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bakingbarb

Why Am I Hurting

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I have no idea what is going on. I am not getting cc'd so that isn't the issue here, when that happens it is a different pain and only temporary while this is almost daily. When I get cc'd my shoulder joints hurt in a different way.

My knees ache, my wrists ache, my shoulders ache and sometimes my hands, these hurt sometimes but more often then not. My lower back always aches and it goes into the hips and makes it hard to get up in the morning unless I use the heating pad. All of these feel better if I use the heating pad, I don't know if that means anything. As the day goes on I am not as sore and am able to do things but I don't do anything extra. I want to walk but I am afraid it is going to hurt more but walking used to always make me feel better.

My Dr isn't going to be any help on this one unless I go to her and say I think this or this is happening. Its one of those things where I have limited insurance and cannot go find a better Dr. She is ok but knows nothing about the Celiac, although she is fine with me having it, if that makes any sense!


~Barb

Gluten Free October 18, 2007

YIPPEE for Gluten free

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It sounds like another intolerance to me. I feel exactly like that when eating rice, eggs, dairy or nightshades (all lectin foods). All my joints and my back will ache terribly by the next day when eating those (plus gluten, of course). And my knees and ankles buckle on the stairs and give out on me.


I am a German citizen, married to a Canadian 29 years, four daughters, one son, seven granddaughters and four grandsons, with one more grandchild on the way in July 2009.

Intolerant to all lectins (including gluten), nightshades (potatoes, tomatoes, peppers, eggplant) and salicylates.

Asperger Syndrome, Tourette Syndrome, Addison's disease (adrenal insufficiency), hypothyroidism, fatigue syndrome, asthma

------------------------------------------------------------------------------------------------------------------

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It sounds like another intolerance to me. I feel exactly like that when eating rice, eggs, dairy or nightshades (all lectin foods). All my joints and my back will ache terribly by the next day when eating those (plus gluten, of course). And my knees and ankles buckle on the stairs and give out on me.

That would figure, potatoes are my go to food.


~Barb

Gluten Free October 18, 2007

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That would figure, potatoes are my go to food.

I have to agree with Ursula. Most likely, the pain you are experiencing is coming from another food intolerance. I'd seriously look at nightshades, dairy, eggs and even corn as a culprit.

Have you ever had problems with psoriasis? Many times, psoriasis can turn into psoriatic arthritis and cause all sorts of swelling and pain. A friend of mine spent thousands of dollars getting treated for it conventionally only to find out that it was being triggered by gluten, dairy, corn and all of the nightshades. If she gets even the slightest bit of cc, the joint pain comes back. Otherwise, she is doing great and her latest MRI shows the disease is in remission (an "impossibility" according to her rheumatologist). ;)


Vicky

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I would agree with the others. I had a problem, for example, with nightshades for a while and it gave the same pain you describe. A really hot shower used to help a bit for me but dropping the nightshades really did the most good. After I was healed up, about 6 months, or so I was able to add them back in with no issues. That may or may not be the case for you, I just wanted to give you a bit of hope that all the increasing restrictions that eliminating stuff gives us isn't always forever. I hope you can figure out what is getting you, sometimes if you can find a good old school allergist or naturopath they can be helpful in setting up an elimination diet with you.


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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Guest digmom1014

I think that is what is happening to me. My muscles ache a lot especially my legs. I am already dairy and egg free-I am still waiting to hit the 6 mo. gluten-free mark. So, now I'll concentrate on corn and nightshades. Can someone please list the nightshades I should avoid?

Thanks

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I am also in pain. I found the elimination diet overwhelming. I am trying to eliminate one thing at a time, but then succumb. Pizza use to be my favorite food. I can't have gluten or dairy...wouldn't be suprised if tomotoes came next(please, please, please no!!!)

My insurance won't cover anything until I reach a high deductable. So I am trying to figure out the food thing. If it isn't better from that then I am going in for additional testing.

ravenwoodglass, That is hopeful knowing you could bring some things back into your diet.


gluten . . . Kiss my grits!

pork and beef free- 1994

wheat free or wheat light- 2003

gluten free- January 2008

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I think that is what is happening to me. My muscles ache a lot especially my legs. I am already dairy and egg free-I am still waiting to hit the 6 mo. gluten-free mark. So, now I'll concentrate on corn and nightshades. Can someone please list the nightshades I should avoid?

Thanks

The nightshade foods are potatoes, tomatoes, peppers, eggplant. Tobacco is a nightshade as well. If you avoid nightshades, remember that paprika is made from a pepper and is a no-no, and chili peppers are out, too. ALL peppers are included in that.

My muscle aches were caused by foods high in salicylates, and the joint and backpain, as well as migraines and gastrointestinal problems were caused by lectins.

Here is a link to find out about salicylates: http://www.foodcanmakeyouill.co.uk/sali/salfood.htm

And wouldn't you know that nightshades are high in both lectins AND salicylates. Plus they contain oxalates, which are bad for people with arthritis and can cause pain. A triple whammy.


I am a German citizen, married to a Canadian 29 years, four daughters, one son, seven granddaughters and four grandsons, with one more grandchild on the way in July 2009.

Intolerant to all lectins (including gluten), nightshades (potatoes, tomatoes, peppers, eggplant) and salicylates.

Asperger Syndrome, Tourette Syndrome, Addison's disease (adrenal insufficiency), hypothyroidism, fatigue syndrome, asthma

------------------------------------------------------------------------------------------------------------------

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Could it be cabbage? It is the food that I have been questioning lately because when I eat it many times it is coleslaw or corned beef and cabbage. Lets see, every time I have eaten it I have had the big d the next day. I have eaten it in salads a lot including coleslaw and an Asian salad plus cooked with corned beef. So it could be the spuds but I for some reason thought it was the cabbage.

I think I will not eat either for a few days and then try the cabbage and make sure I don't have any spuds. Then I will try this with the spuds and not the cabbage.

I eat spuds much more often then cabbage which is why I was thinking the cabbage, this more intense pain isn't daily although the mild ache is becoming daily.

Ugh the more I try and figure this out the harder it is lol. Ok eliminating for one week then adding back in. Since the reaction is intense in the morning I think I will know as soon as I eat one of them and not the other (hope that makes sense).

Oh and there has not been a day in my entire life that my legs didn't ache BUT this is not the same, this is my knees,my wrists etc. My leg ache has not changed one bit with or without gluten so......I don't know what that means.


~Barb

Gluten Free October 18, 2007

YIPPEE for Gluten free

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Ok eliminating for one week then adding back in.

This is a good plan but eliminate for at least 2 weeks and when you add the cabbage back in make it JUST the cabbage. Nothing on it. Boil it or eat it raw but eat just that and no other suspect items with it at the meal. Otherwise you don't know if you are reacting to the cabbage or to the dressing or whatever it is in. That should be done with anything you challenge. It should be eaten in 'pure' form.

If you do a true elimination diet you would start with 5 or 6 tolerated foods. You would eat those exclusively with no spices and beverages other than water until you are asymptomatic and then add foods back in one at a time to watch for a reaction. You would add the suspect food in three times a day for a week and then if no reaction you would add that item back into your diet and then add another one. It is a time consuming process but can be very insightful.


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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I would flip if I had to do the true elimination diet. I don't think it is the spuds, I had some yesterday and am not in the pain like I was on Sunday and Monday. I had cabbage on Saturday and Sunday in the form of coleslaw. Of course I could consider mayo and carrots and celery and and onions and vinegar lol but I really think it is the cabbage. I bet if I ate some today it would be back tomorrow morning. Actually other then the mayo I had all those foods yesterday, we had scalloped potatoes and cucumber/tomato salad which is dressed with vinegar/oil.

Sometimes I think we just know...

I am going to not eat it for awhile and then add it back in when I want to feel the pain again. Oh ya no that isn't right! Maybe I just won't eat it again. I never would have thought cabbage could be a problem, I mean its so good for us.


~Barb

Gluten Free October 18, 2007

YIPPEE for Gluten free

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I never would have thought cabbage could be a problem, I mean its so good for us.

Yeah, right. Like WHOLE WHEAT? :lol::lol::lol::lol::lol::ph34r:


Sandi ~ learning to live in a world obsessed and infested with wheat.

"You don't need a weatherman to know which way the wind blows" probably was not referring to us . . .

"For the love of money gluten is a root of all sorts of evil, and some by longing for it have wandered away from the faith and pierced themselves with many griefs." (apologies to 1 Timothy 6:10 (NASB)

The person we most dislike is still a soul for whom Christ died. (David Jeremiah)

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