Jump to content
  • Join Our Community!

    Do you have questions about celiac disease or the gluten-free diet?


If You Are Confirmed Celiac Or Gluten Intolerant How Sick Were You?

Rate this topic

Recommended Posts

I was wondering about the gluten challenge - I have no idea what "normal" is as far as how I ought to feel. I was thinking that after testing, regardless of the results I think I'd like to try gluten free and see how I feel. If the change is dramatic, I think I'd have my answer.

But I was wondering how pre-diagnosis you all felt? I mean, did you get really ill right after eating gluten - was it really noticeable then, or did you sometimes not feel anything at all and other times have a bad reaction to gluten?

Just wondering, lately I seem to be feeling really rotten most of the time and I'm waking up at night with my stomach SO noisy and feeling nauseous. Same in the a.m. - noisy stomach, feel sick (not preggers - absolutely not!). This goes on all day, but I find it a bit weird that this is all happening even long after I've eaten anything. Although in general this feeling is familiar, there are differences because I've been feeling like this pretty much all of the time for quite a long time now.

Just wondering....will get bloodwork done tomorrow


Share this post

Link to post
Share on other sites

How sick folks are really varies. For years I had on and off symptoms that made it easy to ignore what was going on tummy wise. It wasn't until the last 5 or 6 years of illness that my tummy issues were a daily and nightly occurance. One thing I did learn after diagnosis was that it is not a symptom of IBS to wake up in the middle of the night with tummy issues. My DD mostly had nausea, migraines and weakness and my DS had mostly psychological issues with rare tummy issues. My husband had mostly skin problems with bloating and gas and what he thought was normal sporatic bowel issues. There are some who are diagnosed only when it is found while they are looking for something else or after some off results in certain blood panels like for anemia or when they are found to be losing bone for no good reason. This disorder can effect any system in our bodies and it isn't alway the tummy that drives the diagnosis.

One important thing about gluten and the gluten challenges, gluten causes an antibody reaction and this is not instant. When someone does a gluten challenge it is normal for it to take from 3 to 6 days for a reaction to happen. Some folks will have a reaction right away but not all do. Also while some do get some quick releif from the diet for some it can take a while before they see an astounding difference. When you are done with testing then do try the diet for a good 2 or 3 months and then challenge if you still have any doubt.

Share this post

Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

  • Top Posters +

  • Upcoming Events

    • June 19, 2019 04:00 PM Until 08:00 AM
      Celiac Emotional Healing Support Group
      Again you are invited to join Johnny Patout, LCSW for Baton Rouge's first emotional healing support group meeting to assist those living with celiac disease manage the emotional challenges so many of us face. Most often the emotional disturbances include depression, disinterest in normal activities, insomnia, grief, mood changes, anxiety, inability to concentrate, extreme concern about managing a gluten-free lifestyle and other emotional and behavioral challenges.
      The professionals at Jamestown Avenue Counseling Center created the emotional healing support group to give us a safe place to begin to process our emotions and support each other as we heal emotionally while managing celiac disease and the resulting autoimmune disorders.
      The emotional healing support group meets every Thursday, 6:00-7:00pm, at the Jamestown Avenue Counseling Center of Baton Rouge. Jamestown Avenue Counseling Center is located at 4637 Jamestown Avenue, Baton Rouge, Suite B-1. Suite B-1 is upstairs.
      The support group is free and open everyone managing celiac disease. For more information: emotionalhealingforceliacs@hotmail.com
    • July 07, 2019 Until August 03, 2019
      For more information, visit www.kefss.com or call (407) 255-6550. info@kefss.com 

      KEF USA Summer Camps Announces the New KEF Gluten-Free Camp in Orlando, Florida for Youths with Celiac Disease.

      [Orlando, FL February 6, 2019]-KEF USA is excited to announce that we will offer a new 100% gluten-free camp program to give kids and teens with Celiac Disease a safe, exciting and healthy summer. KEF USA programs offer fun and unique experiences that can only be found in Orlando, Florida. Campers explore the theme parks and local attractions, make new friends, discover new interests and create memories that last a lifetime.

    • July 08, 2019 Until July 09, 2019
      14th Euro-Global Gastroenterology Conference happening in Zürich, Switzerland during July 08-09, 2019. We are expecting more than 300 attendees representing from more than 40 countries who would be sharing their experiences and expertise around the world Theme: “Future Perspectives and shaping trends in Gastroenterology”
      You may learn more about our congress by visiting our website: https://europegastroenterology.gastroconferences.com/
      Microbiota and diseases|Acid Related Diseases|Helicobacter Pylori Treatment|Therapeutics targeting Microbioma|Advanced Nutrition and Dietetics in Gastroenterology|Inflammatory Bowel Diseases|Clinical Advances in Liver Diseases|Gastrointestinal Disorders and Drug Delivery|Obesity and Treatments|Gastrointestinal Pathology|Neuro Gastroenterology and Motility disorders|Pediatric Gastroenterology, Hepatology and Nutrition|Gallbladder and biliary tract Diseases|Latest advances in Gastroenterology treatments|Endoscopic Innovations in Gastroenterology and surgery|Clinical and Radiographic Gastrointestinal Abnormalities|Functional GI Disorders|Changing Trends in Etiology of Liver diseases|Epigenetics of gastrointestinal diseases|Bariatric Surgery|Gastrointestinal Radiology and Imaging|Developing treatment for Viral Hepatitis and Fibrosis of Liver|Emerging Trends in Clinical Research of Liver diseases|Hepatitis B treatment Patterns|Therapies in Pancreatic cancer|Diabetes and hepatocellular carcinoma|Intestinal Metaproteomics and Type 1 Diabetes
      Conference Benefits
      ·         CME Credits  
      ·         CPD Credits
      ·         Research publication in proceeding book
      ·         Abstract publication in associated online journal
      ·         DOI by Cross-Ref
      ·         Online speaker webpage
      ·         Workshops and Symposium
      ·         Certificate for participation and attendance
      ·         Young Researchers Forum and Posters Award for Students
      ·         B2b and Networking meetings
      Program Director
      Sophia Williams
      Gastroenterology 2019 | Zürich | Switzerland
      conferenceseries.com https://europegastroenterology.gastroconferences.com/
      E-mail: williams.sophiaa@yandex.com
      Whatsapp us : +442382146717
  • Create New...