Help -- Is It To Late For A Biopsia For A 18 Months Old ?

[bellotas.mom]

Hi all, I am new here (but so glad to be here, I am full of questions !)

My 18 months old baby boy probably has coeliac disease.

Last december (on his birthday) he tested intollerant, on a blood test, to wheat and milk.

His anti-tranglutaminase IgA level were high (the other two came out normal.).

He was put in a gluten free diet. The vomiting/diarrhea stopped, but he have gained almost

no weight since last September (his weight as a 9 months old was the same as his current

one: 18.5 lb)

Last month we repeated the testing. Now the anti-gliadine IgA level became "weak positive"

(the other two came out normal.). Obviously we were doing something wrong on his diet.

We also tested intollerant to pork. We were sent to see an specialist.

He asked to doule check for all posible surces of gluten-contamination in his diet. The baby

is not longer attending his daycare and we are being even more careful with is diet now

(we already were !). The specialist ordered more testing including a genetic testing HLA-DQ2

(one positive one nonpresent) and 8 (nonpresent).

Now we are waiting for an appointment to perform a biopsia. But I worry that he has been

gluten--free for too long (at least a month) and he is to young.

Do you think that is worth doing the biopsia ?

Is it worth it to give the baby gluten again ? -- He will spend those 4 weeks vomiting and he is

not putting any weight. Honestly, I feel like if I were poisoning him.

PLEASE HELP !!

thanks, BM

[Genna'smom]

Not sure if I can be helpful or not but my 22 mo old daughter stopped eating and drinking and no one knew why and we ended up in several hospitals before a biopsy was done to rule of her esopgus being damaged from acid reflux when they stumbled upon early warning stages for celiac disease when everythng else said no. She has lost weight and was down to 18 lbs at 2 years old at that time...

with being gluten free I am not sure if that will scew the results we are now pursuing genetic testing to see as we still do not know for sure...

Bonnie

[bellotas.mom]

Not sure if I can be helpful or not but my 22 mo old daughter stopped eating and drinking and no one knew why and we ended up in several hospitals before a biopsy was done to rule of her esopgus being damaged from acid reflux when they stumbled upon early warning stages for celiac disease when everythng else said no. She has lost weight and was down to 18 lbs at 2 years old at that time...

with being gluten free I am not sure if that will scew the results we are now pursuing genetic testing to see as we still do not know for sure...

Bonnie

Thanks for your replay Bonnie. And I wish you and your daughter the best. It is so hard to see your baby having trouble. BM