I'm Not Sure

[Kylie]

I was diagnosed with Celiac 4 years ago and had a horrible time pre and post diagnosis. I had horrible GI symptoms, not any true DH symptoms per say. I have had sensitive skin my entire life; I can only put two things on my skin- petroleum jelly and hemps lotion made from Hemp. Other than that, I will break out in a horrible rash that just burns all over my body. I have changed all my soaps and clothes detergents to hypo-allergenic, stopped using scented dryer sheets, and all sorts of other things that are supposed to help. About 8 months ago I was diagnosed with tinea versicolor, which is a yeast infection on the skin. I have tried three different medications that have not worked. The infections started on my body (chest, arms, and upper thighs) and have now spread onto my face. I have huge, red, scaly blotches all over my body that eventually turn white. They are not responding to the tinea versicolor medication which makes me think it may not be tinea versicolor. To add to this, about 4 months ago I went to a dermatologist because my skins and feet had started to scale and rash. I now have a prescription lotion to try and help with the scaling, but I still look like a lizard. Do any of you think that this could be DH? Also, should I go to a GI or a dermatologist to really find out what this is and try and get it treated. The rashes hurt and are causing horrible scars on my body, and I am really worried about the ones on my face. If you have any suggestions, I would really appreciate it!

[ravenwoodglass]

I was diagnosed with Celiac 4 years ago and had a horrible time pre and post diagnosis. I had horrible GI symptoms, not any true DH symptoms per say. I have had sensitive skin my entire life; I can only put two things on my skin- petroleum jelly and hemps lotion made from Hemp. Other than that, I will break out in a horrible rash that just burns all over my body. I have changed all my soaps and clothes detergents to hypo-allergenic, stopped using scented dryer sheets, and all sorts of other things that are supposed to help. About 8 months ago I was diagnosed with tinea versicolor, which is a yeast infection on the skin. I have tried three different medications that have not worked. The infections started on my body (chest, arms, and upper thighs) and have now spread onto my face. I have huge, red, scaly blotches all over my body that eventually turn white. They are not responding to the tinea versicolor medication which makes me think it may not be tinea versicolor. To add to this, about 4 months ago I went to a dermatologist because my skins and feet had started to scale and rash. I now have a prescription lotion to try and help with the scaling, but I still look like a lizard. Do any of you think that this could be DH? Also, should I go to a GI or a dermatologist to really find out what this is and try and get it treated. The rashes hurt and are causing horrible scars on my body, and I am really worried about the ones on my face. If you have any suggestions, I would really appreciate it!

You should go back to the dermatologist. They can do a skin biopsy to the area next to the lesions and look for the antibodies. If they biopsy the lesion they are doing it wrong. It doesn't sound like DH to me but that doesn't mean it isn't gluten related as gluten can cause a number of skin issues. DH creates tiny blisters that can spead into clusters. Also DH has distinctive purpleish scars that last a really long time. Here is a link to the NIH site on DH.

Open Original Shared Link

I hope you get some relief soon.

[ang1e0251]

Don't know if this will help, my assistant's grandson has suffered with a variety of rashes over his body all of his young life. They've had him everywhere including Riley's Childrens Hospital and no relief. Recently they took his little brother off all red dye for behaviour issues and found out this child's skin cleared up also. No red dye any more!! Don't know if that affects adults too.