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Reaction To A Food Containing Barley Malt


beksmom

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beksmom Apprentice

I have celiac spru, PLEASE HELP. After eating a quarter of a nestle crunch ice cream bar yesterday afternoon and am still having problems tonight form it. I am VERY bloated and my intestines hurt to the point that just touching my skin hurts. Is this normal and if so how long am i to be like this? I was informed it contains barley malt, MAJOR OOOOPS ! I'm still learning. Hopefully someone can give me some comfort.

Thank you


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Wolicki Enthusiast

It's different for everyone. I haven't had actual gluten, but have gotten cc. My cc gastro issues usually clear up in about 3 days, and the fatigue and fog linger for weeks.

Eat simply, drink lots of water and don't forget your probiotics. I hope it passes quickly.

beksmom Apprentice

What is cc? And was your abdomen severly tender?

Wolicki Enthusiast

sorry, cross contamination. It means that gluten somehow just came into contact with something I ate. Yes, a tender abdomen is a common reaction. The longer I go without gluten in my system, the worse the reaction is. Last time, I had major D, pain, heartburn, extreme fatigue, joint pain and some brain fog. Most of the major pain went away by day 3.

I've seen that several members recommend Pepto Bismol when you get glutened. I haven't tried it because Pepto has always made me barf :blink:

Reba32 Rookie

read ingredients labels on everything you plan to put in your mouth. Most mass produced candy unfortunately is going to have either wheat or barley in it. Or will be cross contaminated from being produced on the same machinery as something else with wheat or barley.

Your symptoms could last up to a week or more. If you have constipation with your symptoms, I wouldn't recommend Pepto or any other "pink stuff" because bismuth is a stool hardener. If you have diarrhea, it may help with that though.

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      I'm not saying this is what you have, but your description reminds me of Morgellons, which are not very well understood. Here is a review from a reputable source. If it seems similar to your experience, you could raise this question with your Dr.  https://my.clevelandclinic.org/health/diseases/morgellons-disease
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      Hi Trent, no dairy. Other than good quality butter. I have been lactose free for years. No corn, sugar, even seasonings and spices. I don't eat out. I cook my own food.
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      @nancydrewandtheceliacclue, are you consuming dairy? Not sure if dairy is part of the carnivore diet.
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      Hello Russ! Thank you so much for your reply.  I have not had an antibody test done, ever, relating to gluten. Last year I had an allergy test done via blood draw (as my insurance wouldn't cover the skin test) but this was for pollen and grasses, not food. Even on the blood test I had extremely high levels of reactions to each allergen. Could this seasonal allergy inflammation be contributing to my celiac inflammation? I am so careful, there is no way I could ingest gluten. For example, couple of months ago I tried a cough drop that says it was gluten free. I checked ingredients, it seemed fine. But just taking one of those caused me to have nausea, vomiting, and the same extreme abdominal pain. Have you ever heard of anyone else having symptoms like mine after being diagnosed celiac and strictly gluten free? The last episode I had like this was yesterday, after I ate a certified gluten-free coconut macaroon with a little chocolate on it. I have eaten coconut and chocolate before with no issue,  so I didn't see how I could all of a sudden have such a strong response. 
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