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Celiacs In Santa Barbara


Marc1

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Marc1 Rookie

Hi Everyone,

I am a student at UC Santa Barbara. I know that there are at least four other students with celiac disease living on campus and at least a dozen people in the general area with celiac disease. Out of 18,429 undergraduate and 2,981 graduate students by statistics there should be about 200 celiacs on campus. Does anyone else want to start a petition to bring more gluten free food to the dining halls or at least label the things with wheat in them? UCSB is better than most campuses when it comes to eating, but it is annoying to have to ask the cook at least once a week what is in everything. They label some things with wheat and nuts warnings, why not all?

If you are interested in this or simply want to hang out with another celiac at UCSB, reply or send me a message.

  • 1 month later...

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Marc1 Rookie

I am finding it deeply ironic that of the 234 people who looked at this post according to the counter on the page as of when I started writing, of the half dozen celiacs at UCSB who have contacted me, two of which went to the trouble of tracking me down in the dorms to meet me in person, not one person has commented on this post. I have been contact by almost every electronic means, except a reply on this forum. Is there something about UCSB that makes people here allergic to forums?

Anyway, Good Luck on Finals Everyone and Happy Holidays! Hope to see you all when school starts again in January.

mushroom Proficient

Maybe we don't have any members from UCSB, to whom your post was addressed :unsure:

cyberprof Enthusiast

I am finding it deeply ironic that of the 234 people who looked at this post according to the counter on the page as of when I started writing, of the half dozen celiacs at UCSB who have contacted me, two of which went to the trouble of tracking me down in the dorms to meet me in person, not one person has commented on this post. I have been contact by almost every electronic means, except a reply on this forum. Is there something about UCSB that makes people here allergic to forums?

Anyway, Good Luck on Finals Everyone and Happy Holidays! Hope to see you all when school starts again in January.

Marc, it's nice of you to help your fellow celiacs/gluten-intolerants. As the parent of a soon-to-be celiac college student I say go for it! Maybe a facebook page would help? Or some posters/electronic notices on campus? I'm not at UCSB (nor will my kids be there) but it's a great idea!

  • 1 month later...
Marc1 Rookie

Hi everyone,

Been rather busy this quarter but we have some good news. There will be a club organized at UCSB sometime spring quarter. We are setting up a Facebook page in our free time and will post the link when we are ready. The club will be open to all people with allergies, since the pool of people with celiac disease at Santa Barbara is small. If you are interested in volunteering send me a message. We already got two co-presidents (Yay! not doing it completely alone) and are looking for people willing to help out or at least eat gluten free cookies and give moral support. We will post more when we have time.

Peace

T-Minus 4 weeks to Spring Quarter

  • 3 weeks later...
Marc1 Rookie

The facebook page is now officially up. Gluten free Santa Barbara. still adding content, message me if you want me to add something and no I still can't get the picture the right size due to facebooks's layout change, there is no longer a resize photo button for page photos. Hopefully there will be one next update.

The club is still unofficial, we haven't picked a set meeting time yet so we are still meeting in my apartment for the minute. Anyone have a time preference? I think I can get the San Clemente activities room if we have enough notice, especially since one of the RC's in charge of it has a girlfriend with celiac disease. Since most of you prefer to send me emails or facebook messages, you know where to reach me. I am not sure why I am bothering to post this on this forum since you all look at it here, but then log on to facebook to message me, but I figure the more exposure the better.

I will post an update after finals are over.

  • 1 year later...
mamaupupup Contributor

Hey Marc,

Hope you are well. I am a Mom with two elementary-aged kiddos all recently diagnosed with Celiac. Please let me know if I can be a resource to anyone and vice-versa. It's been a LONG time since I was in college...so I won't be much help or a good sounding board on that front...but maybe for students with kids?

Cheers!


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      Hello Russ! Thank you so much for your reply.  I have not had an antibody test done, ever, relating to gluten. Last year I had an allergy test done via blood draw (as my insurance wouldn't cover the skin test) but this was for pollen and grasses, not food. Even on the blood test I had extremely high levels of reactions to each allergen. Could this seasonal allergy inflammation be contributing to my celiac inflammation? I am so careful, there is no way I could ingest gluten. For example, couple of months ago I tried a cough drop that says it was gluten free. I checked ingredients, it seemed fine. But just taking one of those caused me to have nausea, vomiting, and the same extreme abdominal pain. Have you ever heard of anyone else having symptoms like mine after being diagnosed celiac and strictly gluten free? The last episode I had like this was yesterday, after I ate a certified gluten-free coconut macaroon with a little chocolate on it. I have eaten coconut and chocolate before with no issue,  so I didn't see how I could all of a sudden have such a strong response. 
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