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Gluten Free In Houston, Tx?

Live2BWell

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Live2BWell Enthusiast
Live2BWell
Posted

I am in a suburb of Houston, I have not yet been diagnosed but am just feeling the waters, so to speak, because I'm struggling with the concept that I may indeed have Celiac <_<

Any individuals or support groups in the Houston area?

Thanks :)

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gfpaperdoll Rookie
gfpaperdoll
Posted

Hi Jessica, there are a lot of celiacs in Houston. Here is the link to the celiac support group.

Open Original Shared Link We have a lot of great restaurant information. Please contact Janet & get the new member packet. Hope to see you at a meeting. We also have a dining out group.

Depending on where you live, you might want to also attend another group. i think there is one north of town & one South of town in the Alvin area...

just PM me if you need any specific info.

newceliac Enthusiast
newceliac
Posted

gfpaperdoll,

I live in Louisiana approximately 3 hours from Houston. I was wondering if there is a good dr. who specializes in celiac in Houston?

gfpaperdoll Rookie
gfpaperdoll
Posted

I do not personally know any, but our director might, you can email her with info from the link above.

Sometimes people from Louisiana attend our meetings. You can always just pay the new member fee & that will get you all the newsletters with the restaurant reviews, recipes, articles that type of thing. very worth the money in my opinion. She mails some newsletters, we get handouts at the meetings & she emails sometimes. So a lot of information will be available to you.

are you diagnosed yet?

Live2BWell Enthusiast
Live2BWell
Posted
  • Author

Thanks, I'll be sure to check the page out :)

  • 4 weeks later...
Batmans-Cinderella Newbie
Batmans-Cinderella
Posted

Hi from Kate I live in Beaumont, TX and have been dignosed for about 4 years. I have been doign great became completely Gluten free about 2 years ago. I also have Rhematoid Arthridus, Fibromyalgia, and Seizures. Due to gluten in medications I have an implant for the seizures which took the medications out of the picture. Recently I am getting new complaints (as the doctors call them) problems breathing and fatique. I have also gained 30+ pounds.

gfpaperdoll Rookie
gfpaperdoll
Posted

Hi Kate, are you eating grains?

What is your typical diet?

Did you give up dairy?

did you give up soy?

do you eat some of the superfoods often? Like berries, kale, sweet potatoes, broccoli, cabbage, carrots etc

Sorry, you are still having problems. Have you ever driven into Houston for one of our meetings?

wow, maybe you could car pool with the lady that lives in Louisiana...

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    • trents
      Coeliac or not coeliac

      By trents · Posted

      Cristiana asks a very relevant question. What looks normal to the naked eye may not look normal under the microscope.
    • cristiana
      Coeliac or not coeliac

      By cristiana · Posted

      Hello @CC90 Can I just ask a question: have you actually been told that your biopsy were normal, or just that your stomach, duodenum and small intestine looked normal? The reason I ask is that when I had my endoscopy, I was told everything looked normal.  My TTG score was completely through the roof at the time, greater than 100 which was then the cut off max. for my local lab.  Yet when my biopsy results came back, I was told I was stage 3 on the Marsh scale.  I've come across the same thing with at least one other person on this forum who was told everything looked normal, but the report was not talking about the actual biopsy samples, which had to be looked at through a microscope and came back abnormal.
    • trents
      Coeliac or not coeliac

      By trents · Posted

      My bad. I should have reread your first post as for some reason I was thinking your TTG was within normal range. While we are talking about celiac antibody blood work, you might not realize that there is not yet an industry standard rating scale in use for those blood tests so just having a raw number with out the reference scale can be less than helpful, especially when the test results are marginal. But a result of 87.4 is probably out of the normal range and into the positive range for any lab's scale. But back to the question of why your endoscopy/biopsy didn't show damage despite significantly positive TTG. Because they took the trouble to take seven samples, it is not likely they missed damage because of it being patchy. The other possibility is that there hasn't been time for the damage to show up. How long have you been experiencing the symptoms you describe in your first post? Having said all that, there are other medical conditions that can cause elevated TTG-IGA values and sometimes they are transient issues. I think it would be wise to ask for another TTG-IGA before the repeat endoscopy to see if it is still high.  Knitty kitty's suggestion of getting genetic testing done is also something to think about. About 35% of the general population will have one or both genes that are markers for the potential to develop active celiac disease but only about 1% of the population actually develop celiac disease. So, having a celiac potential gene cannot be used to definitively diagnose celiac disease but it can be realistically used to rule it out if you don't have either of the genes. If your symptoms persist, and all testing is complete and the follow-up endoscopy/biopsy still shows no damage, you should consider trialing a gluten free diet for a few months to see if symptoms improve. If not celiac disease, you could have NCGS (Non Celiac Gluten Sensitivity). 
    • knitty kitty
      Coeliac or not coeliac

      By knitty kitty · Posted

      @CC90, Your Lansoprazole is a proton pump inhibitor and has immunosuppressive effects!!!!  This is why your endoscopy didn't show much damage to the intestinal lining!!  The Lansolprazole is suppressing tTg IgA antibodies in the intestines, but those antibodies are getting into the blood stream and causing inflammation and damage in other organs.   Proton pump inhibitors cause intestinal damage in the long run.  If you get off the Lansoprazole for a few months so your immune system is not blocked, then do a gluten challenge, and an endoscopy, THEN they would see intestinal damage. Sheesh!  Doctors can be so ignorant.  I've seen this so many times it's frustrating! Take the B Complex and Benfotiamine.  Get off the Lansoprazole.  Go with the DNA test results.   Welcome to the tribe! P.S. B vitamins are needed to correct anemia!  Not just iron.  
    • knitty kitty
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      By knitty kitty · Posted

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