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Biopsy


kjay

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kjay Newbie

Hi Everyone,

Does anyone know how long one has to be on a gluten diet to receive conclusive biopsy results? I have been back on a gluten diet for two months, prior to that I was on a gluten-free diet for one year.

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nora-n Rookie

I have seen an abstract on pubmed, where it took children who first were diagnosed, from 6 weeks to 6 years back opn gluten to get symptoms back and positive biopsies.

They did not scope them until they got symptoms.

Nowadays they do not do that anymore.....but in hte old days, celiacs had to go badk on gluten and get positive biopsies in order to get the definite diagnosis. Barbaric.

Note that you have to eat a lot of gluten, like at least 0,3 grams per day per kg weight.

Nowadays they say at lest six weeks to three months, but it may take longer, or forever....

I have also seen another abstract with a different angle, but the conclusion was that time was essential, that more ane more were positive after a time. I do not remember how long time it took before most were positive, could be interesting to look it up again. But certainly more than six weeks or three months.

nora

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sbj Rookie

"A child may have to eat gluten for 4-8 weeks (a gluten challenge) in order to have a biopsy if that child has not been eating gluten for several months or more. A gluten challenge in adults can last three months."

This per a well-respected site: Open Original Shared Link

I am hoping that your doctor also gave you some advice in this area? If not, you should really ask this question of your doctor. Please. Since s/he is the one who will be doing the endoscopy they need to be fully aware of your circumstances. Please let him/her know immediately how long you have been off gluten - s/he will advise you based on your unique circumstances.

"Any changes in your diet can affect the accuracy of your biopsy results. It is necessary for you to be eating gluten every day for at least 4-8 weeks before the procedure. If you are scheduled for a biopsy and are not eating gluten, talk to your doctor about what is necessary to obtain accurate results. If you have a biopsy and have eaten gluten only a short time before the test, you and your physician will not know if a negative test result is accurate or due to your diet."

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Why the challenge now after having been gluten-free for a year?

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    • Beverage
      Sounds like you are in the UK. With blood numbers that high, I thought docs in UK would give an official diagnosis without the biopsy. You should ask about that, so you can get support faster.  I'd try to find and print out anything that supports that in your country, get another appointment and take all of it with you. Even in the US now, some docs are doing this, my 19 year old step granddaughter got an official diagnosis here in US with just blood results a few months ago.
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