Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Are Your Reactions To Gluten In Non-Food Products?


AzizaRivers

Recommended Posts

AzizaRivers Apprentice

I know not everyone is sensitive enough to have to worry about this, but I'm wondering how reactions typically go for those of you who do.

To start with, when I eat gluten, my reactions are pretty much all GI-related. I had no DH or neuro symptoms or anything. Now, for the past two weeks or so I've all of a sudden been itchy all over. The only visible indication of this was a patch of hives behind each ear. They didn't spread. But I found myself having trouble falling asleep because I kept having itchy spots all over my body, especially my scalp. I've also been breaking out with acne on my back, with I haven't had a problem with since my early teens. It's not really itchy except on dry spots, so I doubt it's anything but acne.

I was in the shower last night and decided on a whim to check the ingredients of the new shampoo bottle I've been using for oh, say, about two weeks. And what do you know? Hydrolyzed wheat protein right up near the top. And I thought "Hmm, I wonder if that's why..." and decided not to wash my hair this time.

I didn't think I was that sensitive, but the pieces fit together so perfectly. So I'm just wondering if my symptoms are plausibly a reaction to gluten in my shampoo. On the other hand...aren't our reactions to non-food items usually a result of it somehow getting in our mouths? Thoughts?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Gemini Experienced

I know not everyone is sensitive enough to have to worry about this, but I'm wondering how reactions typically go for those of you who do.

To start with, when I eat gluten, my reactions are pretty much all GI-related. I had no DH or neuro symptoms or anything. Now, for the past two weeks or so I've all of a sudden been itchy all over. The only visible indication of this was a patch of hives behind each ear. They didn't spread. But I found myself having trouble falling asleep because I kept having itchy spots all over my body, especially my scalp. I've also been breaking out with acne on my back, with I haven't had a problem with since my early teens. It's not really itchy except on dry spots, so I doubt it's anything but acne.

I was in the shower last night and decided on a whim to check the ingredients of the new shampoo bottle I've been using for oh, say, about two weeks. And what do you know? Hydrolyzed wheat protein right up near the top. And I thought "Hmm, I wonder if that's why..." and decided not to wash my hair this time.

I didn't think I was that sensitive, but the pieces fit together so perfectly. So I'm just wondering if my symptoms are plausibly a reaction to gluten in my shampoo. On the other hand...aren't our reactions to non-food items usually a result of it somehow getting in our mouths? Thoughts?

If you are ingesting your shampoo, which would be pretty obvious because of the horrible taste, then you could very well be reacting to the shampoo. There is also the possibility that you have developed a contact allergy to an ingredient in the shampoo. The symptoms you describe match perfectly the effects of a contact allergy.

Many Celiacs automatically think they are ingesting gluten when things like this happen. It could be but could also be what I stated above. The only way to know is to have testing done for allergies to wheat/gluten or to stop using the product and then use it again to see what the reaction is. You cannot have a Celiac based internal reaction unless you ingest wheat into your GI tract. That could include getting shampoo into your eyes or nose because they are connected to your throat....which leads to your stomach.....you get the picture. To be honest, I am an extremely sensitive Celiac who only screens hand cream and lip products. I have become deathly ill from minute amounts of ingested crumbs yet have had no problem with topical products. Gluten does not absorb through the skin so as long as you are careful with ingesting topical products, it shouldn't be a problem. I know some people have trouble believing this is true but really....how hard is it not to eat your products? I know soap and make-up tastes pretty bad so I don't eat it.

It becomes second nature after a while and accidents don't happen. I have no other topical/contact allergies or issues so am lucky in that respect.

You may want to consider changing to a different product and if the reaction still happens, it might be another ingredient in the shampoo which is irritating your skin. Sometimes it takes a bit of investigating to figure it all out!

ravenwoodglass Mentor

While topical gluten can not cross intact skin, and if you have a rash it is not intact, contact with mucous membranes can cause a reaction. There are doctors who are now advising people to avoid it in topicals as well as food.

Topical gluten cross contamination will give me the same reaction as cross contamination in food. GI issues (which for me are delayed from the time of injestion), flare my neuro issues and cause an outbreak of DH.

Shampoos and conditioners leave a residue on your skin and hair. That is how they 'condition' your hair. You could also have an allergy as well as celiac.

Many of us do avoid gluten in topical items. Some have no issues but since you are it might be best to switch to a gluten free shampoo. Suave, Dove and Garneir will clearly label gluten ingredients. I use Garneir for both skin and hair care.

Gemini Experienced

While topical gluten can not cross intact skin, and if you have a rash it is not intact, contact with mucous membranes can cause a reaction. There are doctors who are now advising people to avoid it in topicals as well as food.

Topical gluten cross contamination will give me the same reaction as cross contamination in food. GI issues (which for me are delayed from the time of injestion), flare my neuro issues and cause an outbreak of DH.

Shampoos and conditioners leave a residue on your skin and hair. That is how they 'condition' your hair. You could also have an allergy as well as celiac.

Many of us do avoid gluten in topical items. Some have no issues but since you are it might be best to switch to a gluten free shampoo. Suave, Dove and Garneir will clearly label gluten ingredients. I use Garneir for both skin and hair care.

Contact with mucous membranes, which the eyes, nose and mouth obviously are defined as, would cause a reaction because it's part of the GI tract. That makes sense. CC from supposed residue on your skin may also cause a problem if you ingest it. That's common sense also. However, if topicals do not come into contact with mucous membranes, it shouldn't be a problem, except for those with pre-disposed contact allergies and sensitivities. It would not be possible for me to be this healthy, have made the recovery I have made and have the blood work numbers I now have if this were not true. It all depends on comfort level. If a person is careful in applying creams and lotions and does not eat them, again, using common sense, it won't be a problem.

It is not necessary for all Celiacs to avoid topical gluten. Even extremely sensitive and symptomatic Celiacs can accomplish this quite easily. If you have topical issues including hives and rashes after using any topical product, you may too sensitive on the surface to use just anything. There are also many skin allergies that have absolutely nothing to do with gluten exposure....it's quite common actually. Every person has to figure out which products bother them and what they can safely do or not do. If you assume that all your reactions are caused by gluten exposure, whether internal or not, the real problem may never be figured out.

AzizaRivers Apprentice

Okay, so pretty much whatever the reason for my reaction, I need to switch products anyway to make it go away.

I'm starting to wonder if it's not acne but if it is, in fact, DH. If not, I guess I just for some reason am sensitive to this product. Picked up some new shampoo today!

Thanks, everyone.

ravenwoodglass Mentor

Okay, so pretty much whatever the reason for my reaction, I need to switch products anyway to make it go away.

I'm starting to wonder if it's not acne but if it is, in fact, DH. If not, I guess I just for some reason am sensitive to this product. Picked up some new shampoo today!

Thanks, everyone.

DH is generally very itchy and when it heals it will leave long lasting purplish scars. If it itches badly it may be DH. Hives will also itch but the lesions are usually the size of a mosquito bite, DH lesions tend to be smaller and if you can keep from scratching them you will often see blisters.

No matter what it is I think you have made the right choice to pass on this item. Hopefully it will clear up soon for you.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,592
    • Most Online (within 30 mins)
      7,748

    jojo83
    Newest Member
    jojo83
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      71.1k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • CelluloseSick
      Thanks Scott. its been a tough journey. i haven’t been able to take any painkillers for pain, because they all contain some form of cellulose. I’m finally working with a compounding pharmacist to get compounded Ibuprofen w/o cellulose filler … I’ll let you know how that works out. when I tell doctors about my problems with cellulose and medications, sadly they really don’t understand the magnitude of the problem. My reason for responding to the original post was to let others know they’re not crazy - and there’s such a thing as cellulose intolerance. Thank you so much for your response.
    • Scott Adams
      Hello @CelluloseSick, it sounds like you’ve been through a really challenging journey trying to pinpoint and avoid cellulose fillers in medications. Severe migraines and liquid diarrhea, especially with Ulcerative Colitis, must make this an incredibly difficult issue to manage. It’s frustrating how hidden these ingredients can be, and it definitely takes a lot of detective work to connect the dots. While true cellulose allergies or intolerances don’t seem to be well-documented, some people do report digestive issues, headaches, or other symptoms when exposed to cellulose-based fillers. Unfortunately, there isn’t a clear statistic on what percentage of the population suffers from this, but anecdotal evidence suggests that you are not alone. Have you found any specific resources or medical professionals who acknowledge this issue? It’s great that you’ve been able to find compounded medications with sucrose fillers—hopefully, that continues to work for you!
    • CelluloseSick
      Btw, I recently switched from Compounded T3/T4 ( which had cellulose in it, unbeknown to me) and was making me sick to a brand called NP Thyroid. No cellulose filler
    • CelluloseSick
      So happy to have found this Post. ive been struggling with cellulose fillers in meds for years. When I found out, I looked for meds that do not contain cellulose filler or have had to get compounded meds made with sucrose filler. My reactions are:  severe migraines and liquid diarrhea ( not fun when you suffer from Ulcerative Colitis). not sure what percentage of the population suffer from such allergy. you'd have to be a pretty good sleuth to find this and make the connections. Bravo for you!   anyone know what percentage of population suffers from cellulose intolerance? thanks?    
    • Scott Adams
      If you replace the gluten products you normally ate with gluten-free versions, and I mean the breads, be careful, as many gluten-free products can be high in calories and low in nutrients (high carb).
×
×
  • Create New...