Jump to content

  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

I Need Hlep Please!

Bucsfan11

By Bucsfan11
in Coping with Celiac Disease

Recommended Posts

Bucsfan11 Rookie
Bucsfan11
Posted

Hey all, I was just wondering if I could get some support? I am a 22 year old college male and the other night my parents took me out for dinner, I was broke!! haha. We went to lonestar steak house and I ordered my steak with no seasoning as usual but I have been sick ever since. This was Sunday night and it is currently Tuesday late afternoon. I have had the worse diarrhea since before I was diagnosed. I was wondering how long this usually lasts? I also have the aches in the joins and fatigue, but the diarrhea is the wrose!! It was so bad today that I acually ditched all my classes for fear of driving to school and sitting through class without having an accident. Anyway, I was just wondering how long this will last or if its something else. I have also been taking metamucil fiber lately just becuae I dont get enough of it in my diet.

I also looked at lonestar's web site and it said to order steak withou seasoning which I did, but also without lemon butter, which I did NOT. I also had a cesar salad without cruttons, but jsut found out the dressing has gluten in it!!

Could this little amount of gluten have caused all this trouble??

Thanks for any hlep!!

Sean.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mamaw Community Regular
mamaw
Posted

Hi Sean

Sadly enough yes, you can get this sick.... no one can say how long it will last it depends on the individual person....While you are feeling so poorly maybe you should stop the metamucil .......some say they have found tonic water, probiotics & enzymes have helped with their symptoms. I haven't tried any of these remedies myself.I do on a regular basis take enzymes & probiotics.

Are you in Pittsburgh, Pa. If so there is a gluten-free ministry in Butler, Pa. meeting on April 2,09. If you wish more info just let me know...

My favorite saying is " You can get sick at Grandma's House so you can get sick from anywhere"... Dining out is always a crap shoot!!!! Take your chances....

I have had good luck at Red Robin, Uno's (pizza), The Longhorn Steakhouse, Smokey Bones , Boston Market.

Hope you get feeling better soon....

mamaw

eringopaint Newbie
eringopaint
Posted

Yes - that amount of gluten could be causing all the trouble. Sorry to hear about it. I too would stop the metamucil until you start to feel better... might be adding to the runs right now.

I get very ill from even the smallest amount of gluten since going gluten free, and it takes about 5 days to me to see improvement after getting gluten. I eat lots of rice and bananas, and drink tons of water. I stick to very safe foods while riding out that bad days. And I have to keep reminding myself that it will improve so that I don't get too down.

I get the fatigue and joint pains too - so I know your pain.

Hope you are feeling better soon.

erin

EazyE Newbie
EazyE
Posted

Hey, hope you feel better soon. I got sick as a dog after one bite of one Dunkin Donuts munchkin. One bite. I never really had symptoms before so this is totally shocking. I keep trying to eat out, but it seems really hard. You made really good choices, it sucks that you still got sick. Sometimes this disease is really annoying :)

Bucsfan11 Rookie
Bucsfan11
Posted
  • Author

Thank you all for the help and info. It really means a lot to me! If there are any others who would like to give more help it is much appreciated!

Sean.

  • 3 weeks later...
Bucsfan11 Rookie
Bucsfan11
Posted
  • Author

Hello again everyone!! I really appreciate everyone's imput. I am still feeling miserable though! I have been feeling sick for almost three weeks now! Can this be from eating gluten? Usually I feel better before now, but this time it is lasting forever. I have to use the restroom almost right after I eat, especially in the morning. I have been watching my gluten free diet realy good lately and it has not gotten any better, sometimes I feel its getting worse. Should I call my doctor? Thanks agin everyone, the support means so much to me.

Sean.

ravenwoodglass Mentor
ravenwoodglass
Posted
Hello again everyone!! I really appreciate everyone's imput. I am still feeling miserable though! I have been feeling sick for almost three weeks now! Can this be from eating gluten? Usually I feel better before now, but this time it is lasting forever. I have to use the restroom almost right after I eat, especially in the morning. I have been watching my gluten free diet realy good lately and it has not gotten any better, sometimes I feel its getting worse. Should I call my doctor? Thanks agin everyone, the support means so much to me.

Sean.

Yes you should call your doctor. You could have gotten food poisoning or have something else going on.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Aretaeus Cappadocia
      - Aretaeus Cappadocia replied to Jmartes71's topic in Dermatitis Herpetiformis
      2

      Skin issues

      I'm not saying this is what you have, but your description reminds me of Morgellons, which are not very well understood. Here is a review from a reputable source. If it seems similar to your experience, you could raise this question with your Dr. https://my.clevelandclinic.org/health/diseases/morgellons-disease
    2. nancydrewandtheceliacclue
      - nancydrewandtheceliacclue replied to nancydrewandtheceliacclue's topic in Introduce Yourself / Share Stuff
      4

      Celiac flare years after diagnosis

      Hi Trent, no dairy. Other than good quality butter. I have been lactose free for years. No corn, sugar, even seasonings and spices. I don't eat out. I cook my own food.
    3. trents
      - trents replied to nancydrewandtheceliacclue's topic in Introduce Yourself / Share Stuff
      4

      Celiac flare years after diagnosis

      @nancydrewandtheceliacclue, are you consuming dairy? Not sure if dairy is part of the carnivore diet.
    4. nancydrewandtheceliacclue
      - nancydrewandtheceliacclue replied to nancydrewandtheceliacclue's topic in Introduce Yourself / Share Stuff
      4

      Celiac flare years after diagnosis

      Hello Russ! Thank you so much for your reply. I have not had an antibody test done, ever, relating to gluten. Last year I had an allergy test done via blood draw (as my insurance wouldn't cover the skin test) but this was for pollen and grasses, not food. Even on the blood test I had extremely high levels of reactions to each allergen. Could this seasonal...
    5. Russ H
      - Russ H replied to nancydrewandtheceliacclue's topic in Introduce Yourself / Share Stuff
      4

      Celiac flare years after diagnosis

      The sensitivity of people with coeliac disease varies greatly between individuals. The generally accepted as safe limit for most people is 10 milligrams per day. This equates to a piece of bread the size of a small pea. Some people report that they are more sensitive than this, but others can very occasionally eat a normal gluten containing meal without reacting...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,046
    • Most Online (within 30 mins)
      10,442
    Urquhart
    Newest Member
    Urquhart
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      Skin issues

      By Aretaeus Cappadocia · Posted

      I'm not saying this is what you have, but your description reminds me of Morgellons, which are not very well understood. Here is a review from a reputable source. If it seems similar to your experience, you could raise this question with your Dr.  https://my.clevelandclinic.org/health/diseases/morgellons-disease
    • nancydrewandtheceliacclue
      Celiac flare years after diagnosis

      By nancydrewandtheceliacclue · Posted

      Hi Trent, no dairy. Other than good quality butter. I have been lactose free for years. No corn, sugar, even seasonings and spices. I don't eat out. I cook my own food.
    • trents
      Celiac flare years after diagnosis

      By trents · Posted

      @nancydrewandtheceliacclue, are you consuming dairy? Not sure if dairy is part of the carnivore diet.
    • nancydrewandtheceliacclue
      Celiac flare years after diagnosis

      By nancydrewandtheceliacclue · Posted

      Hello Russ! Thank you so much for your reply.  I have not had an antibody test done, ever, relating to gluten. Last year I had an allergy test done via blood draw (as my insurance wouldn't cover the skin test) but this was for pollen and grasses, not food. Even on the blood test I had extremely high levels of reactions to each allergen. Could this seasonal allergy inflammation be contributing to my celiac inflammation? I am so careful, there is no way I could ingest gluten. For example, couple of months ago I tried a cough drop that says it was gluten free. I checked ingredients, it seemed fine. But just taking one of those caused me to have nausea, vomiting, and the same extreme abdominal pain. Have you ever heard of anyone else having symptoms like mine after being diagnosed celiac and strictly gluten free? The last episode I had like this was yesterday, after I ate a certified gluten-free coconut macaroon with a little chocolate on it. I have eaten coconut and chocolate before with no issue,  so I didn't see how I could all of a sudden have such a strong response. 
    • Russ H
      Celiac flare years after diagnosis

      By Russ H · Posted

      The sensitivity of people with coeliac disease varies greatly between individuals. The generally accepted as safe limit for most people is 10 milligrams per day. This equates to a piece of bread the size of a small pea. Some people report that they are more sensitive than this, but others can very occasionally eat a normal gluten containing meal without reacting. I don't think that touching or throwing bread around would lead to you ingesting enough to cause a reaction. There are case reports of farmers with coeliac disease reacting to the dust from gluten-containing animal feed but they were inhaling large amounts of dust over a long period of time in barns. Perhaps you episodes are caused by a reaction to something other than gluten? Have you had your antibody levels checked to see whether you are still being exposed to gluten?
×
×
  • Create New...