Jump to content

  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Family History Of Anti-Immune Diseases

scottyg354

Recommended Posts

scottyg354 Enthusiast
scottyg354
Posted

So, I've been having digestive problems for the past few years (probably about 7).

Been scoped, x-rayed, ultrasounded, bloodwork etc. Scope I had in the beginning of my episodes, everything else after. Recently was diagnosed Hypothyroid. My question is, my family on both sides have a long history of autoimmune disease.

On my mom's side:

Mom: Hypothyroid

Grandmother: Hypothyroid, Osteoperosis,

Grandfather: Hypothyroid, Type 2 Diabetic Turned Type 1

Aunt: Lupus

On my dad's side:

Dad: Type 1 Diabetic

Grandmother: Type 1 Diabetic

Grandfather: Unsure, I know he died of a heart attack.

Uncle with undiagnosed skin trouble.

Heart trouble in the whole family, plus a few cousins with Anemia.

I was also jaundice when I was born. Don't know if that plays a role in anything. Haven't been jaundice since.

Being the history of autoimmune in both sides of my family, would it be uncommon that my undiagnose stomach issues could be from Celiac. I know I keep posting, I just keeping digging deeper and deeper and I keep coming up with things that lead me to celiac.

Any input.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

It is quite possible you have other undiagnosed celiacs in your family. Your family members with Type 1 diabetes should have already been tested as the NIH advises all Type 1 folks to be screened. You mention an uncle with skin issues, what are they? If they are rashes it might be a good idea for him to get biopsies for DH. It is also not uncommon for celiac to be associated with the development of other autoimmune issues or for people to have more than one autoimmune issue going on.

cassP Contributor
cassP
Posted

i think you're on the right track for sure- and like ravenwood said- i would not be surprised in the least- if u have other members in your family with undiagnosed celiac.

in addition to the DH... even if your uncle only had psoraisis or excema- these are commonly problems for those of us with gluten intolerance- ive had it all... as has my dad- whom im suspecting is also celiac, but he wont get tested.

heart problems and anemia are also issues with undiagnosed gluten intolerance...

you must get on top of this- and get a full celiac panel done- but make sure you're eating enough gluten prior to testing...

oh, and thyroid disease is ALSO extremely common with gluten intolerance... so get on it

scottyg354 Enthusiast
scottyg354
Posted
  • Author

i think you're on the right track for sure- and like ravenwood said- i would not be surprised in the least- if u have other members in your family with undiagnosed celiac.

in addition to the DH... even if your uncle only had psoraisis or excema- these are commonly problems for those of us with gluten intolerance- ive had it all... as has my dad- whom im suspecting is also celiac, but he wont get tested.

heart problems and anemia are also issues with undiagnosed gluten intolerance...

you must get on top of this- and get a full celiac panel done- but make sure you're eating enough gluten prior to testing...

oh, and thyroid disease is ALSO extremely common with gluten intolerance... so get on it

Well the doc agrees that I should try the diet. If it works, then I'll ask for some testing.

scottyg354 Enthusiast
scottyg354
Posted
  • Author

i think you're on the right track for sure- and like ravenwood said- i would not be surprised in the least- if u have other members in your family with undiagnosed celiac.

in addition to the DH... even if your uncle only had psoraisis or excema- these are commonly problems for those of us with gluten intolerance- ive had it all... as has my dad- whom im suspecting is also celiac, but he wont get tested.

heart problems and anemia are also issues with undiagnosed gluten intolerance...

you must get on top of this- and get a full celiac panel done- but make sure you're eating enough gluten prior to testing...

oh, and thyroid disease is ALSO extremely common with gluten intolerance... so get on it

I actually always had extremely dry and ithcy elbows and knuckles. Almost to the point where they would crack and bleed. I wonder if that played a part. I don't know. All I know is i've had so many odd symptoms for quite a while.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to ThomasA55's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Iron loss and potential celiac.

      Being as how you are largely asymptomatic, I would certainly advise undertaking a gluten challenge in order to get formal testing for celiac disease. We have many forum participants who become violently ill when they undertake a gluten challenge and they therefore can't carry through with it. That doesn't seem to be the case with you. The reason I think it...
    2. ThomasA55
      - ThomasA55 replied to ThomasA55's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Iron loss and potential celiac.

    3. trents
      - trents replied to ThomasA55's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Iron loss and potential celiac.

      Welcome to the celiac.com community, @ThomasA55! Before I give my opinion on your question about whether or not you should undergo a gluten challenge, I would like to know how you react when you get a good dose of gluten? Are you largely asymptomatic or do you experience significant illness such as nausea and diarrhea? You mentioned intermittent joint...
    4. Joseph01
      - Joseph01 replied to bethmon's topic in Gluten-Free Foods, Products, Shopping & Medications
      14

      We Keep Getting Glutened With Vegetable Oil

      This is way past due for your post. I have Celiac and have been recovering for more than a year. Doing well. Used Essential oil to day to fry some chicken. Read the label all good. Then ate some chicken. Here comes the gluten reaction. I haven't had a gluten reaction since year. I am angry. I have been so careful with this crap and don't wan't any...
    5. ThomasA55
      - ThomasA55 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Iron loss and potential celiac.

      Hey everyone. I'm a young adult who had very high iron in 2024. 64% saturation 160 ferritin. In 2025 I had far lower iron. 26% saturation and 130 ferritin. I know this is still in range but it seems to be a large drop. That combined with the fact that I developed some intermittent joint pain between the two years makes me wonder if I could be celiac. My dietary...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,086
    • Most Online (within 30 mins)
      10,442
    Joseph01
    Newest Member
    Joseph01
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      Iron loss and potential celiac.

      By trents · Posted

      Being as how you are largely asymptomatic, I would certainly advise undertaking a gluten challenge in order to get formal testing for celiac disease. We have many forum participants who become violently ill when they undertake a gluten challenge and they therefore can't carry through with it. That doesn't seem to be the case with you. The reason I think it is important for you to get tested is that many or most people who don't have a formal diagnosis find it difficult to be consistent with the gluten-free diet. They find ways to rationalize that their symptoms are due to something other than celiac disease . . . especially when it becomes socially limiting.  The other factor here is by being inconsistent with the gluten free diet, assuming you do have celiac disease, you are likely causing slow, incremental damage to your gut, even though you are largely asymptomatic. It can take years for that damage to get to the point where it results in spinoff health problems.
    • ThomasA55
      Iron loss and potential celiac.

      By ThomasA55 · Posted

    • trents
      Iron loss and potential celiac.

      By trents · Posted

      Welcome to the celiac.com community, @ThomasA55! Before I give my opinion on your question about whether or not you should undergo a gluten challenge, I would like to know how you react when you get a good dose of gluten? Are you largely asymptomatic or do you experience significant illness such as nausea and diarrhea? You mentioned intermittent joint pain before you began experimenting with a low gluten diet. Anything else?
    • Joseph01
      We Keep Getting Glutened With Vegetable Oil

      By Joseph01 · Posted

      This is way past due for your post.  I have Celiac and have been recovering for more than a year.  Doing well.  Used Essential oil to day to fry some chicken.  Read the label all good.  Then ate some chicken.  Here comes the gluten reaction.  I haven't had a gluten reaction since year.  I am angry.   I have been so careful with this crap and don't wan't any set backs!!!!! Good luck to you with your post.   Celiac is HELL!
    • ThomasA55
      Iron loss and potential celiac.

      By ThomasA55 · Posted

      Hey everyone. I'm a young adult who had very high iron in 2024. 64% saturation 160 ferritin. In 2025 I had far lower iron. 26% saturation and 130 ferritin. I know this is still in range but it seems to be a large drop. That combined with the fact that I developed some intermittent joint pain between the two years makes me wonder if I could be celiac. My dietary intake of iron was pretty steady (mostly in the form of red meat). I did carnivore (therby eliminating gluten) for a bit after the second test and felt improvements in my joints and digestion. I still consume gluten occasionally socially, for religious reasons, and through cross contamination/food sharing. For these reasons, I would need to know if I had it, because although my lifestyle is low gluten its not at the strict level it should be if it turned out I was celiac. I will get a gene test first and hope I don't have DQ2.5,DQ2.2, or DQ8, but if I had any combination of those do you guys think I need proper screening through a gluten challenge / blood test? Other context. From 2024-2025, my b12 stayed about the same in the mid 600s folate went up slightly, but I heard it takes longer for celiac to affect the absorption of these. ANA negative, CRP low, ESR low.  I don't know how much noise exists around the saturation and ferritin, but it caught my eye and Celiac seemed like a possibility. I'm under no illusion that it is probable that I have celiac, only that it may be worth screening given my overall profile.   
×
×
  • Create New...