Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

New Here


goldfinger

Recommended Posts

goldfinger Rookie

Hello.

I am new here. I do not have celiacs but I was looking around for information on gluten free foods and this site popped up. Let me tell you a little about myself:

I am a 47 year old female, happily (re) married for the past eight years. Together my hubby and I have two sons, both in their 20's and out of the house. I am originally from PA and now live in south carolina. I have been a nurse for the past 28 years; starting out as an LPN, getting an associate degree in nursing and three years ago a Bachelors degree. I have worked in various settings, medsurg, telemetry, emergency room, nursing home, private duty and currently in Hospice. When I am not working hubby and I enjoy traveling, I enjoy crafts,spending time with friends, computer, needlework, camping (which I don't do to much of anymore)

This summer and the past 4 I have spent a week being the camp nurse for 80+ girls and leaders.

I love all animals, tho I am partial to cats. My present cat, I have had several in the past, is a 18 month old male tabby. His name is Nephi, we obtained him from the animal shelter, when we were looking he jumped up on his box and did this thing with his paws.... like come here. we were hooked.

The reason I am here is because the more I read about gluten free diet the more I am intrigued at it's benefits. So although I have not been diagnosed with any celiac tendencies; I feel after reading many of the post I may have a problem with gluten.

I was diagnosed with severe hypothyrodism when I was a year old and have many of the maladies assoc with it... depression, obesity, thick dry skin, thinning hair. I and hubby also feel I may be menopausal... I refuse to take HRT. Lately I am very moody, tearful, cranky and more flakey than usual. well that is me in a nut shell.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

Hello.

I am new here. I do not have celiacs but I was looking around for information on gluten free foods and this site popped up. Let me tell you a little about myself:

I am a 47 year old female, happily (re) married for the past eight years. Together my hubby and I have two sons, both in their 20's and out of the house. I am originally from PA and now live in south carolina. I have been a nurse for the past 28 years; starting out as an LPN, getting an associate degree in nursing and three years ago a Bachelors degree. I have worked in various settings, medsurg, telemetry, emergency room, nursing home, private duty and currently in Hospice. When I am not working hubby and I enjoy traveling, I enjoy crafts,spending time with friends, computer, needlework, camping (which I don't do to much of anymore)

This summer and the past 4 I have spent a week being the camp nurse for 80+ girls and leaders.

I love all animals, tho I am partial to cats. My present cat, I have had several in the past, is a 18 month old male tabby. His name is Nephi, we obtained him from the animal shelter, when we were looking he jumped up on his box and did this thing with his paws.... like come here. we were hooked.

The reason I am here is because the more I read about gluten free diet the more I am intrigued at it's benefits. So although I have not been diagnosed with any celiac tendencies; I feel after reading many of the post I may have a problem with gluten.

I was diagnosed with severe hypothyrodism when I was a year old and have many of the maladies assoc with it... depression, obesity, thick dry skin, thinning hair. I and hubby also feel I may be menopausal... I refuse to take HRT. Lately I am very moody, tearful, cranky and more flakey than usual. well that is me in a nut shell.

Hi and welcome to the forum. Pull up a chair and make yourself at home. :) You will find discussions here on practically every subject you can think of (and maybe some you hadn't even thought of :o ).

Don't be afraid to post a new topic if you don't find it covered, or add to another topic. Any questions you have, just fire away and I am sure you will get a response.

goldfinger Rookie

Hi and welcome to the forum. Pull up a chair and make yourself at home. :) You will find discussions here on practically every subject you can think of (and maybe some you hadn't even thought of :o ).

Don't be afraid to post a new topic if you don't find it covered, or add to another topic. Any questions you have, just fire away and I am sure you will get a response.

Thank you :)

OptimisticMom42 Apprentice

Because you are a caretaker for so many others, I think that learning about being gluten free is a really good idea. If you are caring for 80 girls chances are that at least one of them needs to be gluten free and that if she gets sick you will be called on to make it less uncomfortable for her.

Welcome to the forum, RA

goldfinger Rookie

Because you are a caretaker for so many others, I think that learning about being gluten free is a really good idea. If you are caring for 80 girls chances are that at least one of them needs to be gluten free and that if she gets sick you will be called on to make it less uncomfortable for her.

Welcome to the forum, RA

Hmmm never thought of it that way:) You know I have never in my 28 years have a pt with a celiac dx. However, I do have a friend who with it, she and I talk about finding specialty foods all the time.

d

mushroom Proficient

Hmmm never thought of it that way:) You know I have never in my 28 years have a pt with a celiac dx. However, I do have a friend who with it, she and I talk about finding specialty foods all the time.

d

Ya know, when I asked my rheumatologist about celiac and RA, he said he had never yet had a patient with celiac disease. I asked him if he had ever tested any of them :o , and he said, well, no he hadn't. He looked kinda shocked when I pointed out to him that 97% of celiacs are undiagnosed because no one ever thinks to test them. He then went on to say that he was not aware of any connection between celiac and RA :huh::unsure: so I have brought a printout of medical research on this issue to take to my appointment with him :rolleyes:

Since the numbers are now running higher than 1 in 100 (according to which researcher you believe), if you have had more than 100 patients you have probably had at least one who was celiac, even though neither of you knew it.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - nancydrewandtheceliacclue replied to nancydrewandtheceliacclue's topic in Super Sensitive People
      12

      Celiac flare years after diagnosis

    2. - Aretaeus Cappadocia replied to nancydrewandtheceliacclue's topic in Super Sensitive People
      12

      Celiac flare years after diagnosis

    3. - Aretaeus Cappadocia replied to nancydrewandtheceliacclue's topic in Super Sensitive People
      12

      Celiac flare years after diagnosis

    4. - Peace lily commented on Scott Adams's article in Latest Research
      2

      New Study Reveals How the Immune System Learns Which Foods Are Safe to Eat

    5. - nancydrewandtheceliacclue replied to nancydrewandtheceliacclue's topic in Super Sensitive People
      12

      Celiac flare years after diagnosis

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,061
    • Most Online (within 30 mins)
      10,442

    Francisco1007
    Newest Member
    Francisco1007
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • nancydrewandtheceliacclue
      @Aretaeus Cappadocia and @Russ H thank you both for your helpful advice and information. I haven't seen a GI in years. They never helped me aside from my inital diagnosis. All other help has come from my own research, which is why I came here. I will be even more careful in the future. 
    • Aretaeus Cappadocia
      @nancydrewandtheceliacclue, you are welcome. After looking at this thread again, I would like to suggest that some of the other comments from @Russ H are worth following up on. The bird-bread may or may not be contributing to what you are experiencing, but it seems unlikely to be the whole story. If you have access to decent healthcare, I would write down your experiences and questions in outline form and bring this to your Dr. I suggest writing it down so you don't get distracted from telling the Dr everything you want to say while you have their attention.
    • Aretaeus Cappadocia
      @Russ H, I partly agree and partly disagree with you. After looking at it again, I would say that the slick graphic I posted overestimates the risk. Your math is solid, although I find estimates of gluten in white bread at 10-12% rather than the 8% you use. Somewhat contradicting what I wrote before, I agree with you that it would be difficult to ingest 10 mg from flinging bread.  However, I would still suggest that @nancydrewandtheceliacclue take precautions against exposure in this activity. I'm not an expert, I could easily be wrong, but if someone is experiencing symptoms and has a known exposure route, it's possible that they are susceptible to less than 10 mg / day, or it is possible that there is/are other undetected sources of exposure that together with this one are causing problems. At any rate, I would want to eliminate any exposure until symptoms are under control before I started testing the safety of potentially risky activities. Here is another representation of what 10 mg of bread would look like. https://www.glutenfreewatchdog.org/news/wp-content/uploads/2019/10/10mgGlutenCrumbsJules.jpg Full article that image came from: https://www.glutenfreewatchdog.org/news/what-does-10-mg-of-gluten-look-like/
    • nancydrewandtheceliacclue
      @Aretaeus Cappadocia thank you for your reply and the link, that is very helpful to get a visual of just how small of an amount can cause a reaction. I know I am not consuming gluten or coming into contact with gluten from any other source. I will stop touching/tossing bread outside! My diet has not changed, and I do not have reactions to the things I am currently eating, which are few in number. My auto immune reaction just seems so severe. The abdominal pain is extreme. It takes a lot out of me. I guess I will be this way for the rest of my life if I ever happen to come into contact with gluten? I appreciate the help. 
    • Jmartes71
      Thankyou I did find out the Infectious disease is the route to go rather than dermatologist. I did reach out to two major hospitals and currently waiting on approval for one of them in Infectious Diseases to call me. I also did have implants ( I didn't know and sense not properly in my medical. Neither did surgeon)in 2006 and there was a leak 2023 during the same time I was dealing with covid, digestive issues, eyes and skin.Considering I " should  be fine" not consuming gluten/wheat, taking vitamins for sibo and STILL feeling terrible.It has to be parasites. I also take individual eye drops prescribed, could there be an issue there? Anyways my pcp thinks I need therapy because again they don't acknowledge my digestive issues because in my records it shows im fine, hintz the reason I had to go back to bay area hospital:(  I thought skin issues maybe sibo related but I feel and have seen and seriously trying not to think about it because it's disgusting. 
×
×
  • Create New...