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darlindeb25

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darlindeb25 last won the day on July 14 2013

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    LONG ISLAND, NEW YORK

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About Me

I love having new friends that can identify with me--I like talking to people who know what i am and have gone through and who can also share their trials with this disease with me and whom I can share mine with--my sister is also celiac, as is my father---anyone out there wanting to talk with me, feel free to email me anytime--include in the subject line that its about celiacs--I don't open just anything--thank you, Deb

  1. Happy birthday and may God bless you today!

  2. I think I missed this thread the first time through. I think my daughter may be dealing with this. I never connected her problem with gluten, although I do believe she needs to be gluten free. Are you going to get tested for this? What are the tests? Feel free to email me: darlindeb25@aol.com Thank you, Deb
  3. I had panic attacks for years before going gluten free. I was diagnosed with panic attacks, anticipatory anxiety, and borderline agoraphobia...I even was in therapy for them. Now when I look back, I was given Xanax for the panic, and of course, Xanax contained gluten,,,feeding the monster, so to speak! I was on Paxil when I went gluten free, and eventually...
  4. I have never heard this before. Have you ever been tested for spastic paraplegia? This is a ligament/muscle problem. My grandson is now 10, and was diagnosed at 5 yrs old of this disease. He walked on his tip-toes from the day he started walking. His sister, my granddaughter has the disease too. She never walked on her tip-toes, but she stubs her...
  5. I just went to their website, and this is their disclaimer, also listed as their last question in the FAQ: http://www.benefiber.com/fiberHealth/index.shtml
  6. Thank you Kathy. I have no idea why this was sent to me, but I have no intention of using it. Thank you for replying.
  7. Yesterday, I received a container of Benefiber in the mail. I find it questionable. The only ingredient listed is "wheat dextrin." It states it is sugar free, sodium free, and gluten free. It states there is less than 10ppm of gluten, so it's gluten free. I will not try it. I feel if it has one ingredient, which is a wheat product, then how can...
  8. There is so much confusion about silent and latent celiac. A silent celiac is someone who does have damage, but no other symptoms. The villi does show damage, yet the patient doesn't know they are sick, a silent celiac is usually diagnosed by accident. A latent celiac is the one who has no visible damage yet. Here is an article I found from medicinenet...
  9. I still swear by my Pantene. I get remarks about how pretty my hair is all the time. How thick and shiny it is, how good it smells! I must be doing something right. I have used Garnier too, but much prefer Pantene. I was told Dove is just as good, but I really do not agree. Aussie products are good too, their 3 Minute Miracle Conditioner is great.
  10. Yup--me too, my daughter, my mother, my granddaughter--we gots it too. Seems to happen often, more often then many realize. My daughter can not have any metal jewelry touch her. So far, she has not complained about the zipper in her jeans, but then again, I am not sure it touches her, she wears them so big. I bought her a stone cross on a rope and the...
  11. I too find I can't tolerate tapioca starch or potato starch, which leaves me with cornstarch, which thankfully doesn't seem to bother me even though I have trouble with corn. It always amazes me how a food can bother a person, yet there are certain parts of a food we can tolerate.
  12. Mine is from "The Vitamin Shoppe"---many CVS vitamins are gluten free too and it says it on the package. Nature Made may have one too. Nature Made always states on the container if they are gluten free. Deb
  13. I use Walmarts brand of Gas-X------Equate Gas Relief, Extra Strength--its gluten free and works very well. Deb
  14. pantene is gluten-free--i use it on all of this hair--it is the only product i use that lets me comb all this hair out with ease--i tried equate's brand of pantene and i couldnt comb my hair---vidal sassoon is gluten-free too, but i still prefer pantene over anything else--never use tressemme--it contains wheat------ deb---by the way--my hair is 22" long...
  15. as a rule--i think most celiacs have nausea, many have diarrhea daily, and some of us celiac3270--have weight problems i couldnt lose weight while eating gluten--my man used to ask me how i kept the weight on when i was eating next to nothing --he loved me then and still loves me 60# lighter i think there are as many symptoms for celiacs as there are...
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