Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Bloating And Constipation


pookie91260

Recommended Posts

pookie91260 Rookie

Hi,

I have been Celiac for about a year now. I still hve a lot of prbolems with, bloating, gas, constipation and loose stools. I am very dilligent about watching what I eat. I dont want to live on dulcolax and gas-ex the rest of my life. DOes anyone still ahve this problem? Does anyone have any advice?

Thanks

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ahorsesoul Enthusiast

Keeping a food and feeling journal may help you track down what exactly is bothering you. When you went gluten free did you also go dairy and soy free to let your intestines heal? If not, that might help.

Link to comment
Share on other sites
burdee Enthusiast

After I'd been diagnosed with gluten and casein intolerance (and noticed sensitivity to soy), I obsessively abstained from gluten, dairy and soy for 2 years. However, during that time I still had continual constipation, bloating and cramping pain. Fortunately I met a naturopath who believed that 'ibs' symptoms were caused by (1) gluten intolerance, (2) other food allergies, (3) intestinal bacterial infections, (4) intestinal fungal infections, and/or (5) intestinal parasites. So he recommended that I take the ELISA (blood) test for over 100 different foods and a stool test for bacteria and fungal overgrowth. Those tests revealed 2 more allergies (eggs and cane sugar) as well as a klebsiella infection. After abstaining from my 5 allergies and treating the klebsiella infection, I finally had normal (not constipated) stools FOR AWHILE (2-3 months).

However I soon returned to my 'normal' constipation, cramping and bloating. Another ELISA test for herbs and spices revealed 2 more allergies (vanilla and nutmeg), another bacterial infection (enterobacter clocae) and very low good bacteria. After eliminating those new allergens from my diet, treating the enterobacter infection and taking high dose probiotics to replenish my gut health, I again felt pretty good and had normal stools FOR AWHILE (2 months).

A later stool test revealed I had an intestinal parasite (cryptosporidium) and candida (fungus). So I treated for those. However, I did not return to completely normal stools. I also developed more symptoms of cramping pain, bloating as well as nausea. So I requested another stool test this year.

The last stool test revealed I had clostridium difficile or c-diff, which can be VERY difficult to eliminate, especially if the doctor doesn't catch the infection immediately or doesn't prescribe a strong enough, long enough treatment. Unfortunately I fought c-diff for the past 6 months (with 5 recurrences). I'm still doing a tapered treatment regimen to eliminate that bacteria. However, all my symptoms disappeared.

Best of all I haven't been constipated for almost 7 months now. (People with c-diff usually get diarrhea. However, after the diarrhea disappeared, I had (and still have) normal stools. I believe I've finally resolved the c-diff problem.

Long story short ... Constipation is a SYMPTOM that your intestines aren't healthy. Don't just treat that symptom with laxatives. If you're certain that you're not getting any sources of gluten, test for other food allergies. Guessing what causes your symptoms with elimination diets is too difficult. If you know all your other food allergies and abstain from those foods, but you still have constipation, get stool tests for intestinal bacteria, fungus and/or parasites. Parasites are a lot more common in this country than most people imagine. Also taking probiotics (with live, viable 'good' bacteria) can increase motility in your intestines, which can resolve constipation. However food allergies or bad 'gut' bugs can also cause constipation.

SUE

Hi,

I have been Celiac for about a year now. I still hve a lot of prbolems with, bloating, gas, constipation and loose stools. I am very dilligent about watching what I eat. I dont want to live on dulcolax and gas-ex the rest of my life. DOes anyone still ahve this problem? Does anyone have any advice?

Thanks

Link to comment
Share on other sites
YoloGx Rookie

I agree--a food diary is essential if you are still having troubles. You could also consider going off the common allergens at first to see if that helps--like soy, milk, eggs, coconut, potatoes, tomatoes, peppers, corn and of course sugars. I would also suggest going on either a whole grain diet or, to be more radical, a grain free diet (depending on how much trouble you are having. ). Generally its better to eat not as much carbohydrate. The paleo diet as well as the specific carbohydrate diet come to mind. I have also started a forum here I call "Back to Basics" using common sense as my guide--and for the most part staying off a heavy reliance on grain flours. Even if they aren't glutenous, they can cause a host of problems such as candida overgrowth, too much sugar leading to blood sugar problems etc. For optimum health quickly digested carbs like this should be considered a treat rather than a mainstay. Eating more vegetables no matter what should also help as well as some basic digestive enzymes that include bromelain/papain.

Bea

Link to comment
Share on other sites
pookie91260 Rookie

Thanks so much for all the great advice. I have been lactose intolerant my whole life. I discovered my soy intolerance after i was diagnosed with celiac. I am hyperglycemic so i do watch my sugars as well. I eat fruit and salad every day. never thought tomatos or peppers could be a problem. I think I will ask for the ELISA and find out what other allergies i may have. Like you i'm sure, I was so sick for so long before diagnosis, and i was eliminating the wrong food from my diet. Who wuld think a peice of toast would ever make yu sick right? after all, isnt that what you eat when you dont feel good?? I am going to look at bac to basics now and please tell me more about those enzymes bromelain and papain. again thanks so much for all help.

Dawn

Link to comment
Share on other sites
pookie91260 Rookie

Hi Bea,

Where can I find back to basics??

thanks

Dawn

Link to comment
Share on other sites
YoloGx Rookie
Hi Bea,

Where can I find back to basics??

thanks

Dawn

Here's what its called:

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,224
    • Most Online (within 30 mins)
      7,748

    Suzi374
    Newest Member
    Suzi374
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Suzi374
      And I’m anaemic, however I’m also female and vegetarian. I had an iron trans a couple of years ago however it’s starting to dwindle and taking supplements doesn’t seem to work. I can’t seem to absorb it. 
    • Suzi374
      Hi, I attended a neurologist appt last Tuesday, which I nearly cancelled, due to ongoing numbness and tingling in toes to mid foot. One of the first things he asked was ‘are you celiac’. I’m not. He thought all reflexes were ok but at the last minute decided on nerve conduction tests which were low normal. He was a little confused as he felt they should be better and tried a new set of probs, all the time, giving me multiple shocks which were not enjoyable lol. Anyway, he’s now ordered tests for myeloma, and all the vitaminy things that so many of you mention on here, also tests looking for autoimmune responses. I already have Hashimotos. Interestingly, to me, but maybe someone out there can relate or knows more than i do, although I was a nurse, but ED not ‘weird symptoms’  nurse. Anyway back to the interesting thing, I took duramine in 2013 to lose weight which caused a massive panic attack when I stopped taking it and half my hair fell out. I only took it for a week but it was horrible and I regret it. It triggered ongoing panic attacks which are horrendous. So I feel like I’m a bit crazy. Then in 2020 I had this sudden onset of horrible pain when trying to eat a cinnamon roll. It continued and I lost around 20 kgs. I had two gastroscopes and a colonoscopy and they were all normal. I scored a barium swallow and CT angiogram. All normal. The pain subsided a little but I was left with reflux and an awful feeling that I couldn’t get air when I ate some foods. This was not anxiety.  The anxiety was separate and I still maintain this. This was something to do with eating. It was like the air was thick but I wasn’t short of breath. I just had the sensation I was, then it triggered anxiety. Anyway, I had other weird things- couldn’t bend knees to shave legs in shower lol. Knees felt stiff and swollen but they weren’t. Knee WOUld swell up randomly but mri showed minimal issues. A bit of a meniscus degeneration but insignificant. Then the buzzing sensations in my head, the feeling like someone was stabbing me with something sharp. So now, I pre empted his tests, although I don’t think I’m celiac because it should have come up on gastroscopy, I’ve gone off gluten. Since Tuesday last week so 9 days. Since then I don’t appear to be as constipated, I realised I got through today without a nap and I’m not tired, maybe it’s just today and not related but I get very tired normally and sleep straight after work often, I can bend my knees and shave my legs lol, the buzzing vibrating has gone from my head, I had to call and ambulance as my heart decided we were off on a run, but we weren’t running and I’ve been a bit twitchy at bed time when trying to sleep, reflux is improving, I did get the weird suffocating feeling a bit when eating today but not as bad normall. Tingling and numbness still present and I felt like it moved up my legs a bit today but I’m a bit jittery. So I don’t know if it’s celiac disease or a gluten intolerance but I think, and it may be wishful thinking because my symptoms do make life a bit challenging, but maybe I’m feeling better. I don’t feel as cloudy. My thinking feels crisper. Like there’s no buzzing and I’m not fighting to break through the cloudiness now. I hope so much that this may help me feel a bit better moving forward. It would be a miracle as I really have struggled to work and parent and keep the house clean and I’m always anxious and exhausted.  If you get this far, please tell me if you you can relate to any of the above. Oh and tonsils out 5 years ago but before that antibiotics multiple times a year, sometimes intramuscular because they were so bad.  Op was meant to take 30 mins, it took 1.5 hours due to size of them. 
    • Peace lily
      Im still not gaining weight I’m on a gluten free diet . And still having issues with constapation started priobiocs figured it would help been over two weeks . I guess it’s going to be a long road for me .
    • Smith-Ronald
      Enlarged lymph nodes in neck and groin with celiac are not uncommon. They can take time to reduce even after going gluten-free. Monitoring is key.
    • Random.user556
      Hello! I’m sorry in advance for the long post!   Over the past few months I’ve been having a lot of issues with my stomach and have recently been referred to a Gastroenterologist. I’ve had stomach pain and issues since I was a baby. I had bad constipation (still do) and couldn’t tolerate most formula as a baby. When I was around 8 I started experiencing a lot of lower abdominal cramping (just below the belly button) and ended up missing a fair amount of school because of this. It would start about 2 hours after eating breakfast and I’d have lower abdominal cramps and feel nauseous . After a visit to my family doctor it was brushed off as separation anxiety.. or as the doctor put it “I was just a kid who wanted to stay home from school”. This stomach pain persisted all through my elementary and high school years. In fact I still experience it to this day and I’m now 24. Along with this my doctor believes I have a form of disautonomia called POTS (Postural Orthostatic Tachycardia Syndrome). I frequently feel unwell and exhausted. I also experience Raynaud’s phenomena especially during the winter months or when I’m sick. I also can not tolerate heat for the life of me.. although I’m not entirely convinced my symptoms are from POTS. The last few years I’ve also started experiencing frequent chronic sinus infections up to 5 a year most of which I require antibiotics for… Up until two years ago I have never had allergies or sinus problems. Back to my stomach issues… The last year I have been experiencing lots of stomach bloating and discomfort especially at night.. this has led to a few nights of 3am vomiting.. my doctor tested me for H. Pylori which was negative as well as full work ups to test my kidneys, liver, pancreas, gallbladder.. all of which were normal. At this time he also started me on Rabeprazole 20mg twice daily which is a Proton pump inhibitor (PPI) … as he believes it could be GERD. The PPI has not helped at all and I have since been moved down to once daily which I wait for a referral to a Gastroenterologist for an endoscopy as well as an abdominal ultrasound to verify I have no gallstones.. The pain I feel in my abdomen feels very heavy right around my bellybutton and frequently is accompanied by nausea and occasionally I also experience sharp stabbing like pain left of my belly button. I began tracking my symptoms, what I’m eating and bowel habits on an app called “My IBS” which track’s symptoms and flags foods that could be potential triggers.. all of my flagged potential triggers seem to be gluten related foods like pasta and breads. I asked to be tested for Celiac as I have an uncle with it. My doctor only sent for TtG IGA.. no other tests. My results came back negative at “<0.5 U/ml” the reference range being “ <12 U/Ml”. I am aware that total IGA should of been ordered as well but my doctor is confident we have ruled out celiac so I guess I will have to wait for the Gastroenterologist for more testing.. The other red flag for me is I have a rash that shows on both my knees and recently I have developed a similar rash behind both of my ears, on my neck and into my scalp.. there is dozens of small red and skin coloured lesions that sort of? resemble pimples but have a “head” and don’t pop (yes, i know don’t pop your pimples!) they are also itchy and sore.. I have tried washing and scrubbing them with antibacterial soap and body wash to no avail as well as ensuring I rinse my neck thoroughly after a shower, keeping my neck dry, frequently changing pillowcases and even keeping my hair off my neck as much as possible … it doesn’t have any effect on it.  In your experience does this sound like I could be experiencing celiac? I’ve debated going gluten free to see if my symptoms persist or begin to clear up.. any suggestions or help is appreciated! 
×
×
  • Create New...