Jump to content

  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Entero Results, Gluton Senstive? What Do I Do Now?

bahstonsox

Recommended Posts

bahstonsox Newbie
bahstonsox
Posted

I had a blood test come back that was described by my doctor as "Borderline Celiac" .. He had me come back for more blood test and then said everything was fine. Strangely enough I have been having some symptoms that could be Gluton related which was why I took a blood test in the first place (Numbness in legs, foggy brain, stomach issues).

I had an EntroLab test done and my results are as follows:

Fecal Anti-Gliadin IGA: 14 Units (Normal is less than 10)

Fecal Transglutaminase IGA: 11 Units (Normal is less than 10)

Fecal Anti-casein IGA: 11 Units (Normal range is lees than 10)

HLA-DQB 1 Molecular Allele 1 0202

HLA-DQB 1 Molecular Alele 2 0609

Seroligcal equivalent HLA-DQ 2,1 (Subtype 2,6)

I read the interpretations by Enterolab but am not sure what this means and what to do now. It indicates I am Gluton Sensitive but does that mean I just sensitive and not Celiac?.

Confused and need help:)..

Thanks

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

What you do now is get on the diet strictly. It makes no difference whether you are 'celiac' or 'gluten intolerant' both need to be just as strict. In additon you do have one of the main celiac associated genes, DQ2.

Skylark Collaborator
Skylark
Posted

Stop eating gluten. I bet you feel 100% better off the stuff.

You're not celiac... yet. It's possible for folks who are gluten-sensitive and continue to eat wheat to develop full-blown celiac disease which you don't want. The celiac autoimmunity predisposes you to other autoimmune problems.

bahstonsox Newbie
bahstonsox
Posted
  • Author

Stop eating gluten. I bet you feel 100% better off the stuff.

You're not celiac... yet. It's possible for folks who are gluten-sensitive and continue to eat wheat to develop full-blown celiac disease which you don't want. The celiac autoimmunity predisposes you to other autoimmune problems.

So your saying I am not yet Celiac based on these results?..

What do my results indicate outside of what the report says?

Do I need to be 100% strict or can I be flexible as my results don't indicate a severe case?

ravenwoodglass Mentor
ravenwoodglass
Posted

So your saying I am not yet Celiac based on these results?..

What do my results indicate outside of what the report says?

Do I need to be 100% strict or can I be flexible as my results don't indicate a severe case?

I had an EntroLab test done and my results are as follows:

Fecal Anti-Gliadin IGA: 14 Units (Normal is less than 10)

Fecal Transglutaminase IGA: 11 Units (Normal is less than 10)

Fecal Anti-casein IGA: 11 Units (Normal range is lees than 10)

HLA-DQB 1 Molecular Allele 1 0202

HLA-DQB 1 Molecular Alele 2 0609

Seroligcal equivalent HLA-DQ 2,1 (Subtype 2,6)

While your numbers are not sky high your numbers are positive. Yes you could be celiac as you do have one of the main celiac genes. No you should not be 'flexible' with the diet. A postive is a positive. Whether you are gluten intolerant, boy I do hate that term as it makes people feel it is less serious, or you are celiac doesn't matter. You do need to be on the diet and you should also eliminate casein, milk protein, as well.

You could also give Enterolab a call or an email for clarification if you need to.

Skylark Collaborator
Skylark
Posted

So your saying I am not yet Celiac based on these results?..

What do my results indicate outside of what the report says?

Do I need to be 100% strict or can I be flexible as my results don't indicate a severe case?

Your doctor was actually very clear when he said "borderline celiac". Celiac disease is a process. You start with a genetic gluten sensitivity, and over time your body develops autoimmunity from the gluten sensitivity. The autoimmunity damages your gut and you get lots of chronic health problems from malabsorption and autoimmune damage.

Your test results suggest you are early in the process of developing celiac disease. The only way to make it stop is go off gluten completely and permanently. Continuing to eat it has a very real possibility of giving you a lot of nasty autoimmunity and pushing you from "borderline celiac" to "unquestionably celiac".

bahstonsox Newbie
bahstonsox
Posted
  • Author

Thanks,

I appreciate the candor.

How certain can I be that my results are correct based on the enterolab results?

Also would any suggest doing a biospsy so the answer is more clear?

I have never had a health issue so this is all new to me and somewhat scary.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


WheatChef Apprentice
WheatChef
Posted

Thanks,

I appreciate the candor.

How certain can I be that my results are correct based on the enterolab results?

Also would any suggest doing a biospsy so the answer is more clear?

I have never had a health issue so this is all new to me and somewhat scary.

There's no real concise answer to your first question. They're mainly used as a guideline as opposed to a definite result.

A biopsy might give you more concrete yes answer yet at this point it's likely as a "weak" celiac the damage may not be sufficient enough at this point to be observable through just a few biopsies. A biopsy may buy you some piece of mind but based on your genes even if you get a negative result on the biopsy you should consider doing a trial of the gluten-free diet.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to ThomasA55's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Iron loss and potential celiac.

      Yes, it does. And joint pain is another celiac symptom that is now well-recognized.
    2. ThomasA55
      - ThomasA55 replied to ThomasA55's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Iron loss and potential celiac.

      Does my iron loss sound like celiac to you?
    3. trents
      - trents replied to ThomasA55's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Iron loss and potential celiac.

      Being as how you are largely asymptomatic, I would certainly advise undertaking a gluten challenge in order to get formal testing for celiac disease. We have many forum participants who become violently ill when they undertake a gluten challenge and they therefore can't carry through with it. That doesn't seem to be the case with you. The reason I think it...
    4. ThomasA55
      - ThomasA55 replied to ThomasA55's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Iron loss and potential celiac.

    5. trents
      - trents replied to ThomasA55's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Iron loss and potential celiac.

      Welcome to the celiac.com community, @ThomasA55! Before I give my opinion on your question about whether or not you should undergo a gluten challenge, I would like to know how you react when you get a good dose of gluten? Are you largely asymptomatic or do you experience significant illness such as nausea and diarrhea? You mentioned intermittent joint...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,086
    • Most Online (within 30 mins)
      10,442
    Joseph01
    Newest Member
    Joseph01
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      Iron loss and potential celiac.

      By trents · Posted

      Yes, it does. And joint pain is another celiac symptom that is now well-recognized. 
    • ThomasA55
      Iron loss and potential celiac.

      By ThomasA55 · Posted

      Does my iron loss sound like celiac to you?
    • trents
      Iron loss and potential celiac.

      By trents · Posted

      Being as how you are largely asymptomatic, I would certainly advise undertaking a gluten challenge in order to get formal testing for celiac disease. We have many forum participants who become violently ill when they undertake a gluten challenge and they therefore can't carry through with it. That doesn't seem to be the case with you. The reason I think it is important for you to get tested is that many or most people who don't have a formal diagnosis find it difficult to be consistent with the gluten-free diet. They find ways to rationalize that their symptoms are due to something other than celiac disease . . . especially when it becomes socially limiting.  The other factor here is by being inconsistent with the gluten free diet, assuming you do have celiac disease, you are likely causing slow, incremental damage to your gut, even though you are largely asymptomatic. It can take years for that damage to get to the point where it results in spinoff health problems. Concerning genetic testing, it can't be used for diagnosis, at least not definitively. Somewhere between 30 and 40% of the general population will have one or both of the two genes known to be associated with the development of active celiac disease. Yet, only about 1% of the general population will develop active celiac disease. But the genetic testing can be used as a rule out for celiac disease if you don't have either gene. But even so, that doesn't eliminate the possibility of having NCGS (Non Celiac Gluten Sensitivity).
    • ThomasA55
      Iron loss and potential celiac.

      By ThomasA55 · Posted

    • trents
      Iron loss and potential celiac.

      By trents · Posted

      Welcome to the celiac.com community, @ThomasA55! Before I give my opinion on your question about whether or not you should undergo a gluten challenge, I would like to know how you react when you get a good dose of gluten? Are you largely asymptomatic or do you experience significant illness such as nausea and diarrhea? You mentioned intermittent joint pain before you began experimenting with a low gluten diet. Anything else?
×
×
  • Create New...