Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

A Different Life...depressing Sometimes.


jaykay

Recommended Posts

jaykay Newbie

Hi everyone,

I am not positive if I have an allergy for severe sensitivity to wheat...but I stopped eating bread/pasta/cereal/cracekrs, etc, and my skin cleared up for the first time in years, and my GI issues improved 90%. It is like a prayer was answered, because NO doctors could help me, and I went to a lot. They all said IBS. Psh.

I know I am lactose intolerant but I just use lactaid milk. I tried so many acne meds and none helped until I cut out most wheat. My GI system is very sensitive...I can't eat the wheat based foods, or milk, but I also cannot eat avocados (especially WITH bananas...it caused me to get very sick when the two were eaten together), I can't eat a lot of corn or beans, either.

It is depressing to me sometimes when I DO want to eat normally with my friends but if I don't stick to my fish/vegetables or whatever I know I will pay. My gut is not 100% healthy, still. But my life is a lot more manageable now, knowing what I choose to NOT eat helps me feel better. I finally don't feel sick at least ALL the time.

But there are times my gut still acts up and it can be embarassing if I have to run to the bathroom. Although my quality of life has greatly improved, I don't like feeling bad about it sometimes, still.

Can you give me any advice? I am really open to hearing from everyone and how you cope/deal with having such a difficult issue in your life. I am just so happy when I am feeling healthy, but it really limits the "food" part of my life. I am completely willing to give up many foods, but sometimes you think you've done well but still end up with GI issues, and that's the part that depresses me. Especially now that I'm dating again! I have to be sooo careful, especially if we go out to dinner!

Thanks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tictax707 Apprentice

Hi everyone,

I am not positive if I have an allergy for severe sensitivity to wheat...but I stopped eating bread/pasta/cereal/cracekrs, etc, and my skin cleared up for the first time in years, and my GI issues improved 90%. It is like a prayer was answered, because NO doctors could help me, and I went to a lot. They all said IBS. Psh.

I know I am lactose intolerant but I just use lactaid milk. I tried so many acne meds and none helped until I cut out most wheat. My GI system is very sensitive...I can't eat the wheat based foods, or milk, but I also cannot eat avocados (especially WITH bananas...it caused me to get very sick when the two were eaten together), I can't eat a lot of corn or beans, either.

It is depressing to me sometimes when I DO want to eat normally with my friends but if I don't stick to my fish/vegetables or whatever I know I will pay. My gut is not 100% healthy, still. But my life is a lot more manageable now, knowing what I choose to NOT eat helps me feel better. I finally don't feel sick at least ALL the time.

But there are times my gut still acts up and it can be embarassing if I have to run to the bathroom. Although my quality of life has greatly improved, I don't like feeling bad about it sometimes, still

Can you give me any advice? I am really open to hearing from everyone and how you cope/deal with having such a difficult issue in your life. I am just so happy when I am feeling healthy, but it really limits the "food" part of my life. I am completely willing to give up many foods, but sometimes you think you've done well but still end up with GI issues, and that's the part that depresses me. Especially now that I'm dating again! I have to be sooo careful, especially if we go out to dinner!

Thanks.

Welcome!! My first post was very similar to yours. I totally understand your frustrations about trying so hard and still ending up with (sometimes embarrassing) GI issues. I also understand the anxiety because of dating too! My advice?

1) Pat yourself on the back for making the commitment to your health and figuring out what you can do to make it better. And I mean seriously! Do something special for yourself - buy a new pair of shoes, an outfit, get a mani/pedi, a day in the park in the sun with a book... SOMEthing. Do this every now and then - be sure not to lose sight of the positive! I am beginning to find that having a little reward system every now and then actually does help alleviate some of the anger & sadness I feel when dealing with my food issues.

2) Remember the big picture - which you seem to be already doing... This is not an easy road, but you are totally worth it. Keep sticking to your guns. Also remember that these food issues don't define who you are. When you want to eat "normally" with friends, you can find your own sort of "normal", an easy go-to "normal" food that your body can handle with a few questions to the server at a restaurant along with showing them your gluten free/casein free dining cards (I got mine from triumph dining - very helpful!). Having it not be "such a big deal" is such a relief, but does take a little bit of time to get the hang of talking to servers effectively. Ultimately the good will outweigh the bad, and time will make this more of a natural choice.

Hang in there!! :D

luvs2eat Collaborator

Feeling better is the best thing... but allow yourself to grieve a little too. Even 9 years later... sometimes I look at the Chinese buffet restaurant and feel a pang of loss... even while I'm telling myself that I'm SO much better off not being able to eat so many things that are really BAD for me.

If you're not feeling 100% w/ all the stuff you've cut out... consider going completely gluten free and see how much better you feel!

CMCM Rising Star

Hi everyone,

I am not positive if I have an allergy for severe sensitivity to wheat...but I stopped eating bread/pasta/cereal/cracekrs, etc, and my skin cleared up for the first time in years, and my GI issues improved 90%. It is like a prayer was answered, because NO doctors could help me, and I went to a lot. They all said IBS. Psh.

I know I am lactose intolerant but I just use lactaid milk. I tried so many acne meds and none helped until I cut out most wheat. My GI system is very sensitive...I can't eat the wheat based foods, or milk, but I also cannot eat avocados (especially WITH bananas...it caused me to get very sick when the two were eaten together), I can't eat a lot of corn or beans, either.

It is depressing to me sometimes when I DO want to eat normally with my friends but if I don't stick to my fish/vegetables or whatever I know I will pay. My gut is not 100% healthy, still. But my life is a lot more manageable now, knowing what I choose to NOT eat helps me feel better. I finally don't feel sick at least ALL the time.

But there are times my gut still acts up and it can be embarassing if I have to run to the bathroom. Although my quality of life has greatly improved, I don't like feeling bad about it sometimes, still.

Can you give me any advice? I am really open to hearing from everyone and how you cope/deal with having such a difficult issue in your life. I am just so happy when I am feeling healthy, but it really limits the "food" part of my life. I am completely willing to give up many foods, but sometimes you think you've done well but still end up with GI issues, and that's the part that depresses me. Especially now that I'm dating again! I have to be sooo careful, especially if we go out to dinner!

Thanks.

I wish I had a "magic bullet" bit of advice....but it took me a certain length of time to come to terms with how I have to eat now. I eventually reached a place where I know exactly what I can eat to feel well, and I've made peace with that. As a former emotional eater, that was hard to break but I think you'll eventually get there. I think it all changed from "I can't eat this" to the more peaceful attitude of "I could eat that but I choose not to eat it because it makes me sick."

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Aretaeus Cappadocia replied to Aretaeus Cappadocia's topic in Gluten-Free Recipes & Cooking Tips
      2

      Zaalouk moroccan eggplant salad

    2. - Scott Adams replied to Aretaeus Cappadocia's topic in Gluten-Free Recipes & Cooking Tips
      2

      Zaalouk moroccan eggplant salad

    3. - Scott Adams replied to Richard Rusnak's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      I was diagnosed with celiac 15 years ago.

    4. - Scott Adams replied to HectorConvector's topic in Related Issues & Disorders
      357

      Terrible Neurological Symptoms

    5. - trents replied to Richard Rusnak's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      I was diagnosed with celiac 15 years ago.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,061
    • Most Online (within 30 mins)
      10,442

    Francisco1007
    Newest Member
    Francisco1007
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      oops. I didn't see that before posting or I would have at least referenced it. The two recipes are pretty similar, but I think the newer one is a little simpler/faster. Next time though I will search more before posting.
    • Scott Adams
      I love Middle Eastern food and eggplant, and here is another version we shared some time back:  
    • Scott Adams
      The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
    • Scott Adams
      This may not be the cause, it's pure speculation on my part, but for 10-15 years I had a tingling/burning/electric-like shock sensation that emanated from my right-neck upward across the right-side of my head. I was worried about having a stroke or something so got all sorts of tests done, including an MRI, which found not much--only a minor degenerative disk in my neck--which I just accepted as the cause. Fast forward to when I was ~45 and I was hit with shingles in the EXACT place that this sensation would travel--I ended up with a very painful case of shingles that felt like the right-side of my head had been set on fire, and had the blistering and pain that ran along the exact path of nerves that I had felt this sensation travel along for the prior 10-15 years. For me, that time period was a shingles pre-cursor, and all those feelings were likely inflammation in my nerves. Needless to say I've not had this since getting my shingles vaccines at 50.  Your situation could very well be something else, but I just wanted to mention this possibility because your symptoms sound similar to what I experienced. I'm not sure if you're in the age range to get a shingles vaccine, but it may be something to consider.
    • trents
      Welcome to the celiac.com community, @Richard Rusnak! The short answer is "No". Barley is a gluten-containing grain. The three gluten-containing grains are wheat, barley and rye.  Barley and rye contain less gluten than wheat but still should be avoided. Understand that smaller amounts of gluten may not produce a noticeable reaction in so far as symptoms go, but they still may be causing some inflammation in the gut. Products derived from gluten-containing grains should also be avoided, for instance malt and malt flavoring. 
×
×
  • Create New...