Celiac.com Sponsor (A1):


Join eNewsletter


Celiac.com Sponsor (A1-m):



Join eNewsletter

Archived

This topic is now archived and is closed to further replies.

bahstonsox

To Biospsy Or Not To Biopsy? That Is The Question.

Recommended Posts

I just got my Enterlab results this past week and have started a gluton free diet. I am wondering if I should wait, continue to eat gluton and go for a biopsy?

Is there any benefit outside of peace of mind to a biopsy? (Insurance etc..)

Is the procedue dangerous in any way?

Should I just consider my results below from EnteroLab as final and just continue my gluten-free diet without ever doing a biopsy?

Any advice would be great:)

A) Gluten Sensitivity Stool and Gene Panel Complete *Best test/best value

Fecal Anti-gliadin IgA 14 Units (Normal Range is less than 10 Units)

Fecal Anti-tissue Transglutaminase IgA 11 Units (Normal Range is less than 10 Units)

Quantitative Microscopic Fecal Fat Score Less than 300 Units (Normal Range is less than 300 Units)

Fecal Anti-casein (cow

Share this post


Link to post
Share on other sites

Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8):


I'll let someone else chime in on your genes. If you have a celiac gene then I would probably have the scope done. It might be needed for the future to get the kind of monitoring my your doctors that you deserve.


2010- Gluten, Soy, Corn, Dairy, Eggs, Nut free. Sugar, non-gluten grains lite(Yes, still plenty to eat!)

2010-Doctor diagnosed me as Celiac then took diagnoses back, then said avoid gluten for life

2009

Share this post


Link to post
Share on other sites

For starters, the gene test is done to RULE OUT celiac, not to rule it in. Because more than 30% of the population has either or both DQ2 and DQ8, doctors use gene testing to rule out whether a person has celiac or gluten sensitivity. Being positive for either gene just means that you have the disposition to become a celiac, but that might never happen.

Dr. Alessio Fasano, one of the leading experts in celiac disease, recently spoke at a celiac conference at Stanford University. He stated that he is about to publish an article that informs doctors and patients that a biopsy may not be necessary for a diagnosis of celiac. He says that there are five tests for celiac, and if you are positive for FOUR of them, you don't have to perform the fifth--so, because biopsies are notoriously incorrect, he says that the biopsy should be the test that is not done. You see, many doctors don't know how to perform one correctly to test for celiac, sometimes the damage is beyond the reach of the scope, and oftentimes the pathologist is not trained well enough to perform the pathology. Therefore, if you 1) have symptoms, 2) have one or both genes, 3) have a positive blood test for celiac, and 4) the symptoms resolve on a gluten-free diet, BINGO! You have celiac. No need for a biopsy.

Share this post


Link to post
Share on other sites

You should continue to eat gluten and go for a proper celiac blood panel from your doctor. Enterolab results are not validated well enough to make any conclusions about celiac disease from them.

Share this post


Link to post
Share on other sites

It is a personal choice.

With the insurance, they really want to know what illnesses you have so in the future, if you change insurance companies, they could refuse to pay for previous documented problems. On the other had, without the testing insurance companies can refuse to pay for some treatments because it's not documented that you have a disease. It is set up to the insurance companies advantage, not the patients. Catch 22.

Not to say that you shouldn't push for testing. Some people need that hard-copy diagnosis to avoid gluten. Something tangible could help. You need to decide if you need an authority figure to tell you to go gluten free or if going on the diet and feeling good is enough for you.


1960s-had symptoms-could have been before but don't remember

1970s-told had colitis or nervous stomach-was given phenobarbital, felt great but still had symptoms

Me, dd and ds diagnosed with Lactose Intolerance

2000-osteopenia

2001-had stroke because of medications I was given

June 2003-saw Chiropractor who specialized in nutrition: Celiac Disease not Lactose Intolerance, went gluten free with once in awhile cheating, off soy and dairy for about 6 months

June 2003-found excellent doctor for fibromyalgia (who has found out she has Celiac Disease)

May 2006-went gluten free with NO cheating-excellent! Made all the difference in the world

Share this post


Link to post
Share on other sites