Could Use Some Advice..haven't Been On In A While

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Hi everyone

I haven't posted on this board in some time, but come here often to read the posts, get recipes etc

My ds, zachary, will be 4 on Halloween, and was diagnosed with reflux 2 weeks after birth

At 6 mnth I switched from b/f to alimentum and it was a HUGE mistake...once we strarted solids things only got worse

Zach was dairy/soy free but out of desperation and after keeping a food journal, I decided to try him on a gluten-free diet and within a few days responded with less tantrums, more energy etc...I was thrilled

2 weeks later, I don't know what happened, but he completely went downhill

I then realized he might be reacting to corn and eliminated that as well....more problems until I read about fructose intolerance and tried him on an a everything free, low fructose diet

Zach has been to several allergists and has never tested + to anything...we have been to 7-8 GI's and he has had b/w for celiac's etc and all has been neg...GI's pretty much blew me off

Zach is small for his age, but thankfully he is gaining...he is roughly 31 pounds

For the past few days he is eating basic white rice products, chicken and some pears...I don't know what direction to turn?

If I try gluten, even oats...he reacts...dairy/soy...he reacts?

If he has banana...grapes...more reactions

Is anyone in the same boat?

Is it possible to have a gluten and fructose intolerance....

I am very anxious and stressed out that I have been trying to figure this out for almost 4 yrs

Any advice GREATLY appreciated!

Hope all is well with everyone else

Kim

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Celiac.com Sponsor (A8):

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Kim,

You may not like what I have to say, but here goes.....

There is a reason your son has so many intolerances. The best way to try and figure this out is through alternative testing.

From what I have learned heavy metals, parasites, pesticides, insecticides, fungal, mold or lyme may all contribute to intolerances. Something else is definately going on with him, not just celiac/gluten intolerance.

I don't know where you live but if you can find someone who practices ART/ASYRA that would be your best bet. I've just started with that for my daughter at this point. I live in Washington state so if you are in Western Washington I can give you the name of who I see.....just pm me.

Different foods have different compounds that make them what they are. He could be reacting to a common compound that's in alot of different foods......or more than one compound.


Andrea

Enterolab positive results only June 06:
Me HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0301; Serologic equivalent: HLA-DQ 2,3 (subtype 2, 7)
Husband HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0302; Serologic equivalent: HLA-DQ 2,3 (subtype 2,8)



The whole family has been soy free since February, gluten free since June 2006.

The whole family went back to a gluten diet October 2011.  We never had official testing done and I decided to give gluten a go again.  At this point I've decided to work on making some gluten free things again, though healthwise everyone seems to be fine.  The decision to add gluten back in was also made based on other things I'd read about the 2nd sequence of genes.  It is my belief that we had a gluten intolerance, but thanks to things I've learned here, I know more what to keep an eye on.  If you have a confirmed case of celiac, please don't go back to gluten, it's a lifelong lifestyle change.

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Thanks so much...I am open to any suggestion

I live in Norther NJ

Good luck on your end, Kim

Kim,

You may not like what I have to say, but here goes.....

There is a reason your son has so many intolerances. The best way to try and figure this out is through alternative testing.

From what I have learned heavy metals, parasites, pesticides, insecticides, fungal, mold or lyme may all contribute to intolerances. Something else is definately going on with him, not just celiac/gluten intolerance.

I don't know where you live but if you can find someone who practices ART/ASYRA that would be your best bet. I've just started with that for my daughter at this point. I live in Washington state so if you are in Western Washington I can give you the name of who I see.....just pm me.

Different foods have different compounds that make them what they are. He could be reacting to a common compound that's in alot of different foods......or more than one compound.

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