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scottish

Visiting America

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Hi , I'm a celiac visiting America in October and wondered which is the best grocery guide to purchase to make my stay there a bit easier. I was there last October and found grocery shopping quite difficult as gluten is not mentioned on labels.

Any help about this or restaurant recommendations would be great. I'm staying in Orlando.

Thanks

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Are you staying at Disney World? Or in other hotel or someone's home?

Disney has gluten-free restaurants in their hotels (so I've heard).


Husband has Celiac Disease and

Husband misdiagnosed for 27 yrs -

The misdiagnosis was: IBS or colitis

Mis-diagnosed from 1977 to 2003 by various gastros including one of the largest,

most prestigious medical groups in northern NJ which constantly advertises themselves as

being the "best." This GI told him it was "all in his head."

Serious Depressive state ensued

Finally Diagnosed with celiac disease in 2003

Other food sensitivities: almost all fruits, vegetables, spices, eggs, nuts, yeast, fried foods, roughage, soy.

Needs to gain back at least 25 lbs. of the 40 lbs pounds he lost - lost a great amout of body fat and muscle

Developed neuropathy in 2005

Now has lymphadema 2006It is my opinion that his subsequent disorders could have been avoided had he been diagnosed sooner by any of the dozen or so doctors he saw between 1977 to 2003

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Are you staying at Disney World? Or in other hotel or someone's home?

Disney has gluten-free restaurants in their hotels (so I've heard).

I am staying in a villa , have you used any of the gluten free grocery guides whch are available? Last time I was in Orlando I managed to eat out without too many problems but grocery shopping was a bit moe difficult as products weren't labelled showing if they containd gluten or not.

Thanks

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Below is the information from the Wholefoods website for the store in the Orlando area:

http://www.wholefoodsmarket.com/stores/winterpark/index.html

Whole Foods has a good selection of gluten free food. My local WholeFoods will print out a list of gluten free foods in the store if I ask at the Customer Service desk. I do not live in Florida so I would suggest e-mail WholeFoods and ask if that service is available at this specific store. Also, "Gluten Free" shelf tags are below many of the gluten free foods.

Have a super trip.


Phyllis

Gluten Free - 30 years

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Hi , I'm a celiac visiting America in October and wondered which is the best grocery guide to purchase to make my stay there a bit easier. I was there last October and found grocery shopping quite difficult as gluten is not mentioned on labels.

Any help about this or restaurant recommendations would be great. I'm staying in Orlando.

Thanks

Hi,

I just answered another post of yours. I actually started out by going to the Universal Studios website for information and e-mailing the two restaurants I mentioned, NBA City and Margaritaville. Both places e-mailed me back and we started making arrangements that way.

I don't know your vacation plans, but City Walk is a large area outside the Universal amusement parks. City Walk has lots of shops, restaurants, movie theaters, live bands in the evenings, etc.


Bev

Mom of Garrett - Mizzou freshman; diagnosed Jan 2005

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