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Need Help Dealing With A Flare Up

ohsoretro

By ohsoretro
in Coping with Celiac Disease

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ohsoretro Newbie
ohsoretro
Posted

Hi all! I've been reading this site for a while now, some people sound like they are in a similar situation as I am in now so I'm hoping for a little insight.

I was diagnosed with celiac in June 09 and have been gluten-free since, almost 100% with the odd mix up now and then. Last week I bought a new brand of ground flax seed, thoroughly read the package and determined it was gluten-free. I ate it three mornings in a row with my breakfast cereal. At first I just felt kind of bloated and gassy but by the 3rd morning I was having an intense pain in my left side and realized that I was having a gluten reaction. I went through every product in my house when I noticed the "may contain wheat" in small print on the flax package. Groan.

Since last Wed I've had a horrible pain in my left side, under my ribs and in my back, it almost feels like my kidney and have had pretty bad D after eating. I've been mostly eating rice and rice cereals, drinking water and gatorade. As soon as I eat anything of substance my stomach/left side starts to gurgle and I have to get to the bathroom. I've been using a hot water bottle for pain but haven't taken any medication.

I'm wondering if these symptoms are in line with a flare up of celiac disease? Is such a thing even possible? And how long will it take my insides to feel better again? I thought I'd be fine by now & I'm starting to feel really stressed out about it.

Any info, help, similar stories would be greatly appreciated. Thanks for reading!

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Roda Rising Star
Roda
Posted

I can understand your stress. I went gluten free the end of Oct. 08 and up until Jan of this year I felt great. Since then I have had issues and I'm still having problems. I don't feel nearly as bad as I did before gluten free, but still not fine. I have another appointment next week to discuss such issues. I know I have a fat malabsorption right now and I believe it is pancreatic insufficiency and/or dysfunctional gallbladder. The question is it connected to the celiac. My last blood work did still show a positive AGA Igg with everything else negative. I also had a negative biopsy in April. But I could be getting cc from products and at home since we have a shared house. However, my symptoms don't go with my typical glutening. I suppose it can change. I feel fine as long as I eat virtually no fat and basic plain foods. It is frustrating to feel bad after "knowing" what normal feels like. Hugs to you.

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      By Aretaeus Cappadocia · Posted

      @nancydrewandtheceliacclue, you are welcome. After looking at this thread again, I would like to suggest that some of the other comments from @Russ H are worth following up on. The bird-bread may or may not be contributing to what you are experiencing, but it seems unlikely to be the whole story. If you have access to decent healthcare, I would write down your experiences and questions in outline form and bring this to your Dr. I suggest writing it down so you don't get distracted from telling the Dr everything you want to say while you have their attention.
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