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i think we need to start a new group called

I'm Not A Hypochondriac But I Swear I Have A Gluten Allergy Of Some Kind

in short "INAHBISIHAGAOSK".

Anyone with me?!

Also Can people post if they have a great doctor and where they are located please?! i need one for the NYC area...any in Astoria?!


all my life i have had an oat allergy.

gluten-free 5/2005.

active yeast free since... don't remember.

refined sugar free 5/2010.

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I'd be a member of that group.

From what I've read, there are alot of digestive disorders - particularly those that involve frequent diarrhea - that can damage the intestinal villi, making digestion of gluten (among other things) difficult. There's a spectrum of sensitivity to gluten not just a black/white celiac or non-celiac diagnosis. That's what makes this so difficult for those of us that are suffering and looking for answers, IMHO.

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i think we need to start a new group called

I'm Not A Hypochondriac But I Swear I Have A Gluten Allergy Of Some Kind

in short "INAHBISIHAGAOSK".

Anyone with me?!

Also Can people post if they have a great doctor and where they are located please?! i need one for the NYC area...any in Astoria?!

LOL sounds good, especially with my history. I do not know of any specific doctors but as someone who was blood negative and severely damaged for years I sure can identify with that groups name. You may want to see if you can find a good allergist who can guide you through an elimination diet and offically record the results. That was how I was finally diagnosed. You could also consider Enterolab testing, I have heard many good things about them.


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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