Jump to content

  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Going Gluten Free Today

erinb24

Recommended Posts

erinb24 Newbie
erinb24
Posted

I had an appointment with the GI today and was put on a gluten-free diet. Even though the tests came out negative, my symptoms line up too much with Celiac, so I'm going to try the diet and see how it works. This is going to be hard, especially the week of Christmas, but I'm so ready to start feeling better that I hope this is it!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


nasalady Contributor
nasalady
Posted
I had an appointment with the GI today and was put on a gluten-free diet. Even though the tests came out negative, my symptoms line up too much with Celiac, so I'm going to try the diet and see how it works. This is going to be hard, especially the week of Christmas, but I'm so ready to start feeling better that I hope this is it!

Welcome!

I know what you mean...I went gluten free right before THANKSGIVING! :)

But one great thing about this forum is that people share recipes for gluten free *everything* so, with the help of Whole Foods Market, I was able to prepare gluten free pies, stuffing, gravy, etc., and my family thought it all tasted just as good as the "regular" recipes, if not better!

By the way, you may start to feel better right away, but if not, don't get discouraged because it can take a while for your body to heal. Some people report that it literally took them 2 years to feel "normal" again. I figure that following the gluten free diet is DEFINITELY worth it if I can feel normal again, even if it takes years to get there. Some of my symptoms (neurological and gastric) started to get better right away, although they still come and go, while other symptoms have not improved significantly (yet). But I've only been doing this for less than a month now.

Good luck!

JoAnn

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

Welcome aboard!

If there is any food you crave, post a thread about it (or post on this thread), and many of us will do our best to provide you with GOOD gluten-free substitutions so you can have the same foods over the holidays that you've always had--just made from scratch from gluten-free ingredients!

For example, if you always have green bean casserole, you can use chicken broth, garlic powder, freeze-dried mushroom (available at Sam's Club) and sour cream in place of the cream of mushroom soup, and Funyuns (a kind of onion-flavored ring-shaped chip, very similar to French-Fried onions but gluten-free!) in place of the French-fried onions.

If you are a pasta fiend, Tinkyada makes rice pasta that tastes practically identical to normal pasta. You have to cook it a little longer (use the normal cooking directions, NOT the fuel-saver directions, and follow exactly), and you have to use more water than you might have for normal pasta, and in the first 5 minutes, stir A LOT).

I hope the diet totally resolves your symptoms. That's the best part about it--no pills, no drugs, no more expensive doctor visits, no surgery!

Lisa Mentor
Lisa
Posted

Welcome!

Here is a link that you might find very valuable to you in the next few weeks:

Open Original Shared Link

Merry Christmas! :D

flourgirl Apprentice
flourgirl
Posted

Welcome aboard! You'll find you have ups and downs, I'm sure, and that you will make mistakes. We all do. It's a learning process, and a change of a lot of habits. Hopefully you'll heal quickly and feel better soon. Have patience if you don't. There is a ton of info to be had, it helps to find the time to read, read, read. Helped me a lot! :D

Good luck.

erinb24 Newbie
erinb24
Posted
  • Author

Thank you for all your responses! I love to cook, so I think I'll be able to adjust to making substitutions okay, but I think the hardest part will be having so many goodies there to tempt me :) I'll definitely keep posting here because I've gotten a lot of help already!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Aretaeus Cappadocia
      - Aretaeus Cappadocia replied to nancydrewandtheceliacclue's topic in Super Sensitive People
      11

      Celiac flare years after diagnosis

      @nancydrewandtheceliacclue, you are welcome. After looking at this thread again, I would like to suggest that some of the other comments from @Russ H are worth following up on. The bird-bread may or may not be contributing to what you are experiencing, but it seems unlikely to be the whole story. If you have access to decent healthcare, I would write down...
    2. Aretaeus Cappadocia
      - Aretaeus Cappadocia replied to nancydrewandtheceliacclue's topic in Super Sensitive People
      11

      Celiac flare years after diagnosis

      @Russ H, I partly agree and partly disagree with you. After looking at it again, I would say that the slick graphic I posted overestimates the risk. Your math is solid, although I find estimates of gluten in white bread at 10-12% rather than the 8% you use. Somewhat contradicting what I wrote before, I agree with you that it would be difficult to ingest ...
    3. Peace lily
      - Peace lily commented on Scott Adams's article in Latest Research
      2

      New Study Reveals How the Immune System Learns Which Foods Are Safe to Eat

      Hi everyone well I don’t understand totally,I look for gluten-free only. I seem to be super sensitive. I had a problem the other day don’t know why it happen . I’m the only that handles my food . My husband has pancreatitis he’s fine with me cooking gluten-free I’ve tried doing both it doesn’t work for me strictly gluten-free kitchen. But he can actu...
    4. nancydrewandtheceliacclue
      - nancydrewandtheceliacclue replied to nancydrewandtheceliacclue's topic in Super Sensitive People
      11

      Celiac flare years after diagnosis

      @Aretaeus Cappadocia thank you for your reply and the link, that is very helpful to get a visual of just how small of an amount can cause a reaction. I know I am not consuming gluten or coming into contact with gluten from any other source. I will stop touching/tossing bread outside! My diet has not changed, and I do not have reactions to the things I am...
    5. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Dermatitis Herpetiformis
      4

      Skin issues

      Thankyou I did find out the Infectious disease is the route to go rather than dermatologist. I did reach out to two major hospitals and currently waiting on approval for one of them in Infectious Diseases to call me. I also did have implants ( I didn't know and sense not properly in my medical. Neither did surgeon)in 2006 and there was a leak 2023 during...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,061
    • Most Online (within 30 mins)
      10,442
    Francisco1007
    Newest Member
    Francisco1007
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      Celiac flare years after diagnosis

      By Aretaeus Cappadocia · Posted

      @nancydrewandtheceliacclue, you are welcome. After looking at this thread again, I would like to suggest that some of the other comments from @Russ H are worth following up on. The bird-bread may or may not be contributing to what you are experiencing, but it seems unlikely to be the whole story. If you have access to decent healthcare, I would write down your experiences and questions in outline form and bring this to your Dr. I suggest writing it down so you don't get distracted from telling the Dr everything you want to say while you have their attention.
    • Aretaeus Cappadocia
      Celiac flare years after diagnosis

      By Aretaeus Cappadocia · Posted

      @Russ H, I partly agree and partly disagree with you. After looking at it again, I would say that the slick graphic I posted overestimates the risk. Your math is solid, although I find estimates of gluten in white bread at 10-12% rather than the 8% you use. Somewhat contradicting what I wrote before, I agree with you that it would be difficult to ingest 10 mg from flinging bread.  However, I would still suggest that @nancydrewandtheceliacclue take precautions against exposure in this activity. I'm not an expert, I could easily be wrong, but if someone is experiencing symptoms and has a known exposure route, it's possible that they are susceptible to less than 10 mg / day, or it is possible that there is/are other undetected sources of exposure that together with this one are causing problems. At any rate, I would want to eliminate any exposure until symptoms are under control before I started testing the safety of potentially risky activities. Here is another representation of what 10 mg of bread would look like. https://www.glutenfreewatchdog.org/news/wp-content/uploads/2019/10/10mgGlutenCrumbsJules.jpg Full article that image came from: https://www.glutenfreewatchdog.org/news/what-does-10-mg-of-gluten-look-like/
    • nancydrewandtheceliacclue
      Celiac flare years after diagnosis

      By nancydrewandtheceliacclue · Posted

      @Aretaeus Cappadocia thank you for your reply and the link, that is very helpful to get a visual of just how small of an amount can cause a reaction. I know I am not consuming gluten or coming into contact with gluten from any other source. I will stop touching/tossing bread outside! My diet has not changed, and I do not have reactions to the things I am currently eating, which are few in number. My auto immune reaction just seems so severe. The abdominal pain is extreme. It takes a lot out of me. I guess I will be this way for the rest of my life if I ever happen to come into contact with gluten? I appreciate the help. 
    • Jmartes71
      Skin issues

      By Jmartes71 · Posted

      Thankyou I did find out the Infectious disease is the route to go rather than dermatologist. I did reach out to two major hospitals and currently waiting on approval for one of them in Infectious Diseases to call me. I also did have implants ( I didn't know and sense not properly in my medical. Neither did surgeon)in 2006 and there was a leak 2023 during the same time I was dealing with covid, digestive issues, eyes and skin.Considering I " should  be fine" not consuming gluten/wheat, taking vitamins for sibo and STILL feeling terrible.It has to be parasites. I also take individual eye drops prescribed, could there be an issue there? Anyways my pcp thinks I need therapy because again they don't acknowledge my digestive issues because in my records it shows im fine, hintz the reason I had to go back to bay area hospital:(  I thought skin issues maybe sibo related but I feel and have seen and seriously trying not to think about it because it's disgusting. 
    • Aretaeus Cappadocia
      Zaalouk moroccan eggplant salad

      By Aretaeus Cappadocia · Posted

      oops. I didn't see that before posting or I would have at least referenced it. The two recipes are pretty similar, but I think the newer one is a little simpler/faster. Next time though I will search more before posting.
×
×
  • Create New...