Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Monday, Is My Suregery Date.


Blessings

Recommended Posts

Blessings Explorer

Monday, I go have the cyst removed. He will do laproscopy with an incision. He wants to take it out whole. I am curious to see the actual size. He said it was grapefruit sized. This surgery is bothering me. I don't know why. He said it could start a flare up of the crohns. But with all the stuff going on right now that would be nothing new.

I purchased some gluten-free frozen dinners and snacks for my dtr to make for me once I start eating at the hospital. I don't want to chance it. Neither does my family!!! They don't like the 2 week visit of the wicked twin that shows up when I am glutened.

From your experiences what else should I think of? Depending on if he has to mess with the bowels it will be a few days to a week.

Thanks for your prayers. They are so appreciated.

2008

March-Diagnosed Celiac (doing great with diet)

April-Diag Crohns

May-Diag Spondylitis

June-Mesenteric Duplication Cyst


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jennyj Collaborator

Blessings,

You are in my thoughts and prayers. I pray all goes well and you are feeling back to normal soon. Just don't try to do to much too soon. Rest and take it easy as you heal.

darlindeb25 Collaborator

You will have to watch them constantly. Refuse medication if they can not verify it is gluten free. Make it very well known that you are gluten free. I had a hysterectomy 1 yr ago. After surgery, the doctor wanted me to take some type of vitamin, I don't recall now what it was, but they could not tell me the maker of the vitamin, they had no idea if it was gluten free, and I refused to take it. You have to be firm with everyone, you want to go home and heal from the surgery, not from being glutened.

God speed!

Fiddle-Faddle Community Regular

I wish you good luck and a speedy recovery!

I also wanted to mention that you might want to avoid percocet or endocet (the generic percocet). I had TERRIBLE reactions to it post-surgery, and I did an informal, very unscientific poll of everyone I knew who had been prescribed it for post-surgical pain.

The results: 21 out of 26 people had varying degrees of bad reactions to it, with the MILDEST reactions in this group being nausea and vomiting. One elderly person who had had knee surgery had hallucinations, and was hospitalized in the psych ward for 2 weeks until his reaction stopped. (This, obviously, seriously limited his recovery from knee surgery, as he wasn't able to do physical therapy for those 2 weeks.)

5 people reported good pain relief, with one specifying that she really liked the "loopy" feeling it produced.

My own reaction was nausea, vomiting, profuse sweating, dizziness, and chest pain. I assumed that it was working for the pain, though my pain was still quite severe. However, when I switched to first Advil (over-the-counter)and the next day, Tylenol, both of those provided nearly 100% pain relief.

As I said, this is a very unscientific poll. However 21/26 with BAD reactions? These are not good odds.

debmidge Rising Star

I don't know what kind of cyst you have....on 7/11 I had an ovarian cyst and both ovaries removed. My ovary with cyst was as large as a softball ...... I took the pain meds in hospital and they were put in my IV. I was in hospital 3 nights. After I got home I didn't need any pain med (I took Advil OTC instead).

If you would like to know more you may send me a message thru this board. Best wishes for a speedy recovery.

D

Live2BWell Enthusiast

I am sure things will go just fine, whenever I have gone in for any type of procedure that they have to anesthesize me, I just think "hey, atleast I'll get a good nap in" and that usually helps to ease my anxiety :D

Well Wishes for the procedure and a speedy recovery

~Jessica~

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Mihai's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      33

      Pain in the right side of abdomen

    2. - Aretaeus Cappadocia replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      1 Year Elimination Diet journey

    3. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      1 Year Elimination Diet journey

    4. - Aretaeus Cappadocia replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      1 Year Elimination Diet journey

    5. - Aretaeus Cappadocia replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      1 Year Elimination Diet journey

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,052
    • Most Online (within 30 mins)
      10,442

    xxxbptv
    Newest Member
    xxxbptv
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Heatherisle, I would feel much less worried if you would insist that the doctors administer high dose thiamine hydrochloride (500mg x 3 daily) for several days, with a banana bag (all eight B vitamins, riboflavin makes it yellow like bananas).  Electrolytes may become unbalanced, so monitoring is needed as well.  Just to rule out Thiamine deficiency, high dose thiamine should be administered for several days.  If no health improvement, look for something else. The symptoms your daughter is showing are seen in Wernickes Encephalopathy caused by Thiamine deficiency.  White spots in the brain including on the frontal lobe are seen in Wernickes Encephalopathy.  Blurred vision, balance problems, changed gait (wider stance to compensate for imbalance), tingling in hands and feet, ascending neuropathy, lower back pain, kidney pain, abdominal pain are all symptoms I have experienced when I had Wernickes.  The damage becomes permanent if not corrected quickly.  Korsakoff Syndrome follows with brain damage that cannot be reversed, and death following.   Doctors are not trained in Nutrition.  Doctors are taught Wernickes Encephalopathy only happens in Alcoholism.  My doctors did not recognize Wernickes Encephalopathy because I did not drink alcohol.  If it walks like a duck... Doctors do not realize that Malabsorption from Celiac Disease can result in severe nutritional deficiency diseases, including Wernickes.  Malabsorption of Celiac Disease affects all the essential nutrients, vitamins and minerals, our bodies need to function properly.  It's rare to have a deficiency in just one vitamin.  B12 Deficiency and Thiamine deficiency go hand in hand.   I had symptoms of deficiencies in many vitamins and minerals because my Celiac Disease was still undiagnosed at that time.  They laughed when I asked to be checked for Celiac Disease.  I was overweight (high calorie malnutrition).  I didn't match their " in the box" thinking.  I didn't match their concept of the wasting away, skin and bones stereotype of Celiac Disease.  My doctors wrote me off as "depressed".  I could feel myself dying.  I trusted what I learned at university about how vitamins work inside the body.  I recognized the symptoms of Wernickes and other nutritional deficiency diseases.  At home, I took 500 mg over the counter thiamine hydrochloride and had health improvement within twenty minutes.  I continued supplementing for months, with thiamine and B vitamins and electrolytes.  I continued to have health improvements.  I did suffer some permanent brain damage.  I have permanent vision problems and optic nerve damage.  Computer screens cause migraines.  I struggle through them to help others.   Ask for Thiamine and an Erythrocyte Transketolace Activity Assay.  This test is more accurate than a blood test for Thiamine level, but both tests take time, during which time permanent damage can be done.  The World Health Organization recommends thiamine administration before test results come back in order to prevent permanent damage.   Trying thiamine hydrochloride is simple and cheap and safe and nontoxic.  If high dose thiamine doesn't work, there's no harm done.  Try thiamine supplementation if only to rule out Thiamine deficiency....while there's still time. References: Thiamine Deficiency and Brain Injury: Neuroanatomical Changes in the Wernicke-Korsakoff Syndrome https://pmc.ncbi.nlm.nih.gov/articles/PMC12535404/ Concomitant Vitamin B1 and Vitamin B12 Deficiency Mimicking Thrombotic Thrombocytopenic Purpura https://pmc.ncbi.nlm.nih.gov/articles/PMC9887457/ Please have ears to hear.
    • Aretaeus Cappadocia
      I don't know about this. Here's how I make kasha: boil water in a pot add the kasha, stir to mix, turn heat down to a gentle simmer for ~10 min, maybe 15, until tender remove from heat and serve There are lots of variations if you wish, like adding salt and butter. One variation that is really tasty, but kind of a pain, is to mix the dry kasha with a beaten raw egg, heat the dry kasha/egg mixture in the pot for a couple of minutes (to coat the kasha and cook the egg), then add boiling water and finish like the "basic" recipe above. I seldom have the patience to do all of that, though.
    • xxnonamexx
      What's the reasoning of washing and rinsing kasha buckwheat for 12 hrs
    • Aretaeus Cappadocia
      I don't clean the kasha. It does take more than a minute but less than half an hour. However I understand the need for efficiency in the morning routine. I am not familiar with the lemon thing. Another one to consider is quinoa (I buy Kirkland, labeled gluten free). It is probably better to rinse the quinoa before cooking. I don't notice it myself but a lot of people don't like unwashed quinoa because of saponins that are removed by a rinse. All of these are reheatable if you want to make a larger amount ahead of time. Also, it may be possible to use the "overnight oats" strategy with some or all of these, but I have to say I never even thought about it until writing this response.
    • Aretaeus Cappadocia
      I like the Wolff's brand coarse kasha in the grocery store, but I also like the Azure Standard products (AzureStandard.com) for buckwheat, amaranth and other ingredients. The Wolff's package in my pantry is labeled "gluten free". Azure says that their packaging plant has an allergen control program but almost none of their products are labeled gluten free. I have been relying on Azure a lot for my gluten-free diet and the global outcome has been good but I never know for sure for any given product. I eat something I bought from them pretty much every day. (wish I could tell you something more definitive) Full transparency: I was diagnosed with celiac by antibody test (10x the threshold) and by biopsy, and now my antibody levels are 1/10 of the threshold, so my diet appears to be very gluten safe. However, I never had any clear acute symptoms so I never know for sure when I'm consuming gluten.
×
×
  • Create New...