Blood Work

[cjstearns]

Hello! My 6 yr old son just had blood work that revealed a positive anti tissue transglutiminase (29.9- 20-30 is a low positive & above 30 is mod-strong positive) but the anti gliadin were negative.

I know there can be false positives??Any thoughts or comments are appreciated! THANKS!

[Mother of Jibril]

Welcome to the group!

Actually, false negatives are pretty common... but not false positives. If you don't take gluten out of your son's diet that number will keep climbing Has your doctor recommended an endoscopy? That's considered the "gold standard" for diagnosing celiac disease.

I know a gluten-free diet is a big change, but it's very healthy and it does get easier! If you have celiac disease it's really a gift to be diagnosed at a young age so you can prevent complications.

[ravenwoodglass]

Welcome to the group!

Actually, false negatives are pretty common... but not false positives. If you don't take gluten out of your son's diet that number will keep climbing Has your doctor recommended an endoscopy? That's considered the "gold standard" for diagnosing celiac disease.

I know a gluten-free diet is a big change, but it's very healthy and it does get easier! If you have celiac disease it's really a gift to be diagnosed at a young age so you can prevent complications.

This was very well put and the last sentence really deserves stress. It is going to be a lot of changes but it will be worth it in the long run. You should get all family members tested, even if they seem not to have symptoms. Celiac is strongly genetic and often times there is more than one family member affected but often the symptoms may be different.

The signatures of myself and many others on the board clearly show what happens when this difference isn't diagnosed until people have suffered for years.

[cjstearns]

Welcome to the group!

Actually, false negatives are pretty common... but not false positives. If you don't take gluten out of your son's diet that number will keep climbing Has your doctor recommended an endoscopy? That's considered the "gold standard" for diagnosing celiac disease.

I know a gluten-free diet is a big change, but it's very healthy and it does get easier! If you have celiac disease it's really a gift to be diagnosed at a young age so you can prevent complications.

Thanks! We have an a GI appt this Friday & I will probably push for the biopsy to rule it out.

[cjstearns]

This was very well put and the last sentence really deserves stress. It is going to be a lot of changes but it will be worth it in the long run. You should get all family members tested, even if they seem not to have symptoms. Celiac is strongly genetic and often times there is more than one family member affected but often the symptoms may be different.

The signatures of myself and many others on the board clearly show what happens when this difference isn't diagnosed until people have suffered for years.

Thank you so much! I hope you are doing well! I appreciate the advice.