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I Took A Risk


SGWhiskers

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SGWhiskers Collaborator

After having success at a couple of restaraunts with gluten free foods prepared on the grill, I decided to give it a try at home.

We have an infra-red side to our grill that gets to like 900 degrees and the grates look like ash not charcoal. Hubby wiped the ashes off and the steak went on without foil for the first time in a year. While bread has been on the grill a few times, nothing with known gluten has been on it since last summer and we use it at least twice a week in the summer.

I react to gluten with neuro signs (not digestive) in 45 minutes. Here it is at 20 minutes and the tummy is rumbling (I ate a bunch of coconut milk for the first time tonight too).

Anyone want to place bets if I'm going down?

I'm having second thoughts about my calculated risk now.


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tarnalberry Community Regular

Don't know, but can you replace the grating? Most grills have optionally replaceable gratings.

SGWhiskers Collaborator

No neuro symptoms what so ever. Belly gurgles stopped and I think I'm home free. I wouldn't EVER let hubby put my food on the regular temp side of the grill, but it looks like the infra-red side gets hot enough to char away the gluten.

I'm pretty excited to have that charred taste back to my meat.

Replacing the grates is a great idea for the other side of the grill. I tried scrubbing it last summer, but it never got clean enough.

ang1e0251 Contributor

Congrats on the meat! Sounds yummy! Do you think you were reacting to the guar gum in the coconut milk? I can use small amounts but like a whole pudding with it does not sit well.

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    • Aretaeus Cappadocia
      I'm not saying this is what you have, but your description reminds me of Morgellons, which are not very well understood. Here is a review from a reputable source. If it seems similar to your experience, you could raise this question with your Dr.  https://my.clevelandclinic.org/health/diseases/morgellons-disease
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      Hi Trent, no dairy. Other than good quality butter. I have been lactose free for years. No corn, sugar, even seasonings and spices. I don't eat out. I cook my own food.
    • trents
      @nancydrewandtheceliacclue, are you consuming dairy? Not sure if dairy is part of the carnivore diet.
    • nancydrewandtheceliacclue
      Hello Russ! Thank you so much for your reply.  I have not had an antibody test done, ever, relating to gluten. Last year I had an allergy test done via blood draw (as my insurance wouldn't cover the skin test) but this was for pollen and grasses, not food. Even on the blood test I had extremely high levels of reactions to each allergen. Could this seasonal allergy inflammation be contributing to my celiac inflammation? I am so careful, there is no way I could ingest gluten. For example, couple of months ago I tried a cough drop that says it was gluten free. I checked ingredients, it seemed fine. But just taking one of those caused me to have nausea, vomiting, and the same extreme abdominal pain. Have you ever heard of anyone else having symptoms like mine after being diagnosed celiac and strictly gluten free? The last episode I had like this was yesterday, after I ate a certified gluten-free coconut macaroon with a little chocolate on it. I have eaten coconut and chocolate before with no issue,  so I didn't see how I could all of a sudden have such a strong response. 
    • Russ H
      The sensitivity of people with coeliac disease varies greatly between individuals. The generally accepted as safe limit for most people is 10 milligrams per day. This equates to a piece of bread the size of a small pea. Some people report that they are more sensitive than this, but others can very occasionally eat a normal gluten containing meal without reacting. I don't think that touching or throwing bread around would lead to you ingesting enough to cause a reaction. There are case reports of farmers with coeliac disease reacting to the dust from gluten-containing animal feed but they were inhaling large amounts of dust over a long period of time in barns. Perhaps you episodes are caused by a reaction to something other than gluten? Have you had your antibody levels checked to see whether you are still being exposed to gluten?
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