Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Am Offically Gutenized! And Going Off The Deep E

mela14

By mela14
in Coping with Celiac Disease

Recommended Posts

mela14 Enthusiast
mela14
  • Author
Posted

dperk,

I'm glad that you are doing better. Hang in there and stay focused. I know it is hard as I sometimes lose it myself. This board has been very helpful and I have learned a lot here. The people on this board are also very compassionate as we have each been through our own hell. I am nowhere near I need to be but have been able to come here with all my baggage and open up. That in itself has been a big help!

I think I will have to lay off the potatoes myself as well as the nuts. They are probably too fatty for me. I was trying to eat them for more protein. I am still very weak and feeling malnourished. today I see my new GI dr and see what he has to say.

Which book are you talking about? There's also another book aout there about eating right foryour blood type. I was introduced to that concept years ago by the author's father (Peter D'Adamo Sr) and it seems I may have to go back to it. I am going to try to get the book today at Barnes and Noble. I have his father's book somewhere and although it is about 25 years old...the concept is the same..."One Man's Food is Another Man's Poison".

Good luck with everything!

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


dperk Rookie
dperk
Posted

The book I found at the library is: The PH Miracle - Balance Your Diet, Reclaim Your Health. It's by Robert O. Young, Ph.D. It helped me a lot to control the acid reflux. I didn't follow the diet completely for very long, but it really did help me find the foods I could eat. I got some better because it was no bread, but he says to eat veggie burgers, which have wheat gluten. So I would get sick again when I tried them - this book does not take into consideration anyone with celiac disease. But the rest of the foods I did good on. It tells you which foods are acid, so I stayed away from them. At least I had something to eat besides baby food - so that felt pretty good. Hope this helps.

Link to comment
Share on other sites
babiesatemydingo Newbie
babiesatemydingo
Posted

Good luck to you and don't give up.I am gluten-free for 3 or 4 years now can't remember?It is always there but life goes on and lots of folks are in worse shape with much more serious illness.

Get out there and find the products you can eat and which you like the best and you will be fine.There is days I feel like crap but what can you do! Just have to keep on keepin on :)

Link to comment
Share on other sites
mela14 Enthusiast
mela14
  • Author
Posted

Dperk,

i am going to try to find that book if I get to Barns and Noble today.

i went the other day and picked up the book taht I was talking about....Eat right for your Blood Type and then decided to put it down. There were a lot of things that were listed as OK for my typs but I know that I reacted to. it also doesn't take into consideration the gluten problems. I will have to be my own jusdge forthe diet.

Right now....I am feeling worse but I think it could be candida. In giving up cakes and cookies I've been craving a little something sweet and having raisins, carrots, apples sauce and or course baby jarred fruits. All of which have a lot of natural sugars. Everything seems to have gotten worse and my gut feels more raw and inflamed. the only thing that I can think of is that the sugars flared up the Candida. Last night I started on half a Nystatin...and I was up early sick to my stomach nauseous and muscle pain...racing heart. I just feel so ill...........of course I got anxious and panic stricken....what is going on and how do I FIX ME?????

I think there is no simple clean cut answer........

I will just have to keep learning and keep trying.

I 'll try to read some of the book if i get over there today. I need to pull myself together first.

Thanks for your help,

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      125,075
    • Most Online (within 30 mins)
      7,748
    Connie Conner
    Newest Member
    Connie Conner
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.8k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      abnormal weight loss

      By knitty kitty · Posted

      Hello, @glucel, Unintended weight loss is symptomatic of Thiamine deficiency.  Our bodies use more Thiamine when we are ill and stressed.  Switching to a gluten free diet can also result in a lower intake of Thiamine.   Interesting Reading: Coronary Artery Bypass Graft (CABG) surgery depletes plasma thiamine levels https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2874825/ Gluten-free diet intervention reduces thiamine intake in two weeks... https://pubmed.ncbi.nlm.nih.gov/34583628/ This study found normal people, without Celiac Disease and malabsorption concerns, had a drop in Thiamine after starting a gluten free diet.  They went back to eating a gluten containing diet.  We don't get that option.  Gluten free processed foods are not enriched with vitamins like gluten containing counterparts.  Supplementing helps boost your absorption of essential vitamins and minerals.
    • knitty kitty
      Maybe celiac, maybe just ncgs?

      By knitty kitty · Posted

      Hello, @Neat1, Yes, neck and shoulder pain can be symptoms of Gerd, which is fairly common in Celiac Disease. Ask for a DNA test, too.  Celiac Disease is genetic.  If you've got celiac disease genes, further testing is warranted.  Some people have Celiac genes, but don't have active Celiac Disease.  If you've got symptoms, your genes are probably activated.   Diabetes, anemia and Thiamine deficiency can cause false negatives on antibody tests.  Some people with Celiac Disease are seronegative.   Thiamine deficiency can cause constipation and gastrointestinal symptoms.  Magnesium supplementation can help with that, too.  Nutritional deficiencies like these are common in untreated Celiac Disease. Keep us posted on your progress!
    • knitty kitty
      Sarah Grace

      By knitty kitty · Posted

      Not really.  Blood tests for vitamin deficiencies are not accurate.  You can have "normal" blood levels and have vitamin deficiency symptoms before blood levels change.  The brain sends messages to the body to release into the bloodstream any extra vitamins stored within cells of tissues and organs so that important organs like the brain and heart can keep getting a supply.  Even what you've eaten in the previous twenty-four to forty-eight hours can affect blood tests.  Taking vitamin supplements eight to twelve weeks before testing, will give falsely elevated results.   Because tests for Thiamine can be so inaccurate, as well as time consuming and expensive, the World Health Organization recommends taking Thiamine and looking for health improvements.  Thiamine is nontoxic, even in high doses.  Thiamine is water soluble and any excess is easily excreted in urine.  WHO recommends giving 500 mg/day of Thiamine Hydrochloride for several days and looking for health improvements.  Some people with Thiamine deficiency need higher doses (1000 - 2000 mg/day).   Benfotiamine, a lipid soluble form of Thiamine, can get inside cells without using the thiamine transporters on the cell surface,  which shut down during thiamine deficiency.  Thiamine Hydrochloride has to get in by transporters, or by passive diffusion, which requires higher doses.  Benfotiamine has been shown to promote intestinal healing.  300 - 1200 mg/day of  Benfotiamine are required. Allithiamine (Tetrahydrofurfuryl Disulfide TTFD) can cross the blood brain barrier without a carrier cell, so Allithiamine is really helpful with neurological symptoms, brain fog, balance issues, problems swallowing, gastroparesis.  50 - 1000 mg/day of Allithiamine.  Find the best dose for you.   I understand the skepticism about Thiamine.  If I hadn't lived through it myself....read my blog...I was skeptical myself, but I could feel myself dying and was grasping at straws.  Within a few minutes of taking my first dose of Thiamine, I felt better and was astounded at how simple the solution was.   Is nutrition even taught in schools today?  I learned basic nutrition in Home Economics, but that's been cut.  Dieting programs distract from nutrition and mostly count calories.   P.S. Riboflavin Vitamin B2 deficiency has been linked to migraines.
    • trents
      Maybe celiac, maybe just ncgs?

      By trents · Posted

      As far as your neck and shoulder pain goes, yes, this could be a symptom of celiac disease as one of the more than 200 symptoms associated with celiac disease is joint pain.
    • trents
      Maybe celiac, maybe just ncgs?

      By trents · Posted

      10g of gluten or the amount in about 4-6 slices of bread daily for several weeks should be a sufficient "gluten challenge". Your primary care provider should be able to order those tests.
×
×
  • Create New...