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new2glutenfree2

"specialists"

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ANYONE ELSE AGREE THAT THEIR DOCTOR'S DON'T KNOW ANYTHING ABOUT CELIAC DISEASE? I JUST CAME BACK FROM THE GASTEROENTEROLOGIST,(WHICH I DON'T EVEN KNOW WHY I NEED TO GO THERE) AND I ASKED HIM FOR MY BLOOD RESULTS (WHICH TESTED FOR ANTIBODIES) TO SEE IF I HAVE BEEN DOING WELL ON MY DIET, AND HE DIDN'T EVEN KNOW HOW TO READ IT. HE SAID, WELL LAST TIME IT WAS 37, WHICH MEANS YOU STILL WERE EATING IT. AND NOW IT IS 17, SO IT IS BETTER" I TOLD HIM THAT I THOUGHT IT TOOK A WHILE FOR IT TO BE NORMAL(I HAVE ONLY BEEN gluten-free FOR ABOUT 4 MONTHS OR SO) HE TOLD ME YES, THAT IS TRUE. I SAID, "WHAT LEVEL IS CONSIDERED NORMAL?" HE DIDN'T KNOW. AT FIRST HE SAID "0", THEN HE LOOKED ON HIS CHART AND SAID 10 AND BELOW. THEN HE SAID "OH, WAIT, LOOKS LIKE 20 AND BELOW. SO, I GUESS YOU'RE FINE." DOES ANYONE KNOW THE TRUE ANSWER???????? THEN MY SISTER (ALSO DIAGNOSED CELIC) WENT THERE THE SAME DAY(COINSIDANCE) AND HE TRIED TO GIVE HER SOME FIBER SAMPLES, WHICH IN THE INGREDIANCE IT LISTED "WHEAT". WHAT A MORRON!!!!!! IS THERE ANY OTHER OPTION OUT THERE? DO YOU GUYS SEE A SPECIALIST??? <_<:(

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Celiac.com Sponsor (A8):

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Different tests have different levels, but on the most common one in the U.S. anything below 20 is considered normal. As for seeing a specialist, the GI is the specialist for this. You apparently have one who doesn't know about celiac.

richard

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My medical plan gives the following info on the Anti-TISSUE TRANSGLUTAMINASE IGA (tTg-IgA),

standard (normal) = less than or equal to 19

weak positive = 20-29

positive = 30 and higher


Diagnosed 8-8-08 (I think I'll remember that date!)

Positive blood panel

Endoscopy a little later on confirmed, via Small Intestine Biopsy

Adult son diagnosed Celiac in his late 20s

Suspect my Mother undiagnosed Celiac

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