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Scoobysnackn

New Here - Anybody Glued To Toilet For First Few Hours A.m?

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Yesterday I had an EGD with biopsy after my Celiac blood panel came back negative.

Symptoms and pain have increased rapidly in the past 6 months,

IBS for years. Here is a brief rundown of symptoms. Wondering if they fit the

basic description of gluten-intolerance (I know it varies person to person):

Loose stools every morning, with urgency. Sometimes

6-7 times before I can shower and leave the house.

Lower abdominal pain (colicky) that radiates to the back.

Pain is always present. Have had every test, X-ray, MRI,

CT, ultrasound done - all just fine.

Nights of chronic all-over, maddening itching. No raised

rash or hives. Is NOT constant. Seems to occur 2-3 hours

after a big meal. Nothing relieves it.

Bloated for years - boobs to bellybutton, I call it. Look

6-9 months pg, depending on the day. Rarely belch or

pass (exception: yesterday after EGD procedure). Tired of

looking and feeling like a dirigible :(

I'll be 40 next month, married mother of 3. Sick and

tired of being sick and oh so tired and weak-feeling.

Have not tried gluten-free yet, as I wanted to wait til

after EGD test. Scheduled (of my own recommendation)

with an allergist

the 20th for 3 hours of testing, mainly for food intolerances

sensitivities and allergies.

Am I on the right path to finding some answers?

Do my symptoms at all sound celiac-related??

Would really welcome some feedback. Thanks guys!

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Yup. I've had the loose stools that make me late for work, even when I try to leave extra time. I get the bloating, too. My pain has been more transient and more often in my stomach, but yeah. Pain.

Could be Celiac! If you've already had the EGD with biopsies and the Celiac panel, sounds like it's time to just try the gluten-free diet and see if it helps. The panel can be falsely negative with a clinical diagnosis of Celiac confirmed by improvement with a gluten-free diet.

I'll keep my fingers crossed that it's Celiac and you're feeling better soon. Good luck!

ETA: I also absolutely LOVE that you used the word "dirigible" casually in a sentence. That was super cool.

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Yup. I've had the loose stools that make me late for work, even when I try to leave extra time. I get the bloating, too. My pain has been more transient and more often in my stomach, but yeah. Pain.

Could be Celiac! If you've already had the EGD with biopsies and the Celiac panel, sounds like it's time to just try the gluten-free diet and see if it helps. The panel can be falsely negative with a clinical diagnosis of Celiac confirmed by improvement with a gluten-free diet.

I'll keep my fingers crossed that it's Celiac and you're feeling better soon. Good luck!

ETA: I also absolutely LOVE that you used the word "dirigible" casually in a sentence. That was super cool.

Thanks Emi! Will take your advice!! Still excited (really?) about seeing the allergist

too. ;)

btw - I'm a teacher. Love big words! :)

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I went gluten free the day of my EGD/biopsy. My celiac panel was positive and it turned out the biopsies were also. So if all testing has been done, just go for it!

I was miserable after my EGD...to get a better look at my stomach/small intestine, my GI dr. pumped air into it. While they try to also get as much out afterwards as possible, I was hugely bloated and uncomfortable for a good bit of the day.


Sylvia

Positive Celiac Blood Panel - Dec., 2009

Endoscopy with Positive Biopsy - April 9, 2010

Gluten Free - April 9, 2010

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Do give the diet a good strict try now that your testing is done. You do sound like your in the right place. False negatives are unfortunately not rare but if you get good results from the diet you will know you have the answer.


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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