Jump to content

  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Celiac Causing Neuropathy?

rose-thorn98

Recommended Posts

rose-thorn98 Rookie
rose-thorn98
Posted

My Dr. thinks that my small fiber neuropathy may be caused by Celiac. I was positive on blood test (IGA) and am awaiting a biopsy appointment. Anyone else here with Celiac caused neuropathy?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


T.H. Community Regular
T.H.
Posted

Possibly. They thought it was caused by something else - partially herniated disc in my neck affecting the nerves down my arms.

However, since going gluten free, I don't get those symptoms any more at all, and I don't think I've healed up a partially herniated disc, so I'm thinking yes.

Also had vertigo (possibly vestibular ataxia?) that clears up as well when I'm off gluten.

ravenwoodglass Mentor
ravenwoodglass
Posted

I had severe neuropathy along with partial paralysis that resolved on the diet. It is not uncommon with us. For some it is due to our bodies not being able to utilize B12 from our food or swallowed supplements and for others it is part of the autoimmune reaction stemming from the antibodies action on the nervous system. After all testing is done do give the diet a try no matter what the results.

adab8ca Enthusiast
adab8ca
Posted

Yup.

Exactly, small fiber neuropathy (my sig. has more details).

It can take a long time to resolve unfortunately and depends on the cause. I have been gluten-free about 6 weeks and I don't think it is getting worse.

Good luck and keep us posted! (and actually even if the tests come out negative, I would probably give the gluten-free a try. Apparently there is some stat that indicates that approx 15% of small fiber neuropathies without any obvious cause are from celiac)

ada

  • 2 weeks later...
strausserc Rookie
strausserc
Posted

Hello everyone....

I also have neuropathy...my numbness runs from my left breast down to my groin but only on the left side. My entire stomach area is numb. It does not cross the midline. Also part of my back is numb on the same side. I had an MRI to check for a tumor and other horrible things but nothing.....and it is still numb !! It has been almost 2 weeks and no answers. I have an appointment on November 12th with a neurologist but until then I am going crazy. My son is a diagnosed Celiac but I have no "official" diagnosis. I have many of the common symptoms but my blood work came back negative because much of what I already eat is gluten-free because of my son. Does anyone have any info on numbness on the torso? I know the usual numbness with Celiac is on the hands and feet. I would appreciate any info anyone might have.

Thank you !

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to ThomasA55's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Iron loss and potential celiac.

      Yes, it does. And joint pain is another celiac symptom that is now well-recognized.
    2. ThomasA55
      - ThomasA55 replied to ThomasA55's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Iron loss and potential celiac.

      Does my iron loss sound like celiac to you?
    3. trents
      - trents replied to ThomasA55's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Iron loss and potential celiac.

      Being as how you are largely asymptomatic, I would certainly advise undertaking a gluten challenge in order to get formal testing for celiac disease. We have many forum participants who become violently ill when they undertake a gluten challenge and they therefore can't carry through with it. That doesn't seem to be the case with you. The reason I think it...
    4. ThomasA55
      - ThomasA55 replied to ThomasA55's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Iron loss and potential celiac.

    5. trents
      - trents replied to ThomasA55's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Iron loss and potential celiac.

      Welcome to the celiac.com community, @ThomasA55! Before I give my opinion on your question about whether or not you should undergo a gluten challenge, I would like to know how you react when you get a good dose of gluten? Are you largely asymptomatic or do you experience significant illness such as nausea and diarrhea? You mentioned intermittent joint...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,086
    • Most Online (within 30 mins)
      10,442
    Joseph01
    Newest Member
    Joseph01
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      Iron loss and potential celiac.

      By trents · Posted

      Yes, it does. And joint pain is another celiac symptom that is now well-recognized. 
    • ThomasA55
      Iron loss and potential celiac.

      By ThomasA55 · Posted

      Does my iron loss sound like celiac to you?
    • trents
      Iron loss and potential celiac.

      By trents · Posted

      Being as how you are largely asymptomatic, I would certainly advise undertaking a gluten challenge in order to get formal testing for celiac disease. We have many forum participants who become violently ill when they undertake a gluten challenge and they therefore can't carry through with it. That doesn't seem to be the case with you. The reason I think it is important for you to get tested is that many or most people who don't have a formal diagnosis find it difficult to be consistent with the gluten-free diet. They find ways to rationalize that their symptoms are due to something other than celiac disease . . . especially when it becomes socially limiting.  The other factor here is by being inconsistent with the gluten free diet, assuming you do have celiac disease, you are likely causing slow, incremental damage to your gut, even though you are largely asymptomatic. It can take years for that damage to get to the point where it results in spinoff health problems. Concerning genetic testing, it can't be used for diagnosis, at least not definitively. Somewhere between 30 and 40% of the general population will have one or both of the two genes known to be associated with the development of active celiac disease. Yet, only about 1% of the general population will develop active celiac disease. But the genetic testing can be used as a rule out for celiac disease if you don't have either gene. But even so, that doesn't eliminate the possibility of having NCGS (Non Celiac Gluten Sensitivity).
    • ThomasA55
      Iron loss and potential celiac.

      By ThomasA55 · Posted

    • trents
      Iron loss and potential celiac.

      By trents · Posted

      Welcome to the celiac.com community, @ThomasA55! Before I give my opinion on your question about whether or not you should undergo a gluten challenge, I would like to know how you react when you get a good dose of gluten? Are you largely asymptomatic or do you experience significant illness such as nausea and diarrhea? You mentioned intermittent joint pain before you began experimenting with a low gluten diet. Anything else?
×
×
  • Create New...