Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Beyond Irritated!


norahsmommy

Recommended Posts

norahsmommy Enthusiast

My 14 month old is chronically constipated. I have eliminated many foods from her diet due to constipation issues, painful bm's, weird colored stool, seeing all her undigested foods in her stools and so on. I took her to the doc today because she hasn't pooped since Friday and its Thursday now. They prescribed a stool softener and had an x-ray taken of her tummy to make sure there were not problems that kept the stool from passing. The doc I really dislike called me to let me know about the results. He said she was full up with poop (surprise) and that her colon looked a bit swollen. He said to Finnish the prescription then start her on a half cap of miralax 2 times a day. Then to up it to 2 full caps if that doesn't work. He gave no indication of when that would stop but the prescription I have will last for at least 2 weeks. It was alot. So alot longer than 2 weeks on a stool softener. He said it was likely she was just not getting enough fluids. That is NOT true because she is constantly drinking and has plenty of soaking wet diapers. Then he suggested running a humidifier in her room. When I mentioned that I thought it was food related and NOT due to lack of liquids he just skimmed over that and repeated the lack of fluid thing about 3 more times. So questions, is miralax gluten free?? and is it habit forming. Stool softeners have never worked for her in the past so why should they now, they don't work for me either for that matter or for my father. He can take them for 8 days straight and have NO bm's at all. I really wanted a referral to a pediatric GI but they didn't see a reason for it at this point. I gave her her prescription stool softener tonight before bed as it said to and she threw it up. So that didn't work.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

I can so understand your frustration! Are you in an HMO situation where you absolutely must have a referral? If so, do you have the financial wherewithal to go outside the system, having explored the qualifications of a good pediatric GI? I would think at this point, having read your previous threads and posts, that this might be money well spent. Perhaps then you would have evidence to present to your HMO about what your daughter needs. If you are not thus restricted. If this is not the case then I would find another doctor immediately, because the one you have is not helping her.

CathyG Rookie

I had the exact same problem with my son. He was so bad that he had internal bleeding - he was in so much pain every time he had a dirty nappy and some times it would take over an hour for it happen. It was heartbreaking - I did everything, took him to all the doctors and gave him all the medication under the sun (which never worked). The way that I fixed it was to put him on a lactose free formula. It took a few days, but he became much more regular and the pain was gone.

The only thing is - that even still to this day, his poops are still a funny green colour, but that's the lactose free formula that's doing that.

Goodluck and I hope you manage to sort it out soon. I know how awful it is to watch them go through this.

shopgirl Contributor

Miralax is gluten free and is absolutely not habit forming. It's an osmotic which means it just pushes extra water into the intestines to soften things up. It's not a stimulant.

I was prescribed it and had no problems other than a little extra gas. Just make sure she's drinking a healthy amount of water. I don't know what it would be for a baby but I always drank at least 64 oz. a day and was fine.

Cypressmyst Explorer

This sounds like me when I was little. Take all dairy out of his diet. No milk, no cheese, nothing with casein in it (It likes to hide in things) and maybe throw in soy just to be sure, it likes to be sticky in the same way that gluten and casein are and can cause similar problems. I've been dairy free for a few months now and the one time I accidentally had some I stopped up for days. Gluten and Casein are kissing cousins, both very bad news. :(

Best of luck to your poor baby and you. Please let us know how it turns out!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to ThomasA55's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Iron loss and potential celiac.

    2. - trents replied to ThomasA55's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Iron loss and potential celiac.

    3. - Joseph01 replied to bethmon's topic in Gluten-Free Foods, Products, Shopping & Medications
      14

      We Keep Getting Glutened With Vegetable Oil

    4. - ThomasA55 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Iron loss and potential celiac.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,086
    • Most Online (within 30 mins)
      10,442

    Joseph01
    Newest Member
    Joseph01
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      Being as how you are largely asymptomatic, I would certainly advise undertaking a gluten challenge in order to get formal testing for celiac disease. We have many forum participants who become violently ill when they undertake a gluten challenge and they therefore can't carry through with it. That doesn't seem to be the case with you. The reason I think it is important for you to get tested is that many or most people who don't have a formal diagnosis find it difficult to be consistent with the gluten-free diet. They find ways to rationalize that their symptoms are due to something other than celiac disease . . . especially when it becomes socially limiting.  The other factor here is by being inconsistent with the gluten free diet, assuming you do have celiac disease, you are likely causing slow, incremental damage to your gut, even though you are largely asymptomatic. It can take years for that damage to get to the point where it results in spinoff health problems. Concerning genetic testing, it can't be used for diagnosis, at least not definitively. Somewhere between 30 and 40% of the general population will have one or both of the two genes known to be associated with the development of active celiac disease. Yet, only about 1% of the general population will develop active celiac disease. But the genetic testing can be used as a rule out for celiac disease if you don't have either gene. But even so, that doesn't eliminate the possibility of having NCGS (Non Celiac Gluten Sensitivity).
    • ThomasA55
    • trents
      Welcome to the celiac.com community, @ThomasA55! Before I give my opinion on your question about whether or not you should undergo a gluten challenge, I would like to know how you react when you get a good dose of gluten? Are you largely asymptomatic or do you experience significant illness such as nausea and diarrhea? You mentioned intermittent joint pain before you began experimenting with a low gluten diet. Anything else?
    • Joseph01
      This is way past due for your post.  I have Celiac and have been recovering for more than a year.  Doing well.  Used Essential oil to day to fry some chicken.  Read the label all good.  Then ate some chicken.  Here comes the gluten reaction.  I haven't had a gluten reaction since year.  I am angry.   I have been so careful with this crap and don't wan't any set backs!!!!! Good luck to you with your post.   Celiac is HELL!
    • ThomasA55
      Hey everyone. I'm a young adult who had very high iron in 2024. 64% saturation 160 ferritin. In 2025 I had far lower iron. 26% saturation and 130 ferritin. I know this is still in range but it seems to be a large drop. That combined with the fact that I developed some intermittent joint pain between the two years makes me wonder if I could be celiac. My dietary intake of iron was pretty steady (mostly in the form of red meat). I did carnivore (therby eliminating gluten) for a bit after the second test and felt improvements in my joints and digestion. I still consume gluten occasionally socially, for religious reasons, and through cross contamination/food sharing. For these reasons, I would need to know if I had it, because although my lifestyle is low gluten its not at the strict level it should be if it turned out I was celiac. I will get a gene test first and hope I don't have DQ2.5,DQ2.2, or DQ8, but if I had any combination of those do you guys think I need proper screening through a gluten challenge / blood test? Other context. From 2024-2025, my b12 stayed about the same in the mid 600s folate went up slightly, but I heard it takes longer for celiac to affect the absorption of these. ANA negative, CRP low, ESR low.  I don't know how much noise exists around the saturation and ferritin, but it caught my eye and Celiac seemed like a possibility. I'm under no illusion that it is probable that I have celiac, only that it may be worth screening given my overall profile.   
×
×
  • Create New...