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Confused Symptoms


boobybabs

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boobybabs Rookie

Have posted before regarding confusion about what is actually wrong with me....have acid reflux for sure.....but not sure what else, except I am pretty positive I have an intolerance or allergy to something...anyway diet is pretty much gluten free and on acid reflux pills......feel pretty good - have recently been to naturopath for aid.....questions....today had some dark chocolate (which is normally tolerated) after eating feeling off....breathless, mild tingling, anxiety....just feeling off - checked the label in more detail...wheat, eggs - again, do not think symptoms are severe enough to warrant celiac so maybe intolerance......have been feeling like old self...begin to think you imagined how weird and bad you were feeling before, then you get a little taste of that feeling again and boy do you remember....anyway, has anyone had the pinprick food insensitivities testing that is offered through naturopath? Had some basic stress point testing done and tested high in dairy and wheat areas - Apparently full test is 96 categories, but not sure about realiability? Anyone have any knowledge of this?


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ravenwoodglass Mentor

The skin prick test is for true allergy reactions. It will not pick up intolerances which is what celiac is. Have you asked your doctor for a full celiac panel with total IGA included? If you are gluten light that would cause a false negative so you need to be on a full gluten diet before the panel is run. If you have been gluten light you might want to consider going strictly gluten free for at least 3 months and then if you have doubt you could challenge with gluten for a week or so to see if you react.

Jestgar Rising Star
- again, do not think symptoms are severe enough to warrant celiac so maybe intolerance......

It's not a spectrum. Currently Celiac is defined as 'damage to the intestines' or DH. Gluten intolerance is and verse reaction to gluten (wheat barley rye oats) which includes Celiac disease.

How strongly you react to a bit of wheat depends on your body's chemistry, not the name given to what you are experiencing.

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    • Aretaeus Cappadocia
      I'm not saying this is what you have, but your description reminds me of Morgellons, which are not very well understood. Here is a review from a reputable source. If it seems similar to your experience, you could raise this question with your Dr.  https://my.clevelandclinic.org/health/diseases/morgellons-disease
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      Hi Trent, no dairy. Other than good quality butter. I have been lactose free for years. No corn, sugar, even seasonings and spices. I don't eat out. I cook my own food.
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      @nancydrewandtheceliacclue, are you consuming dairy? Not sure if dairy is part of the carnivore diet.
    • nancydrewandtheceliacclue
      Hello Russ! Thank you so much for your reply.  I have not had an antibody test done, ever, relating to gluten. Last year I had an allergy test done via blood draw (as my insurance wouldn't cover the skin test) but this was for pollen and grasses, not food. Even on the blood test I had extremely high levels of reactions to each allergen. Could this seasonal allergy inflammation be contributing to my celiac inflammation? I am so careful, there is no way I could ingest gluten. For example, couple of months ago I tried a cough drop that says it was gluten free. I checked ingredients, it seemed fine. But just taking one of those caused me to have nausea, vomiting, and the same extreme abdominal pain. Have you ever heard of anyone else having symptoms like mine after being diagnosed celiac and strictly gluten free? The last episode I had like this was yesterday, after I ate a certified gluten-free coconut macaroon with a little chocolate on it. I have eaten coconut and chocolate before with no issue,  so I didn't see how I could all of a sudden have such a strong response. 
    • Russ H
      The sensitivity of people with coeliac disease varies greatly between individuals. The generally accepted as safe limit for most people is 10 milligrams per day. This equates to a piece of bread the size of a small pea. Some people report that they are more sensitive than this, but others can very occasionally eat a normal gluten containing meal without reacting. I don't think that touching or throwing bread around would lead to you ingesting enough to cause a reaction. There are case reports of farmers with coeliac disease reacting to the dust from gluten-containing animal feed but they were inhaling large amounts of dust over a long period of time in barns. Perhaps you episodes are caused by a reaction to something other than gluten? Have you had your antibody levels checked to see whether you are still being exposed to gluten?
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