Jump to content

  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Ahh! So Excited!

Scout8501

Recommended Posts

Scout8501 Newbie
Scout8501
Posted

Okay, so I posted another topic "Another who needs help with results" or something like that. I received a few very helpful tips from some members. One member asked which lab processed my blood work. In my search to help me understand my blood test results, I didn't even think to go on the the lab's website to see if they had any information. Well....in my search for Quest labs, I cam accross another lab's website. If you paste the following link into your browser: Open Original Shared Link and then go to page two, there is an easy to read chart to help you understand your results. I tested IgA deficient, and negative for two other tests, but my doctor did not perform the last two tests. Her response to my results were "there are anti-bodies present, but it was low so it's negative." and couldn't look at me. I don't think she knows exactly what she is talking about, but maybe taking this chart to her will help her understand.

Also, I found Quest lab's website and was able to find lots of information to help me understand the tests that are performed in a celiac panel. Some useful links I found on their website were:

Open Original Shared Link

Open Original Shared Link (if you go here, you will see a drop down arrow to "Browse by disease" and from there you can go to Celiac Disease.

Open Original Shared Link (this link is a pdf of many gastrointestinal disorders. Celiac Disease is on page 7. It's something else to take your your doctor as well)

I hope many of you are able to find the above links useful!!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


lizard00 Enthusiast
lizard00
Posted

Thanks for posting that! I had a similar situation with my doc, she didn't understand that having an IgA deficiency would skew all the IgA tests. And she didn't run the IgG version, either.

I wish I knew then what I know now! It would've been a lot easier.

Scout8501 Newbie
Scout8501
Posted
  • Author
Thanks for posting that! I had a similar situation with my doc, she didn't understand that having an IgA deficiency would skew all the IgA tests. And she didn't run the IgG version, either.

I wish I knew then what I know now! It would've been a lot easier.

Wow, I'm so sorry you had to deal with that. I see you have been gluten free as of November 2007. Is that when they did test you for the IgG? Or did you decide to go gluten free because you knew that gluten was causing your problems?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to HectorConvector's topic in Related Issues & Disorders
      357

      Terrible Neurological Symptoms

      This may not be the cause, it's pure speculation on my part, but for 10-15 years I had a tingling/burning/electric-like shock that emanated from my right-neck upward across my the right-side of my head. I was worried about having a stroke or something so got all sorts of tests done, including an MRI, which found not much--only a minor degenerative disk in...
    2. trents
      - trents replied to Richard Rusnak's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      I was diagnosed with celiac 15 years ago. in,

      Welcome to the celiac.com community, @Richard Rusnak! The short answer is "No". Barley is a gluten-containing grain. The three gluten-containing grains are wheat, barley and rye. Barley and rye contain less gluten than wheat but still should be avoided. Understand that smaller amounts of gluten may not produce a noticeable reaction in so far as...
    3. Richard Rusnak
      - Richard Rusnak posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      I was diagnosed with celiac 15 years ago. in,

      My question is it possible that Barley is OK > I know wheat gives me stomach pain, rash, and severe diarrhea.
    4. Scott Adams
      0

      This Common Blood Pressure Drug Can Mimic Celiac Disease Symptoms

    5. Russ H
      - Russ H replied to nancydrewandtheceliacclue's topic in Super Sensitive People
      8

      Celiac flare years after diagnosis

      Bread has about 8 g of protein per 100 g, so a piece of bread weighing 125 mg contains 10 mg of gluten. Bread has a density of about 0.25 g/ml, so 0.5 ml of bread contains 10 mg of gluten - i.e. a bread ball 1 cm in diameter. I think it would be unlikely to ingest this much from throwing bread out for the birds.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,063
    • Most Online (within 30 mins)
      10,442
    Francisco1007
    Newest Member
    Francisco1007
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Scott Adams
      Terrible Neurological Symptoms

      By Scott Adams · Posted

      This may not be the cause, it's pure speculation on my part, but for 10-15 years I had a tingling/burning/electric-like shock sensation that emanated from my right-neck upward across the right-side of my head. I was worried about having a stroke or something so got all sorts of tests done, including an MRI, which found not much--only a minor degenerative disk in my neck--which I just accepted as the cause. Fast forward to when I was ~45 and I was hit with shingles in the EXACT place that this sensation would travel--I ended up with a very painful case of shingles that felt like the right-side of my head had been set on fire, and had the blistering and pain that ran along the exact path of nerves that I had felt this sensation travel along for the prior 10-15 years. For me, this was a shingles warning, and all those feelings were likely inflammation in my nerves. Needless to say I've not had this since getting my shingles vaccines at 50.  Your situation could very well be something else, but I just wanted to mention this possibility because your symptoms sound similar to what I experienced. I'm not sure if you're in the age range to get a shingles vaccine, but it may be something to consider.
    • trents
      I was diagnosed with celiac 15 years ago. in,

      By trents · Posted

      Welcome to the celiac.com community, @Richard Rusnak! The short answer is "No". Barley is a gluten-containing grain. The three gluten-containing grains are wheat, barley and rye.  Barley and rye contain less gluten than wheat but still should be avoided. Understand that smaller amounts of gluten may not produce a noticeable reaction in so far as symptoms go, but they still may be causing some inflammation in the gut. Products derived from gluten-containing grains should also be avoided, for instance malt and malt flavoring. 
    • Richard Rusnak
      I was diagnosed with celiac 15 years ago. in,

      By Richard Rusnak · Posted

      My question is it possible that Barley is OK > I know wheat gives me stomach pain, rash, and severe diarrhea.
    • Russ H
      Celiac flare years after diagnosis

      By Russ H · Posted

      Bread has about 8 g of protein per 100 g, so a piece of bread weighing 125 mg contains 10 mg of gluten. Bread has a density of about 0.25 g/ml, so 0.5 ml of bread contains 10 mg of gluten - i.e. a bread ball 1 cm in diameter. I think it would be unlikely to ingest this much from throwing bread out for the birds.  
    • trents
      Terrible Neurological Symptoms

      By trents · Posted

      Sciatica came to mind for me as well. You might want to get some imaging done on your C-spine.
×
×
  • Create New...