Jump to content
  • You are not alone. Join Celiac.com for trusted gluten-free answers and forum support.



  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Uh Oh.........


Gentleheart

Recommended Posts

Gentleheart Enthusiast

*


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator

What are your other food intolerances?

Gentleheart Enthusiast

*

Ursa Major Collaborator

Well, I was thinking dairy and/or soy. Since you are avoiding those already, that's not it.

There is NO POINT in doing a gluten challenge and endoscopy. Nothing will be gained by that, and much can be lost.

But an endoscopy is still a good idea, to see what is going on. You may have refractory sprue. An endoscopy may still show blunted or nonexistent villi, which would confirm it. I hope that I am wrong, but it is unfortunately a very real possibility.

In the meantime, you may want to try eliminating more foods, especially nightshades, to see if it makes a difference.

I am sorry I can't be more helpful than that.

Fiddle-Faddle Community Regular

ONe possibility: our supermarket put out a list of gluten-free flours--and Bob's Red Mill Spelt flour was on the list! Spelt (as you probably know) is WHEAT, and therefore major gluten.

ALso, if you are on any meds, maybe they might either contain gluten or else possibly cause diarrhea and therefore leaky gut, and that might be your fat absorption problem? Or perhaps you are hyperthyroid? That could also cause diarrhea, and has a high concurrence rate among celiacs.

Bloodwork might be useful here--see how many antibodies you are producing. If your anti-gluten antibodies are low, but fat absorbtion is also low, then gluten might not be the trigger here, right? It might be something else.

ravenwoodglass Mentor

What were the results of the rest of the enterolab testing?

I agree that you need to check all meds you are on. One thing I would check is if any of them have side effects that could be causing your symptoms. If you google the meds one by one and look for the companies statements on the drugs that could be an eyeopener. Also are any of them generics? Generics can change binders at will and there are no regualtions requiring them to even let us know that wheat starch or gluten ingredients are included.

Also do you have pets and do you feed them gluten containing foods? Do you do a lot of crafts? Have you been doing any home improvement projects? Those 3 things alone kept me symptomatic for a long time till I realized I needed to check those items.

Gentleheart Enthusiast

*


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

    2. - HelloFlowersGoodbyeFlour replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

    3. - HelloFlowersGoodbyeFlour replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

    4. - cristiana replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

    5. - trents replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,125
    • Most Online (within 30 mins)
      10,442

    psasso76
    Newest Member
    psasso76
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • cristiana
      Definitely worth speaking to your gastroenterologist about this. My own told me that by using Gaviscon a barrier forms over the contents of the stomach and stops gas and acid irritating the throat.  In fact, he said to me that because I found relief using Gaviscon that was a very clear indicator that reflux was the cause of that particular issue.   A wedge pillow will really help with this - or raising the top bed legs with bricks.
    • HelloFlowersGoodbyeFlour
      I did get the pneumonia vaccine about 4 years ago. I had this amazing allergist who did all those vitamin deficiencies test and told to get that vaccine. Unfortunately she retired.  I haven’t been to an allergist in a few years,  I’m not sure what my levels are now. I did have a pulmonologist who wasn’t concern and said I seemed fine to him that I was young etc. But yes I think I should at the very least get a different opinion. Thank you for your reply 
    • HelloFlowersGoodbyeFlour
      Yes I do have acid reflux. I’m not on anything for it at the moment. I sometimes wonder if that’s what it could be because I get heart burn every night. I may revisit my gastrointestinal doctor again. Thanks for the reply  
    • cristiana
      Hi @HelloFlowersGoodbyeFlour I wonder if you suffer from reflux, as if you do, you may find it could also be irritating your airways.  I shall explain: I have to use a blue inhaler from time to time, and it seems to be related to reflux.  Never had any trouble before my coeliac diagnosis, the reflux seemed to be something that developed following a holiday to France in 2019, where I had been exposed to gluten.    The reflux continued into the autumn and winter, my throat itched to begin with, particularly after meals, but it then that feeling of irritation seemed to spread to my lungs.  I even found it difficult to breathe on occasion. What stopped it in its tracks was using a wedge pillow at night, following a reflux diet (you can find them online), not eating 2-4 hours before bed and also having a dose of Gaviscon Advanced at night, which forms a barrier so that acid/food can't go back up your esophagus.  The throat irritation faded, and then I found it easier to breathe again. Just mentioning in case it could be a contributing factor.
    • trents
      Since initially getting your D checked a few years ago, has it since rebounded to normal levels? Sounds like at some point you got it checked again.
×
×
  • Create New...