Jump to content
  • Sign Up
  • Join Our Community!

    Do you have questions about celiac disease or the gluten-free diet?

jm9578

What Is A Normal Reaction?

Rate this topic

Recommended Posts

hey, i'm posting here because i don't know where else to turn and any response or help you could give me would be great. I have been on a gluten free diet for four months since a blood test revealed that I was a celiac in August. Everything is going well and I feel much better than I ever have. However, it has happened a few times now that I have accidentally ingested gluten. In the beginning of the diet, I would cheat occasionally and feel nothing but a short span of stomach discomfort or pain an hour or so after eating, say, a cookie or a bite of pizza. Now, however, I am at the point where if i ingest gluten, even what seems like an extremely small amount (sometimes due to cross contamination), I spend the entire next day weak and in pain. My head hurts constantly and from the moment i wake up, I vomit until all trace of food is out of my system. During this time I am unable to even drink water, as it will cause me to throw up again immediately.

I know that reactions to gluten are never pleasant for celiacs, but I'm worried because I feel so out of control of my body. I was wondering if anyone has a similar reaction, or if this sounds a little drastic to you. And does anyone know anything that I could do to make myself feel better during this time? The last time I was sick I think I threw up at least 25 times throughout the day and I am in the middle of another spell today. Anything that would contribute to helping this pass or further understanding it would be really appreciated. Thank you so much,

Jessica

Share this post


Link to post
Share on other sites

Hi and welcome to the board :)

Yes, some of us do become much more sensitive to the tiniest amounts of gluten the longer we're gluten-free. It dosen't seem fair, but it happens all too often.

It happened to me, too. I felt much better at first, but as I was learning the diet and still making mistakes with things like cross contamination and having gluten in my personal care products, I would get very ill for a week or more. I would get urgent D, nausea, anxiety, extreme fatigue and terrible brain fog that would hang on for up to a month.

It does get better--you will have more good days than bad, and your system will heal. :)

It's important to stay as close to 100% gluten-free as possible.

Share this post


Link to post
Share on other sites

I was about to post a similia topic but then I found this thred. I need some help and advice too regardin to being glutened by poss cc. On the diet for over a month and was being very careful, I was feeling great. My running to the loo with 'D" and wind had stoped. I had much more energy too. With this time of year i prob have been drinking alcohol and eating out more (though stressingto restaurants that my food was to be def gluten free) However it has sucked over xmas as something has flared up and I'm not sure why. My symptons are the urge to go to the loo but only passing wind with mucous. I'm very tired and my mind is a bit scattery. Is this a sign of cros contamination / being glutened? If so, what should i do/comsume to get me feeling back to a more stable and lively self> I hate feeling so drainned again. help!!! :)

Share this post


Link to post
Share on other sites

There is no certainty with my own reactoins:

I might eat gluten and have no noticeable reaction at all.

I've eaten a LOT of gluten at one meal and had nausea/cramps/D within half an hour.

I've eaten some gluten and been very nauseous 3 hours later. Sometimes that led to vomiting.

I've had gluten where the digestive reaction occurred a day or two later.

I've had gluten with a next-day migraine as the result.

I've had gluten where I lost all energy and felt spaced out.

I've had gluten whre I had two days of terrible stomach pain.

It's never the same twice. This is just me, but sometimes a clear-cut reaction is certainly easier to manage. When reactions aren't immediate, when they are always different, it's all too easy to attribute it to other things.....

I now know better, but it has taken 2 years to come to terms with it all. :(

Share this post


Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.


  • Top Posters +

  • Upcoming Events

    • March 24, 2019 Until March 27, 2019
      0  
      NEW ORLEANS GOURMET GLUTEN-FREE mini GETAWAY    March 24 ~ 27, 2019   We have arranged a fun and Gluten-free food filled mini in the city known for it's food and fun.  We have arranged to eat many of the famous dishes that aren't usually Gluten-free at a few of the World Renown restaurants.   Staying at the Royal Sonesta Hotel on Bourbon Street in the center of the French Quarter, you'll be able to enjoy the ambiance of the city at all hours.   Our itinerary will include a Luxury Coach tour of the city and surrounding area - Admission to The National World War II Museum, including the Tom Hanks" 4D film "Beyond All Boundaries" - an exciting Airboat ride and tour through the Bayou.      This it the 3rd time we have visited New Orleans and it has always been well attended, so join us even if you've been there before.  Check out our website for the complete itinerary and cost.    Due to contractual obligations we must have 20 participants by October 31, 2018 to make this a go.      If you have any questions just give us a call at 410-939-3218.  Bob & Ruth info@bobandruths.com (410) 939-3218
    • March 27, 2019 04:00 PM Until 08:00 AM
      0  
       
       
       
      Celiac Emotional Healing Support Group
       
       
       
      Again you are invited to join Johnny Patout, LCSW for Baton Rouge's first emotional healing support group meeting to assist those living with celiac disease manage the emotional challenges so many of us face. Most often the emotional disturbances include depression, disinterest in normal activities, insomnia, grief, mood changes, anxiety, inability to concentrate, extreme concern about managing a gluten-free lifestyle and other emotional and behavioral challenges.
       
      The professionals at Jamestown Avenue Counseling Center created the emotional healing support group to give us a safe place to begin to process our emotions and support each other as we heal emotionally while managing celiac disease and the resulting autoimmune disorders.
       
      The emotional healing support group meets every Thursday, 6:00-7:00pm, at the Jamestown Avenue Counseling Center of Baton Rouge. Jamestown Avenue Counseling Center is located at 4637 Jamestown Avenue, Baton Rouge, Suite B-1. Suite B-1 is upstairs.
       
      The support group is free and open everyone managing celiac disease. For more information: emotionalhealingforceliacs@hotmail.com
    • March 30, 2019 Until March 31, 2019
      0  
      Nourished Festival is a family-friendly event with 10 locations across the US. Attendees will be able to sample food, health and beauty products, meet with companies, learn about the most current food lifestyles, receive coupons and attend educational sessions with industry experts. 
      Nourished Festival, managed by The Nourished Group and presented by Enjoy Life Foods, is the largest gluten-free, allergy-friendly and specialty diet event in the US, with 10 locations including.
      ABOUT THE NOURISHED FESTIVALS
      Managed by The Nourished Group, formerly The Gluten Free Media Group, The Nourished Festivals are the largest and fastest growing special diet consumer events in the United States. Started in 2007, the events have expanded from one to ten cities throughout the country. The festivals cater to anyone looking to lead a healthier lifestyle or those who follow a specialty diet due to autoimmune conditions, food sensitivities, allergies or intolerances. Offerings including Paleo, Keto, Plant-Based, Gluten-Free, Allergen-Friendly and Nut-Free products. The events provide the opportunity for attendees to sample and purchase new products, receive coupons, meet with brand ambassadors and attend educational classes with industry experts. For more information, visit http://www.nourishedfestival.com 
       
It is not a rash, but hives and swelling.  Some doctors think it is a separate autoimmune disorder or that it piggybacks on to others.  It is more commonly associated with autoimmune thyroiditis.   My last bout lasted for six months.  They appeared (from my head to my soles of my feet) every afternoon around 4:00 pm and resolved by morning.  Oddly, they start with abdominal pain.  That is my first clue and next an itchy head.  I was on a cocktail of antihistamines and attempted a low histam
  • Blog Entries

  • ×
    ×
    • Create New...