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Good News, I Got An Earlier Appt


Aphreal

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Aphreal Contributor

I was going to have to wait till Oct to see the Gastro. (remember I think I may have found a really good one that listens to her patients). There was an opening Sept 7 so I took it. (leave 8th for colorado). Today they called and they had an opening this friday!! I may get my testing in before I leave for Colorado.

I had another attack. I ordered the exact same *gluten-free* items from the same place and got the same reaction.... corn tortillas. Looking back, the only corn products I eat is corn or a few fritos which is fine but these two times I ate quite a bit of corn tortilla. hmmmm

Anyway, this is good news. Plus I hadn't had dental care in 20 years and I only have minimal work to be done (after they got all the deep root cleaning done* OUCH.) the stinky part is they have to drill out old fillings. boooo Cracks in them.

So, after not having scopes for 22 years and living with the same blanket IBS diagnosis...for that long.... Looks like I might get some real answers. I am hopeful. What I really want to know more than anything is how much damage has been done so I know how strict I need to be and with what ingredients. Todays episode was in public. How miserable.


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Aphreal Contributor

Well I was excited :) I surely didn't want to wait so long to see her. I hope she is as good as she is made out to be.

kareng Grand Master

Don't you love it when people cancel appointments? Good luck.

Aphreal Contributor

Esp for this one. I was also warned the office wait is very long even when you DO get in. She spends a good amt of time with each patient. Since that is the case, I really don't mind. I know when it's my turn I will get the same treatment.

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    • Aretaeus Cappadocia
      @nancydrewandtheceliacclue, you are welcome. After looking at this thread again, I would like to suggest that some of the other comments from @Russ H are worth following up on. The bird-bread may or may not be contributing to what you are experiencing, but it seems unlikely to be the whole story. If you have access to decent healthcare, I would write down your experiences and questions in outline form and bring this to your Dr. I suggest writing it down so you don't get distracted from telling the Dr everything you want to say while you have their attention.
    • Aretaeus Cappadocia
      @Russ H, I partly agree and partly disagree with you. After looking at it again, I would say that the slick graphic I posted overestimates the risk. Your math is solid, although I find estimates of gluten in white bread at 10-12% rather than the 8% you use. Somewhat contradicting what I wrote before, I agree with you that it would be difficult to ingest 10 mg from flinging bread.  However, I would still suggest that @nancydrewandtheceliacclue take precautions against exposure in this activity. I'm not an expert, I could easily be wrong, but if someone is experiencing symptoms and has a known exposure route, it's possible that they are susceptible to less than 10 mg / day, or it is possible that there is/are other undetected sources of exposure that together with this one are causing problems. At any rate, I would want to eliminate any exposure until symptoms are under control before I started testing the safety of potentially risky activities. Here is another representation of what 10 mg of bread would look like. https://www.glutenfreewatchdog.org/news/wp-content/uploads/2019/10/10mgGlutenCrumbsJules.jpg Full article that image came from: https://www.glutenfreewatchdog.org/news/what-does-10-mg-of-gluten-look-like/
    • nancydrewandtheceliacclue
      @Aretaeus Cappadocia thank you for your reply and the link, that is very helpful to get a visual of just how small of an amount can cause a reaction. I know I am not consuming gluten or coming into contact with gluten from any other source. I will stop touching/tossing bread outside! My diet has not changed, and I do not have reactions to the things I am currently eating, which are few in number. My auto immune reaction just seems so severe. The abdominal pain is extreme. It takes a lot out of me. I guess I will be this way for the rest of my life if I ever happen to come into contact with gluten? I appreciate the help. 
    • Jmartes71
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    • Aretaeus Cappadocia
      oops. I didn't see that before posting or I would have at least referenced it. The two recipes are pretty similar, but I think the newer one is a little simpler/faster. Next time though I will search more before posting.
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