Blood Results Received

[julie5914]

So, I was very surprised to have positive blood results and honestly I need to be told by somebody that this means I do in fact have Celiac before I can be gluten free. My symptoms:

-bloating

-weight gain

-sluggishness

-brain fog

-anemia (may have been because of ulcer)

-IBS symptoms - totally spastic large intestine

Here are my results:

- Gliadin IGG 106.3

- Gliadin IGA 61.2

- Edomysl IGA positive

I am a carbaholic! If this really does mean that I have celiac, can you recommend any good books for learning to be gluten free and to scare me into sticking to it?

[KaitiUSA]

Yep you have it....the EMA which you tested positive for is a very specific test and is almost unheard of to have a false positive there. Your results are overwhelmingly high.

There is a statistic thread on here now. If you do not adhere to the diet it knocks an average of 10 years off of your life and increases your chance of cancer by 40-100 times. It also increases chances of other life threatening and disabling illnesses. If that's not enough to scare you into following it then I don't know what is.

[Guest nini]

Julie, your blood test results are like mine. Unusually high. YES you have Celiac and Gluten is POISON to your body. Just remind yourself every time you start to doubt this that GLUTEN IS POISON, GLUTEN IS POISON, IF I EAT GLUTEN I AM KILLING MYSELF WITH POISON.

Your symptoms are also like mine BEFORE the celiac kicked into full gear and almost killed me. I had a year of living in hell, rushing to the emergency room, heart pain, severe vomiting and big "d", dehydration, anemia, hypoglycemia, high blood pressure, hypothyroid, high cholesterol , and on and on.

[julie5914]

Why do so many doctors feel that the blood test is not good enough? I happened to have my OB/GYN appt. yesterday, so I told her about it - she seems quite knowledgeable- her sister is celiac, but she said I need to go see a gastro specialist to make sure it is celiac because no one is sure how accurate those blood tests are for diagnosing. She mentioned that the false positives are not too high, but if they tested everyone for the anitbodies, they might have a lot more false positives. She is a great doctor and I respect her very much, so I am trying to get a specialist now to get his opininon on it. She also of course mentioned that she was probably not the best person to talk about it with, seeing as how she specializes in other things. Good news is that it is definitely not a cyst causing the trouble. Yay!

I was gluten free this weekend and didn't feel great or awful. Then I got worried that I would get a false neg. on a endoscopy (which for some reason I think will happen anyway) and started eating a bunch of gluten. I started falling asleep during my favorite show at 9pm and am now completely stopped up. I hope I get whatever tests he may want soon so that I can go back to gluten-free.

[julie5914]

Uff, I can't get in to see the specialist's nurse praticioner even until June 17th, and they want me to keep eating wheat until then! (And probably after then, cause I imagne they are not doing a scope that day!)

[egardner]

Julie, I went through what you went through with not being able to see doctors quickly and having some tell me the blood test doenst mean you have celiac disease. I cancelled my scope at the last minute and decided my symptoms were serious enough that I was goint to take action. Nearly two weeks gluten free, life is beautiful. At my follow up, the GI guy acted like he had totally agreed with me all along. Because I am responding so well to the diet, he said it was obvious I had celiac disease when you couple that with my blood tests. (similar to your results) It is so funny how doctors cant admit that sometimes you dont need to do tons of crazy tests, just go with it. Good luck to you, I know how miserable the waiting can get. And remember what Kaiti said about the cancer, I know three people in my family alone who died of rare stomach cancers, and now that is being linked to celiac disease as a result of my tests.

[Guest nini]

Julie, my GI doc based on my blood test results (like yours) told me to start the gluten-free diet IMMEDIATELY. No waiting around for scopes, no gluten challenges, no cheating ever, he said that it was definite based on my symptoms and the positive blood test result that I have celiac... I'm so thankful that he did that because I was able to start feeling better much sooner.