Dq2 Gene For Sure

[BemLmom3]

my 4yr old daughter is the one that is 27lbs and already on the diet before testing. I opted not to test(other than diet elimination) at this time. She is doing VERY well but I am still learning and when she is glutened, even by the smallest amount, she and I suffer big time! She will complain of tummy hurting and her behavior/rages are awful. Anyway the GI decided to test her for the DQ2 gene since we could not do the biopsy at this time. She carries the gene. The nurse calls yesterday and says it is highly likely she has celiac disease. Of course they can not confirm it without the biopsy. I think I have my confirmation, I really was hoping she did not carry the gene so that maybe there was hope of her *growing* out of the intolerance. She really is soooo sensitive, she just has to look at gluten....

I have replaced all her kitchen stuff, changed toothpaste and soaps. I bought sippy cups yesterday, she was glutened by her brother's WASHED sippy cup.... Where else is hidden gluten? Any tips would be great! Also, what percentage of people have DQ2 but not celiac disease? Is that written anywhere? Thanks!

[gfgypsyqueen]

My two year old had many symptoms of Celiacs but it took forever to force the drs to do a biopsy. It came back inconclusive. They also tested her for the gene's then. She has DQ2. After much denial and continuing issues, she was made gluten-free/CF in August. She is much better. We also do not have a confirmed biopsy. But she has the gene and reacts to gluten-free. Our family has many food allergies. I would not let your Dr try to put her back on gluten just for a confirmation. You already have it. She has immediate reactions to gluten. That is all you need. My Dr finally agreed she is a celiac when my daughter started to grow and gain weight and has a serious reaction to dairy and gluten.

As for your sippy cup issue, can you color code the kids drink cups? Or maybe son gets sippy cups and daughter gets straw cups? Depending on what sippy cups you are using, they are SOOOO hard to get 100% clean. BTW, I only know of a few drinks that would contain gluten too...hmm. Maybe something else got her? Or make sure all drinks in house are gluten free.

My youngest and I are also extremely sensitive. I react to contact, so I must have an allergy too. If your daughter keeps having reactions, go back and recheck everything, maybe something has changed.

BTW, my oldest (5 yrs) was causing so many problems leaving gluten and dairy around where her sister could grab it or be contaminated by it (several incidents) that I finally removed all dairy from the house (already nut free) and established strict rules. Food only eaten at the table and assigned seats really helped. No food in bedrooms. Dishes are put into sink immediately and kids wash hands and faces before and after eating. Strict, but it keeps everyone from getting sick. Certain pots and utensils are only used for gluten meals like pasta. All that made a world of difference for us.

Hope that helped some.

[BemLmom3]

My two year old had many symptoms of Celiacs but it took forever to force the drs to do a biopsy. It came back inconclusive. They also tested her for the gene's then. She has DQ2. After much denial and continuing issues, she was made gluten-free/CF in August. She is much better. We also do not have a confirmed biopsy. But she has the gene and reacts to gluten-free. Our family has many food allergies. I would not let your Dr try to put her back on gluten just for a confirmation. You already have it. She has immediate reactions to gluten. That is all you need. My Dr finally agreed she is a celiac when my daughter started to grow and gain weight and has a serious reaction to dairy and gluten.

As for your sippy cup issue, can you color code the kids drink cups? Or maybe son gets sippy cups and daughter gets straw cups? Depending on what sippy cups you are using, they are SOOOO hard to get 100% clean. BTW, I only know of a few drinks that would contain gluten too...hmm. Maybe something else got her? Or make sure all drinks in house are gluten free.

My youngest and I are also extremely sensitive. I react to contact, so I must have an allergy too. If your daughter keeps having reactions, go back and recheck everything, maybe something has changed.

BTW, my oldest (5 yrs) was causing so many problems leaving gluten and dairy around where her sister could grab it or be contaminated by it (several incidents) that I finally removed all dairy from the house (already nut free) and established strict rules. Food only eaten at the table and assigned seats really helped. No food in bedrooms. Dishes are put into sink immediately and kids wash hands and faces before and after eating. Strict, but it keeps everyone from getting sick. Certain pots and utensils are only used for gluten meals like pasta. All that made a world of difference for us.

Hope that helped some.

It did help lots, thanks!!! I think what happens with the cup is my son eats his gluten, then takes a drink and back washes into the cup and those tiny holes...I bought her some pink cups, those are hers

Also, the rest of us are not gluten-free/CF at this time, only she is(I know it would be easier) but what about washing dishes in the dishwasher together? If her bowl has some scratches will it catch the gluten being washed from other dishes?

[gfgypsyqueen]

My house is not strictly gluten-free either. We make it work. Washing the dishes kills me because I have a contact reaction to gluten.

oldest child has severe nut allergy. Therefore no nuts allowed in the house. She does not eat anything made on shared equipment.

2 yr old has celiacs. She is gluten-free/CF, shellfish free, and nut free (not allergy). She reacts to traces of dairy.

Here is how I handle it.

I purchase no food made on shred equipment with nuts if I have any option to avoid it. So the celiacs occassionally eat foods that are made on shared equipment with nuts.

We still have cheese that I use on some of my foods. Plus I buy non-dairy cheese. The only butter that it used is gluten-free/CF.

All foods are eaten at the table only. Assigned spots for kids. Keeps cross-contamination to a minimum.

There is a strict no sharing rule when it comes to foods. When foods have to be cut for the kids, it is cut using their knife and fork, not shared knife. I won't even share a drink with my 7 yr old due to back wash issues. So gross!! You will be amazed at how fast the kids will get this idea that a food can hurt them or their sister. When they can't have something the baby hears "It will hurt your tummy." The older child gets to hear exactly what the problem is with that food. (Shared equipment, contains nuts, contaminated, etc. she is learning to read labels for nuts.)

I have some plastic kids plates that are scarred up and they have recently been thrown out. None of us have ever reacted to plates being washed in the dishwasher. But I scrub all the food off the plates before they go in the dishwasher. Double duty I know, but it works for me. We go through lots of silverware and cutting boards during a single day. Mainly due to no double dipping and cross contaminated surfaces.

Also, your older child might like straws. We used tons of dispossible straws. I just never could get the parts of the sippy cups clean enough.

Most all meals are gluten-free/CF especially dinner. I try to buy as many items that I can that are safe for everyone. All foods are marked gluten-free, MF, NF to make it easier for them to help themselves and for the sitter.

Feel free to PM me if I can help at all.