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Possible Celiac's I'm A Newbie


theo1212

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theo1212 Newbie

I'm new to this and I don't know where to turn so I found this site. I have been having gastro intestinal problems since November of 07. This came about shortly after I was diagnosed with Hashimotos Thyroiditis. It is an auto immune disease of the thyroid.

Well after going to my Gastro Doc he recommended that I have a Colonoscopy and Endoscopy which I did. No tumors or pollups. There was however, inflammation in the small intestine and colon. They took bi-opsies of small intestine, colon and stomach and showed inflammation. Every time I eat I feel horrible shortly after. Terrible pains in the lower righ quadrant that sometimes radiate around my back where your kidneys are. I also have terrible fatigue and muscle cramps and joint pain.

I went to the doctors yesterday for blood tests for Celiac Sprue but won't know for a few days if that is what it is. I just can't believe that eating gluten can make you feel that awful. I haven't been the same since this all started. I can't work feeling like this. It's almost unbearable at times. Just feels like my guts are rotting from the inside out. I also had a CT Scan of my abdomen and pelvis and they said everything looked fine there.

I'm just asking you guys to see if you think that this could be Celiac's seeing all the tests I have had done and that it is an auto immune disorder just like my thyroid problem.


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ShayFL Enthusiast

Yes it can. And many celiacs also have auto-immune thyroid issues. Hang tight and we are here to help.

pele Rookie

Gluten could be your problem. Please be aware that blood testing is NOT always right. False negatives are very, very common. And many people are gluten-intolerant but do not have Celiac Disease, therefore do not test positive on blood tests. You may want to go on a strict gluten-free diet to see if you feel better. You may notice a difference right away.

Did your doctor biopsy your small intestine during the endoscopy to look for damage to the villi?

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    • Aretaeus Cappadocia
      I'm not saying this is what you have, but your description reminds me of Morgellons, which are not very well understood. Here is a review from a reputable source. If it seems similar to your experience, you could raise this question with your Dr.  https://my.clevelandclinic.org/health/diseases/morgellons-disease
    • nancydrewandtheceliacclue
      Hi Trent, no dairy. Other than good quality butter. I have been lactose free for years. No corn, sugar, even seasonings and spices. I don't eat out. I cook my own food.
    • trents
      @nancydrewandtheceliacclue, are you consuming dairy? Not sure if dairy is part of the carnivore diet.
    • nancydrewandtheceliacclue
      Hello Russ! Thank you so much for your reply.  I have not had an antibody test done, ever, relating to gluten. Last year I had an allergy test done via blood draw (as my insurance wouldn't cover the skin test) but this was for pollen and grasses, not food. Even on the blood test I had extremely high levels of reactions to each allergen. Could this seasonal allergy inflammation be contributing to my celiac inflammation? I am so careful, there is no way I could ingest gluten. For example, couple of months ago I tried a cough drop that says it was gluten free. I checked ingredients, it seemed fine. But just taking one of those caused me to have nausea, vomiting, and the same extreme abdominal pain. Have you ever heard of anyone else having symptoms like mine after being diagnosed celiac and strictly gluten free? The last episode I had like this was yesterday, after I ate a certified gluten-free coconut macaroon with a little chocolate on it. I have eaten coconut and chocolate before with no issue,  so I didn't see how I could all of a sudden have such a strong response. 
    • Russ H
      The sensitivity of people with coeliac disease varies greatly between individuals. The generally accepted as safe limit for most people is 10 milligrams per day. This equates to a piece of bread the size of a small pea. Some people report that they are more sensitive than this, but others can very occasionally eat a normal gluten containing meal without reacting. I don't think that touching or throwing bread around would lead to you ingesting enough to cause a reaction. There are case reports of farmers with coeliac disease reacting to the dust from gluten-containing animal feed but they were inhaling large amounts of dust over a long period of time in barns. Perhaps you episodes are caused by a reaction to something other than gluten? Have you had your antibody levels checked to see whether you are still being exposed to gluten?
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