Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Is This Possible?


Lunabell

Recommended Posts

Lunabell Apprentice

My youngest has all but been diagnosed with celiac. Her blood tests were positive and her observed reactions are pretty apparent. Just waiting to do the endo/biopsy for the doctor's official seal.

We are gluten free in our home. I told the doctor that I was going to go ahead and switch her over because continuing to feed her gluten when it causes her such pain was child abuse, in my opinion. She agreed and didn't think she would heal fully by December 29th.

I was completely gluten free for about 3 days since I didn't eat anything from outside the house. Last night I had a couple of beers. I woke up in the middle of the nights totally bloated and in a lot of pain. I called it a "corn-lite" experience because it reminded of what it felt like when I would eat corn when I was pregnant with my middle daughter. I still don't eat corn to this day because of how awful I felt.

I am going to get my blood work done in January,since I do have a history of IBS-y like issues. I just don't have time before the holidays. I have been trying to keep gluten in my diet so that the testing will be accurate. I just don't bring it into the house,

If someone has celiac, is it possible to have a more extreme reaction after being gluten free for only 3 days?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cassP Contributor

yes! absolutely! my reactions are way more alert and severe than before going gluten free!

shopgirl Contributor

Yep. I screwed up four days into gluten-free and got a wicked stomachache when I messed up. I'd never had stomach/abdominal pain pre-diagnosis either.

T.H. Community Regular

If someone has celiac, is it possible to have a more extreme reaction after being gluten free for only 3 days?

Yup. I had NO gut pain before I was diagnosed, and after 2 days of being gluten free, I had gluten free chips that we since found out have more gluten cc than I could handle, and I was very sick.

I don't know if it's as common as those who start having issues with gluten after a few weeks on the gluten free diet, but it definitely happens.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - ThomasA55 replied to ThomasA55's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Iron loss and potential celiac.

    2. - trents replied to ThomasA55's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Iron loss and potential celiac.

    3. - trents replied to ThomasA55's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Iron loss and potential celiac.

    4. - Joseph01 replied to bethmon's topic in Gluten-Free Foods, Products, Shopping & Medications
      14

      We Keep Getting Glutened With Vegetable Oil

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,086
    • Most Online (within 30 mins)
      10,442

    Joseph01
    Newest Member
    Joseph01
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • ThomasA55
      Does my iron loss sound like celiac to you?
    • trents
      Being as how you are largely asymptomatic, I would certainly advise undertaking a gluten challenge in order to get formal testing for celiac disease. We have many forum participants who become violently ill when they undertake a gluten challenge and they therefore can't carry through with it. That doesn't seem to be the case with you. The reason I think it is important for you to get tested is that many or most people who don't have a formal diagnosis find it difficult to be consistent with the gluten-free diet. They find ways to rationalize that their symptoms are due to something other than celiac disease . . . especially when it becomes socially limiting.  The other factor here is by being inconsistent with the gluten free diet, assuming you do have celiac disease, you are likely causing slow, incremental damage to your gut, even though you are largely asymptomatic. It can take years for that damage to get to the point where it results in spinoff health problems. Concerning genetic testing, it can't be used for diagnosis, at least not definitively. Somewhere between 30 and 40% of the general population will have one or both of the two genes known to be associated with the development of active celiac disease. Yet, only about 1% of the general population will develop active celiac disease. But the genetic testing can be used as a rule out for celiac disease if you don't have either gene. But even so, that doesn't eliminate the possibility of having NCGS (Non Celiac Gluten Sensitivity).
    • ThomasA55
    • trents
      Welcome to the celiac.com community, @ThomasA55! Before I give my opinion on your question about whether or not you should undergo a gluten challenge, I would like to know how you react when you get a good dose of gluten? Are you largely asymptomatic or do you experience significant illness such as nausea and diarrhea? You mentioned intermittent joint pain before you began experimenting with a low gluten diet. Anything else?
    • Joseph01
      This is way past due for your post.  I have Celiac and have been recovering for more than a year.  Doing well.  Used Essential oil to day to fry some chicken.  Read the label all good.  Then ate some chicken.  Here comes the gluten reaction.  I haven't had a gluten reaction since year.  I am angry.   I have been so careful with this crap and don't wan't any set backs!!!!! Good luck to you with your post.   Celiac is HELL!
×
×
  • Create New...