Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Treating Osteoporosis


frec

Recommended Posts

frec Contributor

I have osteoporosis--lots of celiacs do--and I have been trying to find information on options for treatment. I don't like the sounds of the bisphosphonates but that is often all the doctors offer. Here is some really excellent information, including a calculator you can use to estimate your risk if you know your T score. The site is written by a medical doctor who teaches at University of Washington.

Open Original Shared Link


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Gemini Experienced
I have osteoporosis--lots of celiacs do--and I have been trying to find information on options for treatment. I don't like the sounds of the bisphosphonates but that is often all the doctors offer. Here is some really excellent information, including a calculator you can use to estimate your risk if you know your T score. The site is written by a medical doctor who teaches at University of Washington.

Open Original Shared Link

Thanks, Frec!

I have osteopenia and currently am using bio-identical hormones, plus a boatload of calcium with Vit. D and magnesium. I remain active as much as I can fit in and all this will have to do because the meds they push on you create far more problems than they are worth. I think the most important thing to do is to remain active and flexible to decrease chances for a fracture. If this were a man's problem, there would be a cure by now! :lol:

mamasaidso Apprentice

I was diagnosed with celiac disease in January 2008 at age 58. My osteoporosis was in high risk range for hips and spine on dexa scan two years ago. Last year I tried to find an alternative to the Fosamax D my primary doc had prescribed. I decided to see if the gluten-free diet made a difference before I went the drug route. I had read in Dr. Peter Green's book on celiac disease that drugs for osteoporosis should not be taken while you are healing on gluten-free diet. I am seeing Dr. Cynthia Rudert in Atlanta and she reinforced that as well. It can be dangerous for celiacs and decrease your blood calcium level.

I went to an endocrinologist and had all my levels checked including vitamin D levels. Also had my magnesium checked. I faithfully take my calcium in the am and before I go to bed. I take an vitamin D supplement with evening calcium. I started weight bearing exercises and yoga. My recent Dexa scan done November 08 showed no osteoporosis in spine, it was normal. My hips, which were worse, showed mild osteopenia. I couldn't believe how quickly it changed especially for my age. My hips used to ache constantly and had to have cortisone shots. I have no more joint pain anywhere. I can't believe it. Needless to say, I am very relieved that I could do this naturally.

Hopefully this info will be helpful to you.

Gemini Experienced
I was diagnosed with celiac disease in January 2008 at age 58. My osteoporosis was in high risk range for hips and spine on dexa scan two years ago. Last year I tried to find an alternative to the Fosamax D my primary doc had prescribed. I decided to see if the gluten-free diet made a difference before I went the drug route. I had read in Dr. Peter Green's book on celiac disease that drugs for osteoporosis should not be taken while you are healing on gluten-free diet. I am seeing Dr. Cynthia Rudert in Atlanta and she reinforced that as well. It can be dangerous for celiacs and decrease your blood calcium level.

I went to an endocrinologist and had all my levels checked including vitamin D levels. Also had my magnesium checked. I faithfully take my calcium in the am and before I go to bed. I take an vitamin D supplement with evening calcium. I started weight bearing exercises and yoga. My recent Dexa scan done November 08 showed no osteoporosis in spine, it was normal. My hips, which were worse, showed mild osteopenia. I couldn't believe how quickly it changed especially for my age. My hips used to ache constantly and had to have cortisone shots. I have no more joint pain anywhere. I can't believe it. Needless to say, I am very relieved that I could do this naturally.

Hopefully this info will be helpful to you.

Thank you so much for posting your story....it has given me hope! I am going to turn the magic 50 this year and was pessimistic about being able to regain bone density after menopause. I just will absolutely not take biophosphonates because I will be having 2 dental implants down the road and do not want complications from that. I also take copious amounts of calcium, vitamin D and magnesium and try to fit in exercise when I can. I wish I could add more in but my work schedule makes that difficult. Hopefully, mine will turn around also but I haven't been re-tested as of yet. I, too, used to get some bone pain in my leg but that has gone away for awhile now so hope is there!

Congratulations!

Puddy Explorer

Thanks for posting that info, Mammasaidso. I, too, was diagnosed with osteoporosis - in November 2007. My hips were fine, but my spine was in bad shape. The doctor put me on Boniva for 3 months and I didn't have a good reaction so stopped taking it. I was diagnosed with Celiac shortly after. I read Dr. Green's book, also, and had to 'educate' my doctor about not taking any meds for the osteo the first year on the gluten-free diet. She was not happy about my decicion. I've been taking my calcium with D and magnesium religiously. I'm coming up on my one year anniversary on the gluten-free diet and am anxious to have my bone density retested. You've given me hope!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,965
    • Most Online (within 30 mins)
      7,748

    Deema99
    Newest Member
    Deema99
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.5k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jy11
      Well the conflicting results continue as the biopsy has come back negative. 😵‍💫 Waiting to discuss further but I really don’t know what to think now? Eight biopsy’s were taken from duodenum which surely should be sufficient if it was coeliac? 
    • Pasballard
      I have Celiacs and want you to be aware of the amount of weight you can potentially put on if you rely on gluten free snacks, bread etc.,they  are high in carbs.  I put on 25 lbs in a short amount of time.  Whole Foods are the best way to go but I struggle with this.  The cost of gluten free is also a problem.  I love black licorice but most have gluten.  My favorite chili seasoning as well.  The list is endless.  I take  Advil liquid gels and had no idea until I read this.  I hope you do better than I have done.  I feel I am destined to suffer daily no matter what.  My aunt didn’t take care of herself and died from complications.  I hope you can get on a good routine.
    • growlinhard1
      Thank you, I appreciate the response. I'm going to begin the gluten free diet and wait for the biopsy results. I feel fairly certain that it's the right thing for my well being. I will keep you posted.
    • Scott Adams
      The flu vaccine is indeed not 100% effective every year, as its effectiveness varies depending on how well the vaccine strains match the circulating flu viruses. However, even in years when the match is less than perfect, the flu vaccine still provides significant benefits. Studies consistently show that vaccinated individuals who contract the flu often experience milder symptoms, a lower risk of complications, and a reduced likelihood of hospitalization or death compared to those who are unvaccinated. For high-risk groups, such as the elderly, young children, and individuals with chronic health conditions, the flu vaccine remains a critical tool for reducing severe outcomes. Regarding the mention of risks associated with vaccines, it’s important to note that the flu vaccine is generally very safe for most people. Serious side effects are extremely rare, and the benefits of vaccination far outweigh the risks for the vast majority of individuals. If someone has specific concerns about vaccine safety due to medical conditions or allergies, they should consult their healthcare provider to discuss their options. As for alternative measures like a D Lamp (ultraviolet light disinfection), while these can be useful for reducing pathogens in the environment, they are not a substitute for vaccination. The flu virus spreads primarily through respiratory droplets, and personal protection measures like hand hygiene, masking, and improving indoor ventilation can complement vaccination but cannot replace its targeted immune protection.
    • trents
      Because you have already had the "gold standard" test done, and because you have some experiential evidence that removing gluten from your diet causes you to feel better, it would make sense to begin the gluten-free diet as you wait for biopsy results.
×
×
  • Create New...